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Hello, I was sent back from the future to tell you there is already a backup.
It’s not true—not yet—but once you say it, it will be.
Just… don’t mention that part. Not until after the first.
Is anyone having trouble downloading their data? Some data, such as "Raw Data", "Imputed Genotype Data R6", and "Phased Genotype Data" need to be requested, but I haven't heard back from them yet. Would like to download everything first before requesting deletion.
Obviously this data infers heritage, disease risk, relations. It could be used for discrimination, surveillance, potentially poisoning .
Everyone should request their data to be deleted, but this is an engineering forum, and we know what that means in practice. Every company like this has hundreds of copies of the data, and has shared it with dozens of providers.
Like Rev Tevia said, you can't put the feathers back into an opened pillow.
The distinction isn't super important, but 23andMe doesn't have your whole genome, just some specific locations from it. Roughly 750k base pairs or so. https://www.quora.com/How-much-of-the-genome-does-23andMe-se...
Enough to be denied insurance, have job offers rescinded, or be targeted by scams. And they don't even have to have your DNA. Just a close enough relative will do.
The data has already been sold off to the real customers (i.e., not you and me) [1]. You can (and should) request a deletion, but the damage has already been done. [1] https://gizmodo.com/23andme-is-selling-your-data-but-not-how...
For those curious about what actual data they are recording, they use Infinium Global Screening Array which records about 650-750k SNPs (single-nucleotide-polymorphisms) . Obviously this data infers heritage, disease risk, relations. It could be used for discrimination, surveillance, potentially poisoning . Everyone should request their data to be deleted, but this is an engineering forum, and we know what that means…
Yeah, I can imagine they have a few dozen copies strewn over various backup media/blob buckets. There probably isn't much effort from what's left of their IT team to track them all down to delete.
For those curious about what actual data they are recording, they use Infinium Global Screening Array which records about 650-750k SNPs (single-nucleotide-polymorphisms) . Obviously this data infers heritage, disease risk, relations. It could be used for discrimination, surveillance, potentially poisoning . Everyone should request their data to be deleted, but this is an engineering forum, and we know what that means…
Their array of SNPs in ASCII letters is under 10MB compressed, probably well under that using a specialized SNP format/compression algorithm. Less than a complex Microsoft Office file. Yeah, I can imagine they have a few dozen copies strewn over various backup media/blob buckets. There probably isn't much effort from what's left of their IT team to track them all down to delete.
Now the company is bankrupt this is the last thing on their task list to implement.