I was recently diagnosed with anti-NMDA receptor encephalitis
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Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#2Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#3Best of luck mate. Most of us take our health for granted.
My favorite side effect is that I now love all foods. Prior to this, I was a rather picky eater. Now I love everything!
Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#4Best of luck to you, and get well. I’m glad it didn’t get even worse before it was treated.
Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#5Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#6Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#7Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#8I can't begin to imagine the pain and stress caused by those symptoms, but I am so very happy to hear the prognosis is quite good. A linked scientific article makes the case that this is a very new diagnosis, and increased awareness might help a lot of people, so if you are reading this burntsushi, thanks for being open about something deeply personal, I hope I would have had the courage to do so myself.
First and foremost is that this is a disease of chaos that is prone to misdiagnosis. I want to shout this from the roof tops to spread awareness. I don't have a ton of reach, but I have some, and I want to use it to amplify things like this.
Second is that I'm somewhat naturally open about these sorts of things.
Third is I feel a responsibility to my projects and users.
Fourthly is that it's just practically useful to have a link to send to someone when I reference this time period in my life. :-)
> very new diagnosis
Yes! Discovered in 2007. Wild.
> so if you are reading this burntsushi, thanks for being open about something deeply personal, I hope I would have had the courage to do so myself.
<3 <3 <3
Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#9Best of luck mate. Most of us take our health for granted.
Thank you. It's been a trip. The worst thing that has happened, but also the best. It has definitely given me a new perspective on life, that's for sure. My favorite side effect is that I now love all foods. Prior to this, I was a rather picky eater. Now I love everything!
I feel like there's a burntsushi joke hiding in there somewhere.
All the best Andrew.
Re: I was recently diagnosed with anti-NMDA receptor encephalitis
#10I wish you the best and I'm sure us Rustaceans are happy to help with anything