Isn't this one of the stupidest versions of capitalism?
How to Delete Your 23andMe Data
91–100 of 125 posts
Re: How to Delete Your 23andMe Data
#92To be honest, this is more like "requesting the data to be deleted". There's nothing that guarantees that the personal information will be physically wiped out of the hard drives used to store them.
But it creates legal grounds for lawsuits if they don't.
Yeah, and if you spend all the effort and end up winning your lawsuit, you can get a fresh new claim against an already bankrupt entity.
Re: How to Delete Your 23andMe Data
#93Earlier quoted context omitted.
> What's to stop someone within an advertisement company from reaching out to someone in healthcare IT, and offering a large amount of money for this information? Trying to link this physical data to an online presence is probably not worth the risk and amount of money and time (at this current point in time). HIPAA works because it comes with personal liability . Anyone who sells/leaks/loses HIPAA data gets hit with…
HIPAA isn’t really a personal privacy regulation at all ... Like other privacy regulation, it’s there to protect the industry and their business/commercial interests. Barriers to access mean less controversy, fewer lawsuits, fewer investigative news stories, fewer insurance disputes. I’d say it’s also designed to reduce contamination or adulteration of data: if every facility needs to do new testing and new evaluatio…
> HIPAA isn’t really a personal privacy regulation at all ...
HIPAA as a whole is not.
The HIPAA Privacy and Security Rules, which are enforced by a different entity than the rest of HIPAA, are (the bulk of HIPAA is insurance administration rules enforced by the Centers for Medicare and Medicaid Services; the Privacy and Security Rules are personal privacy and information security rules enforced by the DHHS Office of Civil Rights.)
Re: How to Delete Your 23andMe Data
#94[deleted]
Re: How to Delete Your 23andMe Data
#95Is anyone having trouble downloading their data? Some data, such as "Raw Data", "Imputed Genotype Data R6", and "Phased Genotype Data" need to be requested, but I haven't heard back from them yet. Would like to download everything first before requesting deletion.
I requested my data three days ago and got "Raw Data" and "Phased [...]" early today. Still waiting for the last set.
Re: How to Delete Your 23andMe Data
#96If 23andMe is bounded by the legal system - why shouldn't we trust them the same way we trust Dropbox not to sell our personal files?
No one has been able to explain this to me.
Re: How to Delete Your 23andMe Data
#97If 23andMe is bounded by the legal system - why shouldn't we trust them the same way we trust Dropbox not to sell our personal files? No one has been able to explain this to me.
Have you seen the legal system lately?
Re: How to Delete Your 23andMe Data
#98If 23andMe is bounded by the legal system - why shouldn't we trust them the same way we trust Dropbox not to sell our personal files? No one has been able to explain this to me.
Have you seen the legal system lately?
sure - so this isn't a unique complaint with 23andMe then? We should be deleting our data from Dropbox, Google, etc...?
Re: How to Delete Your 23andMe Data
#99Earlier quoted context omitted.
But it creates legal grounds for lawsuits if they don't.
Sure, you can sue the hollowed out shell of a bankrupt limited liability corporation that will soon have no assets for a court to sieze for whatever paltry damages a court finds.
You might get half a office chair , for a lifetime of disadvantages .
Re: How to Delete Your 23andMe Data
#100Earlier quoted context omitted.
Companies do illegal things all the time . And let me flip this situation: are there any laws that prevent advertisers from looking at genetic data to target cohorts? If I were an unethical advertiser, I'd want to advertise to customers with less risk aversion, higher neuroticism, higher sense of FOMO. You could do some truly sickening stuff. Target higher mortality groups, certain personality types, cross reference…
I am trying to think of how genotypes would be used for advertising. 1. Ancestry, but that is about as reliable as a photo and puts a company at far greater legal risk. 2. Actionable SNPs associated with a metabolic oddities. Hmm, that might work for a small number of cases but would probably produce huge backlash. 3. We know who your daddy is. Oh great, thanks so much. I hate you. Any advertiser going these routes w…
Don't think your reply is arguing in good faith (unless parent was edited) when you basically ignored the implied examples of that comment and made 3 strawmen points