Live data from Hacker News

How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

hdphealth.com

101–110 of 155 posts

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#102

I did find the line at the top "With more than 50 percent of the population estimated to be a minority by 2044..." funny - doesn't that make them a majority?

Nope. Because it's not all the same minority.

There will be no majority, and whites will (initially, at least) be a plurality.

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#103
post #52

Earlier quoted context omitted.

Or generally if historically oppressed minorities get poorer health outcomes. It seems a complex question that has many facets. Two tickets that come to mind: 1. When US sociologists and political scientists talk about “systemic and structural racism” this is one of the manifestations. That in general the well being of Native peoples in the US, of African Americans is devalued. It is witnessed in the exclusion in dru…

>When US sociologists and political scientists talk about “systemic and structural racism” this is one of the manifestations. Which has always bothered me, since there are other explanations (lifestyle habits, genetics, poverty) that would explain the difference, in whole or in part. It's a politically convenient assumption that goes contrary to Occam's Razor.

> a politically convenient assumption

The centuries-long existence of slavery, segregation (which was brutal oppression, including lynching), and racism isn't an "assumption", but indisputable fact. Occam's Razor is not a real arbiter of truth, but in this case it cuts the other way: Racism is the simpler and blazingly obvious explanation, backed by endless reearch and even the most casual observation. You really have to work to contrive explanations that don't include systemic and structural racism.

> poverty

Another outcome of those centuries.

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#104
post #56

Earlier quoted context omitted.

When people try to explain why you're coming to broken conclusions due to broken reasoning, they get attacked as radical leftists for using the straightforward terminology we have for describing the phenomenon we're discussing. Here, you've provided a perfect illustration of why we have the term "structural racism". Structural racism is the emergent discrimination arising from the circumstances that created our statu…

Grandparent has been deleted and I can't see it, so I'm not sure what their post was, so I'm aiming this response in more at the terms being used and their underlying meaning. >When people try to explain why you're coming to broken conclusions due to broken reasoning, they get attacked as radical leftists for using the straightforward terminology we have for describing the phenomenon we're discussing. How much of thi…

Grandparent has been deleted and I can't see it

Go to your HN profile and turn 'showdead' on. It hasn't been deleted, users flagged it.

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#105
post #79

I'm the founder of HDP Health, if you have any questions or want clarifications please ask away!

An incredibly complex issue. I'd be here all day trying to address it and my quibbles w/the article, e.g. "race" ≠ "ethnicity," nor is it uniformly defined across countries, since it's a (BS) social construct... In any event, my knowledge of the issue leads me to think that the outcome is more a feature than a bug. That said, while I think the article attempts to link (growing target) population size(s) with an incre…

> the outcome is more a feature than a bug

What outcome is a feature? You seem to be saying that the outcome that minorities are dying is a feature, but I strongly suspect that the comment just needs clarification.

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#106
post #52

Earlier quoted context omitted.

>When US sociologists and political scientists talk about “systemic and structural racism” this is one of the manifestations. Which has always bothered me, since there are other explanations (lifestyle habits, genetics, poverty) that would explain the difference, in whole or in part. It's a politically convenient assumption that goes contrary to Occam's Razor.

> a politically convenient assumption The centuries-long existence of slavery, segregation (which was brutal oppression, including lynching), and racism isn't an "assumption", but indisputable fact. Occam's Razor is not a real arbiter of truth, but in this case it cuts the other way: Racism is the simpler and blazingly obvious explanation, backed by endless reearch and even the most casual observation. You really hav…

>Racism is the simpler and blazingly obvious explanation, backed by endless reearch and even the most casual observation.

Things that are wrong can be obvious to individuals and groups of people. It's certainly not obvious to half the country, and that "endless research" is tainted. How long do you get to keep your job in academia if you point out the primary drivers of black misery in the US (out of wedlock births, drugs, and violence) are self inflicted?

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#107
At least on the commercial side the FDA requires that your approval population (“treatment group”) be “representative” of the population who will receive the drug if it’s approved. So you can’t get away with, say, doing your study solely in Chad or Norway as their population distribution (except perhaps by sex) won’t match that of the USA.

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#108

https://www.propublica.org/article/nothing-protects-black-wo... This is a longer article on the subject of poorer health outcomes for minorities, covering the situation for black women and one family's experience, which is very much worth reading, but here are the key points: Statistics: * A black woman is 22% more likely to die from heart disease than a white woman * ...71 percent more likely to perish from cervical…

> Black expectant and new mothers frequently told us that doctors and nurses didn’t take their pain seriously

In recent news, Serena Williams had to forcefully talk her nurses and doctors through treating her pulmonary embolism after giving birth to her child:

https://qz.com/1177004/serena-williamss-terrifying-childbirt...

Subheader: "When it comes to maternal health, even the greatest of all time is just another black woman."

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#109
post #52

Earlier quoted context omitted.

Or generally if historically oppressed minorities get poorer health outcomes. It seems a complex question that has many facets. Two tickets that come to mind: 1. When US sociologists and political scientists talk about “systemic and structural racism” this is one of the manifestations. That in general the well being of Native peoples in the US, of African Americans is devalued. It is witnessed in the exclusion in dru…

>When US sociologists and political scientists talk about “systemic and structural racism” this is one of the manifestations. Which has always bothered me, since there are other explanations (lifestyle habits, genetics, poverty) that would explain the difference, in whole or in part. It's a politically convenient assumption that goes contrary to Occam's Razor.

I just finished reading "Color of Law", which, while not the best formatted book, gives a really really good overview of the systematic, government led, programs designed and enforced explicitly against african americans from the late 1870s until the 1980s. It's a pretty quick read and well worth it for anyone who thinks that "systematic racism" isn't real.

https://www.amazon.com/Color-Law-Forgotten-Government-Segreg...

Re: How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes

#110

Earlier quoted context omitted.

> a politically convenient assumption The centuries-long existence of slavery, segregation (which was brutal oppression, including lynching), and racism isn't an "assumption", but indisputable fact. Occam's Razor is not a real arbiter of truth, but in this case it cuts the other way: Racism is the simpler and blazingly obvious explanation, backed by endless reearch and even the most casual observation. You really hav…

>Racism is the simpler and blazingly obvious explanation, backed by endless reearch and even the most casual observation. Things that are wrong can be obvious to individuals and groups of people. It's certainly not obvious to half the country, and that "endless research" is tainted. How long do you get to keep your job in academia if you point out the primary drivers of black misery in the US (out of wedlock births,…

> How long do you get to keep your job in academia if you point out the primary drivers of black misery in the US (out of wedlock births, drugs, and violence) are self inflicted?

To "point out" something (in academia or elsewhere), that something must be a fact.

Post reply on HN