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A DIY diabetes kit

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Re: A DIY diabetes kit

#51
post #38
post #32

Earlier quoted context omitted.

Sorry to hear about your son! Hopefully your son wasn't in ketoacidosis by the time he was diagnosed, and the initial days were just training and not ICU. My own experience with using the Dexcom G4 CGM with my 1-year old son was extremely negative. First, it was terrible to insert the sensor -- it is a clunky mechanism which would sometimes fail and leave you with a worthless sensor, and at best would leave your chil…

Thanks! Yes he was DKA on diagnosis. It took them 4 days to figure that out too. For us the CGM would be about getting rid of and/or minimizing the overnight blood checks. There's nothing more horrifying then sleeping through an alarm now. In fact, that just happened to me. Fell asleep on the couch, woke up two hours past his check, saying "oh fuck" a lot as I run around the house like a headless chicken. The only CG…

thru routine should be able to get sugar stable over night.

i imagine you are trying to keep your child textbook perfect as far as glucose levels. this is close to impossible for a child this young. in general you can keep a diabetic around 100-150 as long as they are not above 150 for extended periods of time it avoids the negative issues associated with diabetes. always safer to run a little high verse low. you could turn down the insulin pump at night until child around 125 and chance of low sugar would decrease. when child gets older can strive for "perfect" control. if diabetic 150 or below and 180 or below at meals most of the long term negative health issues are avoided. 75-95 and 120 meals is the text book numbers but difficult to maintain. good luck when he gets older dealing with the candy and soda issue. one of the very difficult times with a type 1 diabetic explaining and convincing the child they cant have candy like the other kids. also when he gets older avoid all the diet foods and drinks, esp. nutrasweet. stevia might be ok we dont know yet for sure. nutrasweet is bad bad bad for everyone especially diabetics.

Re: A DIY diabetes kit

#52
post #38
post #32

Earlier quoted context omitted.

Sorry to hear about your son! Hopefully your son wasn't in ketoacidosis by the time he was diagnosed, and the initial days were just training and not ICU. My own experience with using the Dexcom G4 CGM with my 1-year old son was extremely negative. First, it was terrible to insert the sensor -- it is a clunky mechanism which would sometimes fail and leave you with a worthless sensor, and at best would leave your chil…

Thanks! Yes he was DKA on diagnosis. It took them 4 days to figure that out too. For us the CGM would be about getting rid of and/or minimizing the overnight blood checks. There's nothing more horrifying then sleeping through an alarm now. In fact, that just happened to me. Fell asleep on the couch, woke up two hours past his check, saying "oh fuck" a lot as I run around the house like a headless chicken. The only CG…

I remember well that phase. As you get more comfortable, with or without a CGM you'll start reasonably skipping some of those midnight and 2am checks. You can try dialing back the night-time basal to the point where blood sugar should be naturally somewhat rising overnight. That way your last check of the night is 3 hours after the last bolus, and in theory there should be no more surprises. Unfortunately it doesn't always work out that way, but it's a strategy at least.

The biggest factor with persistent overnight checks is how does your son respond to lows? They will happen, and when they do, does he wake up crying? It's not something you rely on, so much as... I guess, factor into the risk analysis. I know how physically and mentally demanding it is to be up checking every 2 hours through the night, every night. Ultimately you'll find ways/strategies that will work for you to moderate that a bit, and the day will come where you can get a good night's sleep without feeling like you are taking a risk.

You know what I want.... an integrated lancet/meter/strip with just the right amount of light to make checking a sleeping baby in the middle of the night less of a balancing act... Balance iPhone against pillow to illuminate finger, position lancet and fire, squeeze the little finger to see if you aimed right, try to catch the blood drop on the strip, and try to get it all done before the meter times out and turns off. Man, the number of times I've gotten the blood to the strip just as the meter turned off (which sends me back out of the room to fetch another strip and start the whole process over again...)!!

Wish you best of luck, and it does get (somewhat) easier over time!

Re: A DIY diabetes kit

#53
post #32

Earlier quoted context omitted.

Sorry to hear about your son! Hopefully your son wasn't in ketoacidosis by the time he was diagnosed, and the initial days were just training and not ICU. My own experience with using the Dexcom G4 CGM with my 1-year old son was extremely negative. First, it was terrible to insert the sensor -- it is a clunky mechanism which would sometimes fail and leave you with a worthless sensor, and at best would leave your chil…

you mention some good issues and concerns. technology is very helpful but for the most part it can not perform any functions 100%. step one for type one diabetic is routine and diet. yes this is boring but very important. a good solid start in diabetic training would take 100 hours. that is to start and with a good trainer and a good patient. as a pharmacist i like to stay with the old technology for now. insulin pum…

i agree, you are doing the impossible.

thank you for the feed back, its how i learn.

yes, 2/3 of that post is for the "average" diabetic that maybe be reading this thread, you are are already an advanced diabetic. just keeping the child alive means you are very vigilant. i have not treated a diabetic under 5 years old. i could learn more from you than you can learn from me.

so only advice i have that may be helpful for you is trust and expand on your expertise. learn the glycemic index. others md and me will be wrong in dosing "your" child. i accept that the patient or parent knows their body and listen accordingly. many medical people will not! when you know your right trust your expertise. and finally, yes the 2 issues you brought up are difficult and unexplained. fever or illness can cause glucose to be erratic. and the low bedtime could be from residual insulin in the tissue. this still wouldnt explain all of it but some of the drop could be from insulin in the tissue, can take 1-3 hours to clear. from the numbers you gave your child has some what erratic glucose numbers. the meal issue is very difficult, maybe you can use the pump just for basil and dose the the child after they eat with humalog. dosing a child before meals is impossible and humalog only takes about 15min.

my post is mainly about how the new technology has limits and using individual dose at or after meals for some diabetics will help.

in a more extreme environment ie if glucose and eating are extremely variable you could wait 30-60 min after meal and dose according to glucose reading this is usually easier than dosing ahead counting carbs etc. this is not a desirable long term dosing method. i would only use this when "forced" to by very erratic eating and glucose readings.

Re: A DIY diabetes kit

#54
post #42
post #25

Open question - What is the actual cost of living with Diabetes type 1 in the US with a good health insurance? The reason I am asking is I have a 10-year old son with type 1 and we are thinking of moving to US (from Sweden) and would like to estimate the actual cost of living with diabetes in the US in order to make a real life calculation of what it would actually cost us per month. Any tips would be appreciated - i…

There isn't really a simple answer to the question. The insurance premiums themselves will depend on your job, the employee cost share (the percentage of the premiums that you pay with before tax dollars). Or if you are buying your own plan through the ACA, the cost will depend primarily on your family income. The unsubsidized cost depends on zip code, sex, age, and whether you smoke tobacco, but assume $300 per mont…

I think it is really interesting how I, in the netherlands, have an insurance of 80 euros per month with 700 euros out-of-pocket (yes, 700, not 7000).

Re: A DIY diabetes kit

#55
Type 1 diabetic here: diagnosed at age 14, almost 22 now.

I use xdrip with a CGM and I have to say, it's been the best thing for my care (after insulin, lol). The main challenge of diabetes is keeping your blood sugar in range, not too high, and not too low, and getting it back in range if it deviates too far. Blood sugars dropping too low during exercise is a major concern as it can result in seizures and worse.

Thanks to the combination of my dexcom G4 + Android + Xdrip + smartwatch, I can always get a pretty good estimate of where my glucose is, and thus minimize the risks and harm from my (chronic, uncurable) condition. Definitely a great case for open source development for propreitary hardware. The CGM has helped me even more than my $10,000 insulin pump :X

Re: A DIY diabetes kit

#57
post #6
post #5

My son was just recently diagnosed type 1 about 4 months ago (exactly on his 1st birthday, shitty birthday). Unfortunately, we live in Vietnam where access to even basics like pumps, let alone CGM, is non-existant, or incredibly hard. We had to fly to Singapore to get a pump, and then fly back every three months to get new supplies. CGM is a pipe dream. One thing this article doesn't touch on, which is unfortunate, i…

I still don't understand why insulin is so regulated and expensive in US. I feel sorry for people with Type 1, Type 2 who many a times have to skip their insulin dose. I think it should be freely available over the counter and there should be some cheap availability for such a common drug.

Thank you... Insulin is very expensive: more than my rent, just to stay alive, even with insurance :(

Re: A DIY diabetes kit

#58
post #17

Earlier quoted context omitted.

Also not an MD (yet) so grain of salt, but from my experience: Yeah, D50 is a more direct way to get glucose into the blood stream. It does take a lot more time to mobilize liver stores of glycogen. But using glycogen stores isn't necessarily bad for you metabolically. Glucagon is used by your body everyday during periods of fasting between meals to maintain a minimum blood sugar. Your glycogen stores can supply enou…

I've had type 1 for nearly 10 years, after 4-5 years I think my body stopped producing glycogen. That's why I am super-alert for lows. The constant fear of trying to catch if you're low is exhausting. Especially when a diabetic like me goes through sad phases, can't get enough sleep etc. The main symptom of being low is dizziness, and if you're blood sugar levels are not in control you always feel that diziness. I've…

I think that my body stopped producing glycogen too. I'm fairly thin and cardio tends to send me into a drop... CGMs are definitely worth it, it's unfortunate they're so hard to get in Turkey.

I've found the best ways to stabilize my glucose are, well, eating lots of protein and fats, eating smaller carb portions in more meals, and smoking cannabis.

22 mg/dl is really scary. The lowest I've found myself at was 30. Talk about scary! Is glycogen cheaply available in Turkey? It's really damn expensive here.

Re: A DIY diabetes kit

#59
post #9
post #6

Earlier quoted context omitted.

I still don't understand why insulin is so regulated and expensive in US. I feel sorry for people with Type 1, Type 2 who many a times have to skip their insulin dose. I think it should be freely available over the counter and there should be some cheap availability for such a common drug.

It seems relatively defendable - it is far, far more dangerous than many prescription only drugs (eg: birth control), and most people will not be able to work out how much they need without seeing a doctor first.

After you've been a diabetic for a few months, you more or less know how to handle it, and you either will go to your doctor with your problems, or you won't. The fact that people with diabetes will be diabetic for the REST OF THEIR LIVES, taken with the fact that most major insurance companies require 4 or more specialist visits a year to continue covering their life support, just makes the prescription system seem like a racket.

Besides, insulin is available OTC anyway (in the US). It's just that prescriptions make it cheaper/free.

Re: A DIY diabetes kit

#60
post #15

Earlier quoted context omitted.

It's not. I'm not diabetic, but there's some interesting research on intranasal insulin and cognition, so I thought I might try it out. At my local east coast Walmart, I bought on March 13th 2016 a 10ml vial of Novolin R insulin for $24.88. (No prescription required.)

> intranasal insulin and cognition Please elaborate...

"Effect of intranasal insulin on cognitive function: a systematic review", Shemesh et al 2012 http://press.endocrine.org/doi/full/10.1210/jc.2011-1802 https://www.researchgate.net/profile/Assaf_Rudich/publicatio...
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