81–90 of 90 posts
Pepzin GI (Zinc-L-Carnosine)- 1 capsule 2x per day 75mg Quercetin- 1 cap 2x per day
If you decide to try this make sure you go with good supplier. E.g. thorne or pure encapsulations
Earlier quoted context omitted.
I've had headache-free ocular migraines since I was about 13 or 14. Your typical aura/flashing/light sensitivity. They always are proceeded by some flash and then I know I have maybe 15 minutes before I'm in the middle of it. Anyway, two things that I find helps. The easiest one is supplementing magnesium -- if I ever run out and forget to order more for a couple weeks I'll inevitably have a migraine. The other one i…
I found my ocular migraines were triggered by my looking out the window in the morning while I brushed my teeth. On sunny days it was a lot of brightness to take in. Since I stopped doing that I haven’t had a single one.
So my kid has ARFID. I am not a doctor, but what I have learned is that eventually, anything that causes nausea associated with eating can progress into ARFID, even if the original underlying cause resolves. ARFID is technically an eating disorder, like anorexia, but it isn't related to poor body image; it is, basically, a food aversion to, well, food. All food, or nearly all. This is what happened to my kid; there’s…
As he's matured, the reactions are less intense, and with a lot of therapy sessions, most recently with a dietician who also has ARFID, we've made real progress. In our case, that means he's (enthusiastically!) eating cheese pizza, scrambled eggs, and chocolate (but not white) milk, along with the bacon which has been his main protein source since age 3 or so.
Not sure what we'll do when he heads off to college in 2.5 years.
Anyway, if you want to compare notes with another ARFID parent, my email's in my profile.
Earlier quoted context omitted.
> I have a pet hypothesis that a non-trivial chunk of the "problems" discovered with medical testing are not actually problems but just expressions of the surprisingly wide variation in how humans work. Maybe this was just a thing that happened and not a condition that auto-resolved? The reason this is a real condition is that it can cause extreme pain and nausea. Food sticking around in your body much longer than it…
I'm not saying real problems can't present with these test results! Clearly they can. I'm saying maybe these test results can happen even if an underlying problem is not there. Maybe 5 % of days in a normal person's life would show slow food movement with no further adverse effect. That does not invalidate the pain and suffering in those who do suffer from it!
I had GI surgery, and afterwards, I had an "Ileus" (intestines don't move food through), which is apparently a low probability side effect. I was utterly miserable for a week, with horrible nausea and vomiting. Even water. If my wife had not made me go back to the hospital, I'd probably have died from dehydration. I cannot imagine living with nausea for months or years.
I had ridiculous nausea and other weird body issues appear out of the blue around 2022. While I never puked, I got nauseated from even brushing my teeth. I'd have to pause a few times to complete brushing. I suddenly got heartburn, I could only hobble around like an old man. I couldn't tolerate a single car ride, even just getting into a car was too much. After a year, I could at least get in a car and my limbs would all go numb. I could only eat small amounts. Zero tolerance for caffeine. Chocolate sprung up heart burn. Tested for H Pylori, negative.
It was over two years before I could take car rides without absolutely dying. While much better now, I still get abnormally car sick, bouts of relatively mild nausea, and haven't managed a significant meal outside of home.
While I suspect time is the largest factor, I did take a cocktail of supplements. Ginger rooibos tea with every meal, collagen, l-glutamine, creatine, unflavored whey isolate protein, and psyllium husk. Before bed I'd take 3+ mg melatonin, famotidine, ginger pill, artichoke extract pill.
I suspect I had/have long covid induced POTS or similar dyautonomia. Apparently it's quite common: https://archive.is/20240503031045/https://www.washingtonpost.... In any case, I've been recovering and seem to still be recovering.
Earlier quoted context omitted.
I've had headache-free ocular migraines since I was about 13 or 14. Your typical aura/flashing/light sensitivity. They always are proceeded by some flash and then I know I have maybe 15 minutes before I'm in the middle of it. Anyway, two things that I find helps. The easiest one is supplementing magnesium -- if I ever run out and forget to order more for a couple weeks I'll inevitably have a migraine. The other one i…
I found my ocular migraines were triggered by my looking out the window in the morning while I brushed my teeth. On sunny days it was a lot of brightness to take in. Since I stopped doing that I haven’t had a single one.
My feeling is this was caused by COVID damaging the neurons or receptors of the stomach or duodenum, or, more likely that COVID caused a Magnesium Deficiency: https://pmc.ncbi.nlm.nih.gov/articles/PMC10445067/ But some thoughts: If the stomach is not emptying it means it is not getting the signal to empty. Some of his symptoms signal high serotonin (panic attack, nasuea) https://www.nature.com/articles/1300880 Anti-n…
Earlier quoted context omitted.
Mine is primarily in my large intestine, so it's like a weird combination of Crohn's and UC, which could be why it causes so much nausea. Remission for me was just sort of luck and time. I was first diagnosed at 28, was on a ton of steroids followed by about 20 years of Imuran. After a colonoscopy my GI doctor said that my colon shows no sign of damage anymore and that since Imuran increases risk for cancer that I sh…
Knock on wood, mesalamine has been good to me too. (Not quite remission atm but promising improvements.) IIRC most of its effect is in the large intestine, so it generally works better for people with UC, but I'm the same in that my Crohn's is mostly colorectal. Unlike you I haven't had nausea as a primary symptom though, knock on wood. It's weird/interesting how much variance there is between Crohn's patients... fas…