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I had an autoimmune disease, then the disease had me (2013)

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Re: I had an autoimmune disease, then the disease had me (2013)

#141
I was diagnosed with Kawasaki Disease at age 2.5, a condition where the immune system attacks the blood vessels. I'm 29 now and recently became very ill; I lived off of less than 500 calories a day, for a month, without losing weight. I began to hallucinate lightning upon seeing light and believing I could read others minds.

I think the Epistein Barr Virus plays a beneficial role in the regulation of autoimmune disorders. Once it sets up shop inside a cell, it activates to produce its viral proteins upon low vitamin B12 or poor mitochondrial function. Its (9) proteins are similar to human inflammatory proteins and confuse T-cells into becoming self-reactive. Which could possibly redirect some autoimmune attack that is causing a decrease in the hosts metabolism into systemic inflamation. (Vitamin B12 is a methyl donor which is used to silence gene promotors, low vitamin B12 could possibly cause the cell be in some uncontrolled state.)

I've found relief for my condition in vitamins B,C,D, Immunoglobulin (sold OTC as colostrum), Excedrin, DMSO, iodine, and marijuana (prepared in a pressure cooker with coconut milk).

My family thought I went insane, all I talked about was DMSO and iodine for several months. This was until the family dog developed a fatty tumor on her leg that cut off its own blood supply and became necrotic. I applied the DMSO/iodine and it was greatly improved within 24 hours and almost completely gone within 5 days.

All I really know about those drugs is DMSO suppresses mitochondrial activity and iodine increases it.

Re: I had an autoimmune disease, then the disease had me (2013)

#143
post #38

Earlier quoted context omitted.

Some good news. There are dozens of new drug approved by FDA addressing the auto immune illness. The problem is they are expensive, thousands of dollars per shot for every couple weeks. Hopefully the competition will drive the cost down.

Do you know the names of any of these?

Sorry for the late reply. Didn't check comments.

Some of the old ones are Humira and Enbrel, which have been out for quite a while (since 2000's). The newer ones are Cosentyx and Taltz, which has a higher cure rate. There are dozen of others that I don't remember. Just search for biologic for autoiummue. More drug companies are in the process of getting more drugs approved.

Re: I had an autoimmune disease, then the disease had me (2013)

#144
post #16

Earlier quoted context omitted.

Chronic fatigue can be caused by undiagnosed organic illnesses. Personal anecdote: I had CFS for several years, and when the diagnosis (an easily treatable genetic condition) was eventually made, and treatment taken, I was better within a few months.

Was the diagnosis hemochromatosis?

Yup, and highly penetrant. Luckily it was caught before the worst consequences manifested themselves.

What made you think of hemochromatosis?

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