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When my wife developed Alzheimer’s, the story of our marriage kept us connected

thewalrus.ca

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Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#91

Earlier quoted context omitted.

My mother went through the same, and my feelings echo your own. There is absolutely nothing good about losing a loved one to dementia. It is constant pain, for years. I still remember the first time my Mom flinched in fear as I went to give her a hug, as she didn't recognize me. Her greatest fear was losing her mind, and it happened, and there was nothing any of us could do about it. It was a mercy when her body pass…

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[deleted]

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#92
post #76

Earlier quoted context omitted.

I lost a loved one to dementia, and articles like this one make me want to scream. Every experience is different. But most people think "oh, they just start getting forgetful", but as the mind decays, everything, everything , goes. Imagine your parent screaming at you in rage because they are hungry, but they've also decided that they hate every food you put in front of them, and they have refused to eat for two days…

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Taking care of a baby is not like this.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#93

It's a lovely story, but quite honestly, Alzheimer's/dementia is a shitshow. I wouldn't wish it on my worst enemy and there are many people I despise. There is nothing crueler than dementia. My mom is suffering through dementia right now. We did something similar. We made photo albums, and went through them every day, until my mom stopped responding to them. Within a couple of years, she forgot who we were, or she wo…

My mother went through the same, and my feelings echo your own. There is absolutely nothing good about losing a loved one to dementia. It is constant pain, for years. I still remember the first time my Mom flinched in fear as I went to give her a hug, as she didn't recognize me. Her greatest fear was losing her mind, and it happened, and there was nothing any of us could do about it. It was a mercy when her body pass…

Same with my dad after a hemorrhagic stroke and he was on warfarin blood thinners. It basically felt like dementia, couldn’t remember a thing and couldn’t use half his body, confined to a wheelchair. I still mourn the loss of my former dad who is a shell of a once great man.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#94

It's a lovely story, but quite honestly, Alzheimer's/dementia is a shitshow. I wouldn't wish it on my worst enemy and there are many people I despise. There is nothing crueler than dementia. My mom is suffering through dementia right now. We did something similar. We made photo albums, and went through them every day, until my mom stopped responding to them. Within a couple of years, she forgot who we were, or she wo…

Irrespective of whether you think the most of the years of her being in a nursing home are a waste, the entirety of it is a touching story to me. Society has prescribed keeping her alive by tending to the extensive requirements in order for her to stay alive (such as helping her swallow and sit up and get around), and the author and his daughter are making the best of it. Reading the book and telling his story are not keeping her alive and making her suffer longer, being in the nursing home likely is. So IMO it can only help, not hurt. He isn't putting forth the argument that his love poem practice has helped her up to this day, but that it at least helped her early on in the progression of Alzheimer's, and I think it did help her early on in Alzheimer's because I think she still had capacity to experience life for some time after her diagnosis. I also think it is a good father-daughter experience, given the circumstances. I think he leaves it an open question as to whether it was helping her in the later stages of it, or if Alzheimer's is nothing but an utter shitshow at this point, so while I see how the article pours salt on wounds, I'm not going to fault the author for it.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#95
post #81

Earlier quoted context omitted.

Osho is just relating a fable here, but I love that guy's way with words. No surprise that his cult community (Rajneeshpuram) was a massive (albeit short-lived) success in my home state, he's just so fascinating to listen to. If anyone is curious, there are a lot of videos of him on Youtube. From Wiki: > Ultimately though, as an explicitly "self-parodying" guru, Rajneesh even deconstructed his own authority, declarin…

This Osho really sounded like an idiot guru every time I tried to listen to him.

No post body was provided.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#96
post #75

Situations like this are why I'm afraid to get married. Maybe I'm a coward but I'd like to avoid strife like this if possible.

but then, you would never have had a chance to experience love. that, is, something worth experiencing, even once, even just for a moment.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#98
post #76

Earlier quoted context omitted.

I lost a loved one to dementia, and articles like this one make me want to scream. Every experience is different. But most people think "oh, they just start getting forgetful", but as the mind decays, everything, everything , goes. Imagine your parent screaming at you in rage because they are hungry, but they've also decided that they hate every food you put in front of them, and they have refused to eat for two days…

Hopping I won't offend anyone here. There's a history of alzheimer in my family and I actually know a number of families that had to deal with the third generation going cuckoo. I've always thought that, if it would happen to me, or to one of my parents, perhaps the only sane solution would be to kill them. I'm wondering if I'm the only one thinking this. It seems like most of today's culture is about keeping people…

I think that a lot of people think this in theory, but in practice the "boiling frog" phenomenon prevents them from following through.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#99
post #82
post #74

Earlier quoted context omitted.

The Christian theologian Stanley Hauerwas put it this way: When couples come to ministers to talk about their marriage ceremonies, ministers think it’s interesting to ask if they love one another. What a stupid question! How would they know? A Christian marriage isn’t about whether you’re in love. Christian marriage is giving you the practice of fidelity over a lifetime in which you can look back upon the marriage an…

I had a girlfriend in high school/college for four years; I’ve been with my wife for over 15. Looking back on my high school relationship I can say I was in love, if I know anything about love from my marriage. The same feelings of interdependency and shared identity. It’s popular to look at young people and think they can’t know love but my experience says that’s not true.

I had a friend in high school whose romantic feelings were just absurdly powerful. Romeo never pined for Juliet the way my buddy Michael felt for his girlfriend. But at the risk of sounding trite, hormones =/= sacrifice, which is the real, meaningful expression of love. I don't want to lessen the importance of your earlier relationship, but puppy dog love is the easiest and most short-lived of affections.

Re: When my wife developed Alzheimer’s, the story of our marriage kept us connected

#100
post #79

I am recently divorced from my wife of 30 years. I have a girlfriend now, but I am not sure if I'll have sufficient time to develop such stories. It's something that I think about.

My sympathies. My wife of 11 years left me this year (I still don't know why). I think about the same thing... I still (probably) have time to find out what it's like to be married 30 years, but I (probably) no longer have the time to experience a 60-year marriage. And that was, honestly, the only serious goal I had for my life, so that sucks. But, you know, once upon a time a girlfriend of 7 years left me, and I was…

My wife also left without reason. But if you think about it, it's probably common that this happens without any one standout reason.

My point is that I'll never develop the depth of stories that I had with my ex-wife. Fortunately she and I are still friends (strange after trying to destroy each other for several years), so we get to keep our stories alive.

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