I didn't know about the Lewy body disease, so here is a link to the Lewy body dementia association https://www.lbda.org/category/3437/what-is-lbd.htm
The terrorist inside my husband's brain
11–20 of 153 posts
Re: The terrorist inside my husband's brain
#12I attended this years annual American Academy of Neurology meeting in Vancouver and Susan Schneider Williams talked briefly at one of the plenary sessions. Her speech was shorter than what was in this text and yet had a similar message.
It was pleasant overall as it gave the plenary session that day a more humane feel. It is very easy to get wrapped up in the biochemical underpinnings of diseases and all the hype of the clinical trials being presented. We were reminded briefly of how their is a person behind all those symptoms and how the condition can affect the family as well.
Re: The terrorist inside my husband's brain
#13> He never said he had hallucinations. [...] it became evident that most likely he did have hallucinations, but was keeping that to himself.
I do not know if I would tell people about hallucinations. It is bad enough to be out of control of your function, but to have no trust in your experience is terrifying. I wouldn't be surprised if I convinced myself I didn't have them in order to feel in control.
Re: The terrorist inside my husband's brain
#14Earlier quoted context omitted.
This title is more descriptive and the other, older, discussion has no comments. Merge may still be useful to remove other link.
The title here is editorialized, I'd prefer to keep her original title.
I saw the other title and skipped it. I think this one is fine as is.
ETA: I suppose "The terrorist in Robin Williams' brain" would be a fair compromise.
Re: The terrorist inside my husband's brain
#15Taking into account his profession you have to wonder to what extent he was shielding his loved ones from how bad it really was. Poor man.
Re: The terrorist inside my husband's brain
#16There's a second posting of this link on the second page (at the moment) that has the actual article's title - perhaps the discussion can be merged and the title normalized. https://news.ycombinator.com/item?id=12617586
This title is more descriptive and the other, older, discussion has no comments. Merge may still be useful to remove other link.
I'm not disagreeing ... The original title didn't result in a discussion here. I purposely said "normalized" for this reason (maybe the original title with Robin Williams in parenthesis after Husband).
Re: The terrorist inside my husband's brain
#17When I heard Robin had passed I had assumed it was from depression, but what does that even mean? This essay has really challenged me to go deeper on what mental illness is- a disease just like cancer that has causes which can be mechanical.
It's heart-breaking to think of a person with no way out of rapid decline other than to check out early.
Re: The terrorist inside my husband's brain
#18Can mods change this mobile website link to http://neurology.org/content/87/13/1308.full?
Re: The terrorist inside my husband's brain
#19Earlier quoted context omitted.
This title is more descriptive and the other, older, discussion has no comments. Merge may still be useful to remove other link.
The title here is editorialized, I'd prefer to keep her original title.
Editorialized or not, actually mentioning that it's about Robin Williams is helpful. I skipped the other link, and I'm glad I didn't miss the article.
Re: The terrorist inside my husband's brain
#20[deleted]