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The bureaucracy blocking the chance at a cure

writingruxandrabio.com

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Re: The bureaucracy blocking the chance at a cure

#71

Post by pixl97 »

saulpw wrote: post #65
pixl97 wrote: post #62

Earlier quoted context omitted.

Evidently the construct of the devil does because humanity can help but setup complex situations that require a balanced approach rather than only looking at things one way.

In that case, you can explain the nuance and offer a more balanced viewpoint, without invoking the devil as an accountability sink. Your words should stand on their own merits. (To be fair, you did this! I'm just saying you shouldn't preface your words with a trite phrase that signals you'll be lobbing cheap logic over the wall and disavowing responsibility for your words if the logic proves faulty.)

At least to me it sounds like you just have problems with the incorrect use of the devils advocate by some people in the first place, of which I would actually hope you understand its use in rhetoric.

At least in the common HN discussion you nearly have to use its form when talking in an approving manner of things like regulation or unions because it goes against the Holy Church of Capitalism, lest you be punished by the mighty downvote button for heresy.

Re: The bureaucracy blocking the chance at a cure

#72

Post by RandomLensman »

missedthecue wrote: post #69
just13ducks wrote: post #66

There’s a lot to be said about the seemingly overbearing nature of the majority of FDA/ISO standards that result in the mass amount of hurdles that need to be jumped before a treatment is available, but that’s mainly due to institutional trauma from past events (thalidomide, primarily) as well as the fact that treatments are not simply binary. The options are not just “does not work” and “makes patient better,” there…

During covid, the FDA testified to congress that they were putting the vaccines on an approval fast track that would not reduce safety or efficacy. Why is this not the standard approval track?

For example, running very large trials in a short time is very high effort.

Re: The bureaucracy blocking the chance at a cure

#74

Post by briffle »

endymion-light wrote: post #14

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

Its a double edged sword. yes, it stifles renewable energy innovation, but those rules are usually put in place in a more general sense, and you would really want them in place if next door was suddenly announced to be a landfill, or chemical plant, or a chicken farm, or an xAI datacenter....

Re: The bureaucracy blocking the chance at a cure

#75

Post by Retric »

tinfoilhatter wrote: post #59
Retric wrote: post #56

Earlier quoted context omitted.

A large portion of the US healthcare is through nonprofits who are more interested in continuing to exist than in maximizing profits. Vaccine companies are very interested in preventing disease not the kind of extended treatment people so often expect the healthcare industry to be looking for. They have an endless stream of new people being born every year so have no interest in people getting sick.

If people aren't getting sick, they have no revenue stream. Those non-profits you mentioned obviously aren't as capable of lobbying congress to influence industry regulation / bureaucracy as for-profit organizations are.

Nonprofits constantly lobby congress for a huge range of reasons, but they also get results with a surprising amount of federal money going directly to such organizations independent of Medicare, Medicaid, etc.

> If people aren't getting sick

People also get sick outside the US.

People still get vaccinated in the US for diseases with effectively zero new US cases because they haven’t been eradicated worldwide and would come back as soon as we stop vaccinating people.

Re: The bureaucracy blocking the chance at a cure

#76

Post by janalsncm »

endymion-light wrote: post #14

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

Maybe one solution for this issue would be some kind of “developer’s ombudsman” that is an affordable public service to 1) help people navigate the bureaucracy and 2) produce a report recommending streamlining of rules where possible.

This avoids “cutting down all the laws to punish the devil”. Some regulations are necessary.

Re: The bureaucracy blocking the chance at a cure

#77

Post by terminalshort »

janalsncm wrote: post #76
endymion-light wrote: post #14

As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…

Maybe one solution for this issue would be some kind of “developer’s ombudsman” that is an affordable public service to 1) help people navigate the bureaucracy and 2) produce a report recommending streamlining of rules where possible. This avoids “cutting down all the laws to punish the devil”. Some regulations are necessary.

Another bureaucracy to help people navigate the existing bureaucracy? Are you missing a "/s"?

Re: The bureaucracy blocking the chance at a cure

#78

Post by thegrim33 »

Am I going crazy here? A completely random person tells AI to generate a novel vaccine/compound, and people are actually upset that there were 3 months of regulatory hurdle he had to jump through before he was able to start injecting this new compound into an live animal's bloodstream? Really?

Re: The bureaucracy blocking the chance at a cure

#79

Post by terminalshort »

panzagl wrote: post #64
peyton wrote: post #40

Earlier quoted context omitted.

It’s less of a pipeline and more like a rocket engine. The exhaust gas (clinical data) spins the pump. We’ve put restrictors on that flow, and it’s taking a lot of fuel to get off the ground.

Rockets with unrestricted flow are called bombs.

They're called solid fuel rockets
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