I was part of a human subject research study without my consent
christine.website
I was part of a human subject research study without my consent
1–10 of 382 posts
Re: I was part of a human subject research study without my consent
#2"In order to be considered a covered business, the organization needs to have annual gross revenues in excess of twenty-five million, possess the personal information of 50,000 consumers, or derive 50 percent or more of its annual revenue from selling consumers' personal information."
Re: I was part of a human subject research study without my consent
#3The Institutional Review Board doesn't seem to be much of an "ethical board" given they don't consider the stress this causes the human side of the website operators. How did they conclude this doesn't count as "human subjects research" given the expectation is to measure a human response to an email (framed as from a person)?
Re: I was part of a human subject research study without my consent
#4Yeah this is pretty bad. Not really sure what to say beyond that. I'm extremely confused how anyone thought this was OK.
Re: I was part of a human subject research study without my consent
#5Another subject, posted yesterday: https://news.ycombinator.com/item?id=29599553
Re: I was part of a human subject research study without my consent
#6How did anybody think it was appropriate to distress random human subjects by sending what appears at first glance to be a thinly veiled legal threat?
Re: I was part of a human subject research study without my consent
#7The Institutional Review Board doesn't seem to be much of an "ethical board" given they don't consider the stress this causes the human side of the website operators. How did they conclude this doesn't count as "human subjects research" given the expectation is to measure a human response to an email (framed as from a person)?
In particular, to an email which:
1. does not disclose that this is a research survey;
2. does not inform the recipient that they can decline to participate without any adverse consequence (as they state in their study FAQ), instead doing entirely the opposite - ending the mail with an assertion (untrue for most recipients) that they have a legal duty to respond;
3. lies about the origin of the email, inventing a fake persona;
4. lies about what the responses will be used for.
Re: I was part of a human subject research study without my consent
#8> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia.
If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously?
I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
Re: I was part of a human subject research study without my consent
#9> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia. If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously? I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
I was contacted by my system administrator about this email, even though we chat roughly once a year; we get a lot of spam too but a legal threat is something you need to keep an eye on.
Re: I was part of a human subject research study without my consent
#10> My name is Maya Mishina, and I am a resident of Novosibirsk, Russia. If i received such an email, I would mark it as spam and move on with my life. Why did this blogger take it seriously? Does she take other forms of spam so seriously? I do feel for her stress and anxiety, but I also have to question her mental ability to filter noise. Life must be quite stressful for her overall.
Fully agreed. I'm shocked she gave a random unsolicited emailer the time of day. Most problems are ones we create for ourselves.
Responding to spam and then feeling like you've been the victim of some injustice that the spam didn't say "hey, I'm not really spam, I'm grad-student flavored spam" is quite a take.
Here's a tip for anyone not running a business: If your response is legally required, it'll come in the physical mail. Don't take legal advice from spam, me, or your sysadmin.