I’m kind of torn on this. From one side, I can’t seem to trust doctors any more. I recently had a tooth removed (by the advice of two different doctors), in a claim that it will resolve my pain, which it did not, and now 3 different doctors don’t know what’s causing my pain. Most doctor advice boil down to drink some water and take a painkiller, while glancing for 15 seconds at my medical history before they dedicate…
As an aside, I'm very sorry for what you're going through. Empathy is easy when you've had something similar! I'll say that in my case removing a tooth that was impinging on a nerve did have substantial benfits that only became clear months down the line. I'm not saying that will happen for you, but a bit of irrational optimism seems to be an empirically useful policy.