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An anarchist takes on Big Pharma by teaching patients to make their own meds

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Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#81

That seems both super dangerous, and super awesome. It's not something that we should have to consider. But this is the world we live in, now; legitimate supply lines of life-saving medicine have collapsed for a fair number of people. I understand why people might be troubled by someone actively going out and advocating this as opposed to simply making the information available, but if you're offered medicine with 95…

It's dangerous so far. I'm still all for better information and more diy. People will understand their health and real value of products better.

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#82
post #14

Open Insulin @ Counter Culture Labs: https://experiment.com/projects/open-insulin If you want to look at templates for your own immunotherapy, CRISPR, optogenetic tools etc.: https://serotiny.bio/notes/proteins/ Which, once built can be then be ordered as DNA, shapeways-style using: https://serotiny.bio/notes/pinecone/ The cure for certain kinds of blindness, just approved by the FDA yesterday is, in total, a well-de…

Insulin is something we get for free(as in covered by taxes) over here in at least the UK(where I currently reside) and Sweden, where I am originally from and where I was first diagnosed. I don't know what I would do in a society where the medication I need to live a decent life, let alone survive, would cost me an arm and a leg(appropriate phrase in this case :P) to get.

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#83

Earlier quoted context omitted.

DIY pharmaceuticals sounds dangerous. Sure! So is eating 47 teaspoon of salt, 480 bananas, or drinking 179 expressos [1]. If you happen to be unable to afford so much coffee, just rent a car and smash into a tree at 100 miles per hour. So driving cars is also immensely dangerous! I really hate that nany state we are living in where an average 16 year old is lawfully allowed to drive 5,000 pounds metal machine and kil…

You didn't read the article did you...

Pressure on all sides to maintain HN norms here. "You don't insinuate someone didn't read the article on HN", it's in the guidelines in fact, take a look when you have some free time: https://news.ycombinator.com/newsguidelines.html

Otherwise, I think you'll agree that the threat of PhD level chemists making and giving these drugs out isn't exactly critical.

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#84
post #70

Earlier quoted context omitted.

It's a difficult balance to strike - you want the companies to keep developing drugs, you want onerous regulation on those drugs to make sure they're produced and tested for safety and efficacy. But then you want them to be cheap for patients and insurance companies. The best solution is probably to simply drop patent extensions for these things and allow generic drug manufacturers to do what they do best, but if you…

You want pharma companies to keep doing drug discovery why not ban outright any kind of marketing or advertising for their products? R&D spend across the industry is a fraction of the marketing spend. Think of all the good research that money would fund once pharma companies were freed from spending it on advertising.

Seems like a reasonable idea to me, has anyone attempted to apply some of the less controversial possible solutions here in the US? Like shorter patent lifetimes or a ban or reduction on drug advertising?

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#85
post #6

Honest question: What does it even mean to be an anarchist these days? What is the default "anarchist"? Because Wikipedia isn't really helping.

Just read the Wikipedia for Anarchism[1] and feel that it correctly reflects what it means. The one thing that is striking with the article's definition of anarchist is that it seem to refer to anarcho-capitalism (similar to neoliberalism) more than actual anarchism. It at least paints Laufer as a hypocrite if he were to identify as a "true" anarchist since "Anarchism is usually considered a far-left ideology" (Wiki). See the references to upperclass restaurants and upperclass behaviour such as drinking champagne and eating scallops at pricey restaurants.

A common misinterpretation of the term is believing that anarcho-capitalists and anarchists are the same, they're not. They're more often opposites.

1. https://en.wikipedia.org/wiki/Anarchism

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#86

That seems both super dangerous, and super awesome. It's not something that we should have to consider. But this is the world we live in, now; legitimate supply lines of life-saving medicine have collapsed for a fair number of people. I understand why people might be troubled by someone actively going out and advocating this as opposed to simply making the information available, but if you're offered medicine with 95…

I think a middle ground is sourcing them from private chemists on Alibaba and then getting spectrometry tests done to verify purity

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#87
post #50

Earlier quoted context omitted.

What on earth would give a person that impression?

Well, if you're dealing with someone on equal terms, it sort of forces you to be fair with them. It's only when you have power over someone that the option of being a total bastard is available, IMHO.

I'm pretty sure the comment to which you replied was sarcastic.

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#88

>Then he took another sip from a flute of Taittinger Champagne. What? >Swaggering, charismatic, and complex, Gag me. >Michael Laufer has become a fixture in the growing biohacker movement ever since he published plans last year for a do-it-yourself EpiPencil — a $35 alternative to the pricey EpiPen. That couldn't possibly go wrong, eh? >It’s not clear whether anyone has actually ever used a homemade EpiPencil to prev…

I don't think people understand just how quickly the liver, kidneys, hormone levels, your whole body can be destroyed in the blink of an eye by bad drugs. I would say, I've seen more than a few HN contributors have a less than cautious attitude toward recreational drugs. Drugs, period, without proper knowledge and guidance can do irreparable harm to internal organs and should be treated with proper respect.

Absolutely whilst I was UK renal unit (after a transplant) an older guy was I the next bed as an emergency admission he had been taking zinc tablets in addition to his gp subscribed drugs and his kidneys had totally shut down due to some interactions.

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#89
post #6

Honest question: What does it even mean to be an anarchist these days? What is the default "anarchist"? Because Wikipedia isn't really helping.

I'm not sure if this is where you were going with this, but I think this is a subtle attempt of the author to discredit or impugn the target of the article.

They could have used the term "libertarian" or "protester" or "political objector" but they go all the way to use "anarchist" as if people making medicine to save their own lives or maintain their own autonomy somehow equates to anarchy.

This to me illustrates in a profound way many problems with health care, and to some extent, politics today: people are told by a privileged, protected elite that they are to take responsibility for their own welfare, but then if you actually take that seriously, you're branded an extremist.

The powers that be--drug companies, the FDA, the federal enforcement agencies, the pharmaceutical companies, physicians--are unwilling to open up competition to reduce their monopolies and regulatory capture. They are squeezing the last drop of blood out of people to line their own pockets, and using safety as a mantra to do so.

To me, this dynamic is so obvious and it's unclear to me why this doesn't get more discussion. People don't have any control over their healthcare, no ability to take responsibility for their own health, because they're legally unable to do so, because it's not in the financial interests of powers that be.

People lash out against homeopathy and antivacciners, but the obvious is staring us in the face: when you have no autonomy in the realm of traditional, scientifically-grounded healthcare paradigm, your only option is to reject it in favor of something else.

Same here: if people have no options to go to, they need to do it themselves, or go without medicine. People do this not because they want to, but because their back is against the wall.

The current regulatory regime, all the way from the FDA to current licensing regulations to drug enforcement, is completely and utterly broken. Not at risk of breaking, but a complete failure.

Re: An anarchist takes on Big Pharma by teaching patients to make their own meds

#90

That seems both super dangerous, and super awesome. It's not something that we should have to consider. But this is the world we live in, now; legitimate supply lines of life-saving medicine have collapsed for a fair number of people. I understand why people might be troubled by someone actively going out and advocating this as opposed to simply making the information available, but if you're offered medicine with 95…

The cost of medicine I require to be functional enough to hold down a job has risen so much that the copay is the equivalent of the entire out-of-pocket cost from a few years ago. The medication was discovered in 1969. The application method, which is the shitty excuse for the patents protecting its $2,200/month price tag, was first approved for use by the FDA in 1979. The drug has been for sale in it's current form…

And all the scientists that helped develop it are screaming out "Look what a good person I am."

It's time for the paradigm to shift from ethical consumption to ethical production.

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