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Slipping Away: Jo Aubin Has Alzheimer's. He's 38

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Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#11
post #2

I'm only in my 20's- but reading through this 'early indicator' list [1] has me somewhat concerned about myself. But I don't know how much of that is it just being late and me being convinced I have every neurological disorder I happen to read about. [1] http://www.alz.org/alzheimers_disease_10_signs_of_alzheimers...

The peanut butter test is interesting. For sufferers of early onset Alzheimer's, the range at which you can detect a smell is different between your left and right nostrils. They used Peanut Butter in this test done by the University of Florida.

https://en.wikipedia.org/wiki/Peanut_butter_test

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#12
post #8
post #3

Earlier quoted context omitted.

Oh geez. Don't worry about it. Classic "webmd hypochondria."

Shouldn't really assume that. I mean, yes, it's unlikely, but given that most of the research is around prevention of damage, surely it's better to get tested early if you even remotely suspect there is a chance of it being Alzheimer's.

Yes, actually one should assume that; not doing so is irrational. There are many other diseases that one might have without even knowing they exist. It would be extremely foolhardy to get tested for them if/when you become aware of them.

"given that most of the research is around prevention of damage"

Given that aren't any preventative treatments, you're barking up the wrong tree.

"surely it's better to get tested early if you even remotely suspect there is a chance of it being Alzheimer's."

No, it's surely not.

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#13
post #8
post #3

Earlier quoted context omitted.

Oh geez. Don't worry about it. Classic "webmd hypochondria."

Shouldn't really assume that. I mean, yes, it's unlikely, but given that most of the research is around prevention of damage, surely it's better to get tested early if you even remotely suspect there is a chance of it being Alzheimer's.

There is no real test for alzheimer yet. It takes a while to establish a diagnosis. The closest thing that comes to qn actual test is the recently approved Amyvid, but then it simply shows the accumulation of Tau proteins and is not 100 percent predictive of Alzheimer.

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#14
A friend of mine suffering from Huntington's disease died last year of complications. I always think of Alzheimer's similarly to Huntington's, although I think the prognosis for Alzheimer's has a shorter average life span from diagnosis.

It's unspeakably distressing seeing people you know degenerate in seemingly random ways, knowing full well there's literally no chance of improvement, just temporary pauses in the inevitable.

My friend was quite open when speaking privately in the early days and said things like "It's OK my mind is still there" when you saw him shaking or unable to walk properly.

Later though his mental capacity deteriorated and one time when I asked whether he was aware of his diminishing function he said "No". He understood the question and for me it was a minor consolation, as heartbreaking as it seems, for him to be unaware of that. To think that you are aware of your situation when your body an mind are basically failing would be that much more horrific. Still it's small consolation. His wife also suffered tremendously, as strong and stoic as she is. Living with these diseases takes a toll on everyone around you too.

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#15
My grandmom probably had Alzheimer's because she would always forget what my name was (she'd think she is talking to my little brother) or she would ask the same questions every 5/10 minutes.

I can see slight similarities with my dad now. He might repeat the same question within 5 minutes-- this happens when he's really tired.

I remember there was a discussion here about preventative drugs? Anyone one had experience with them?

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#16

My grandmom probably had Alzheimer's because she would always forget what my name was (she'd think she is talking to my little brother) or she would ask the same questions every 5/10 minutes. I can see slight similarities with my dad now. He might repeat the same question within 5 minutes-- this happens when he's really tired. I remember there was a discussion here about preventative drugs? Anyone one had experience…

I could be totally wrong but, I'm pretty sure that that's just a normal aspect of aging. Every single person I know has experienced some level of cognitive decline with age. The name thing is especially common, I find. So I wouldn't go around thinking you have Alzheimers in your family unless you have more reason to think it.

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#17
post #2

I'm only in my 20's- but reading through this 'early indicator' list [1] has me somewhat concerned about myself. But I don't know how much of that is it just being late and me being convinced I have every neurological disorder I happen to read about. [1] http://www.alz.org/alzheimers_disease_10_signs_of_alzheimers...

Early onset Alzheimer's is extremely rare. Even if you perfectly showed all the symptoms on that list it's still unlikely you have Alzheimer's. Read up on Bayes' theorem ;)

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#19

My grandmom probably had Alzheimer's because she would always forget what my name was (she'd think she is talking to my little brother) or she would ask the same questions every 5/10 minutes. I can see slight similarities with my dad now. He might repeat the same question within 5 minutes-- this happens when he's really tired. I remember there was a discussion here about preventative drugs? Anyone one had experience…

> He might repeat the same question within 5 minutes-- this happens when he's really tired.

This could be perfectly normal age related deterioration: https://en.wikipedia.org/wiki/Memory_and_aging

There are things you can do to reduce the effect, but it will affect most of us to a certain extent eventually if we live long enough. Heck, I show such symptoms when tired at 37, have done for years, and suspect everyone does too. Also, my late grandmother had problems with names (she'd sometimes run through a couple before getting the right one, even flipping genders part way through the list) but otherwise seemed to have a fairly complete and pretty well polished set of marbles until the end.

Of course if you have any concern you should broach the subject of consulting a relevant doctor. It might be nothing (well, nothing unusual) but it is worth being slightly paranoid with such matters in case it is something significant for which there are treatments to delay, mitigate, or possibly block, more serious ramifications.

One key seems to be remaining active, both mentally and physically. Staying mentally active is a no brainer here (sorry...), and recent studies seem to indicate that the old wisdom of staying active prolongs not just physical fitness but mental awareness and other abilities too (https://www.newscientist.com/article/dn28001-why-choosing-th...).

Re: Slipping Away: Jo Aubin Has Alzheimer's. He's 38

#20
post #8
post #3

Earlier quoted context omitted.

Oh geez. Don't worry about it. Classic "webmd hypochondria."

Shouldn't really assume that. I mean, yes, it's unlikely, but given that most of the research is around prevention of damage, surely it's better to get tested early if you even remotely suspect there is a chance of it being Alzheimer's.

The incidence of dementia for those aged 30-64 is about 54 per 100000. If you have a test that is 90% accurate and someone tests positive, according to Bayes you have 0.5% chance of actually having it.

Testing like that seems pointless to me.

Working: (0.9 * 0.00054) / (0.9 * 0.00054 + 0.1 * 0.99946)

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