The are HIPAA regulations supposed to protect the data but I take it people don’t trust that there’s sufficient oversight.
Google whistleblower: the medical data of millions of Americans is at risk
81–83 of 83 posts
Re: Google whistleblower: the medical data of millions of Americans is at risk
#82Earlier quoted context omitted.
> we don't want faceless algorithms studying our most intimate personal and medical issues So you don't want an advanced algorithm to analyze your vitals and detect your cancer at an early stage? Technology has more than doubled our life expectancy. More technology could do even more so. The fact that it's a faceless algorithm, and not a creepy biased human, should be a comfort. But you're reacting like this is all g…
> So you don't want an advanced algorithm to analyze your vitals and detect your cancer at an early stage? That’s correct, I don’t want that. And if one day I change my mind and make the choice to opt-in to a system that works like that, I still won’t ever want Google to be involved in it.
Oh, I see. A brand's values and reputation, as well as your own personal choices, are more important to you than your health.
Re: Google whistleblower: the medical data of millions of Americans is at risk
#83What is the risk of exposing our health data? To me it is not so obvious, other than maybe embarrassment? Is it like how in our culture we don't like to talk about how much money we make? Why are all these things supposed to be secret in the first place?
Because your medical information can be used against you. Want a new job? Nope! We don't want someone with your condition on our team. Want to buy a house? Nope! An AI bot says may not live long enough to pay the loan. Want to get some ice cream? Can't haz. When you swipe your electronic payment method the database says you're at a risk for diabetes. There are thousands of other scenarios.
To me, your examples are not about "using information against" someone.
> Want a new job? Nope! We don't want someone with your condition on our team.
There are laws in some countries that could forbid such discrimination. Even if the employer lies about the true reasons, lies don't go unpunished forever. The parent is right about it, they are cultural biases.
> Want to buy a house? Nope! An AI bot says may not live long enough to pay the loan.
As said by another reply, your example is purely fictional. Even if it was true, there could be a culture change and new laws to support those people in need.
> Want to get some ice cream? Can't haz. When you swipe your electronic payment method the database says you're at a risk for diabetes.
Again, fictional example.
> There are thousands of other scenarios.
Sure, if you use all the words in the English dictionary, you can create billions of sentences, but very few will be actually close to the truth...