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Bridge to Nowhere

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Re: Bridge to Nowhere

#71

Sometimes, this is the gift of having a trained chaplain, pastor, or advocate with you who has navigated these moments before. I’ve been in these moments with people in my church, and I don’t think it is always about the doctors or healthcare providers withholding info. Sometimes, you are the tenth person they have seen in a short period of time, so they are trying to communicate as best as they can, as efficiently a…

Some additional context and detail about hospital chaplaincy in the US:

1) In a major metro area, it's very likely that not all of the chaplains on staff at a hospital are Christian. It's rare, but increasingly likely, that chaplains are not even religious.

2) Chaplains have a primary responsibility to and the time and relationships with hospital staff to advocate for the patient and their family in addition to their more stereotypical duties providing emotional, religious, or spiritual support.

3) Chaplains also provide various types of support and guidance for your family or other loved ones -- so having a relationship with the hospital's chaplains can be a huge help for your loved ones if you are incapacitated for advocacy to the medical team, for navigating logistics, and for providing someone dispassionate to listen.

Of course, YMMV based on your location. In the deep south or outside a major metro, the chances that a given chaplain is an evangelical Christian who might try to convert you are higher.

And even in a major metro, you might find a chaplain who doesn't really want to do their job.

But if you're in the hospital and having trouble navigating the bureaucracy or getting the attention of your medical team, asking to visit with a chaplain can be very productive toward those ends.

Re: Bridge to Nowhere

#72

Sometimes, this is the gift of having a trained chaplain, pastor, or advocate with you who has navigated these moments before. I’ve been in these moments with people in my church, and I don’t think it is always about the doctors or healthcare providers withholding info. Sometimes, you are the tenth person they have seen in a short period of time, so they are trying to communicate as best as they can, as efficiently a…

well put. In general , you want someone with experience who is also able to think clearly about the issue. But even having someone in there with you can make a huge difference. I personally know of someone who almost died in a hospital from a medical error , and survived only because a family member decided to check on him at the hospital

My mom almost died from a hemorrage after my birth… Mu granma was there and noticed the sheets getiting red… This was of course many years ago, no monitors etc.

Re: Bridge to Nowhere

#73
post #30

Sometimes, this is the gift of having a trained chaplain, pastor, or advocate with you who has navigated these moments before. I’ve been in these moments with people in my church, and I don’t think it is always about the doctors or healthcare providers withholding info. Sometimes, you are the tenth person they have seen in a short period of time, so they are trying to communicate as best as they can, as efficiently a…

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Re: Bridge to Nowhere

#74
post #32
post #30

Earlier quoted context omitted.

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Previous poster was pretty clear their advice has nothing to do with religion as such: "Having someone - doesn’t have to be religious to be clear - who has been in those rooms can be helpful." Starting a flame about religion is very not appropriate. Please don't do that.

Falsely accusing someone sharing their perspective of starting a flame is very not appropriate. Please don’t do that.

Re: Bridge to Nowhere

#75
post #67
post #54

Earlier quoted context omitted.

The only message showing any sign of hate here is yours right there. Also, I don't think it's ok to ask someone to shut up or to go elsewhere. Let's not forget that being charitable is one of the rules we try to adhere to.

It's pretty clearly against the guidelines: https://news.ycombinator.com/newsguidelines.html "Eschew flamebait. Avoid generic tangents. Omit internet tropes." "Please don't use Hacker News for political or ideological battle. That tramples curiosity."

Right back at you. You are the one making this an ideological battle which is clearly against the guidelines. This is a place for curiosity, not ideological witch hunts.

Re: Bridge to Nowhere

#76
I work at a medical device company that specializes in radiation treatment for brain tumors.

This thoughtful and profound essay brings home the lived reality of the patients who are treated by our systems.

The writer speaks lived truth that has a tone of heft and substantiality.

Human life is a fragile and temporary gift. Most of us are lucky enough to have a few moments of transporting and profound beauty and joy.

While life's journey has an inevitable end for all of us, we can help each other in innumerable ways to make the journey more bearable, and at times joyful.

I'm an old guy, and have an artificial hip and cataract implants. I'm deeply grateful for the quality of life I've been gifted to receive by the medical people who make these kinds of things possible.

I hope that the brain treatment system I work on will be a similar gift to the lives of at least some of the patients who require that kind of treatment.

Re: Bridge to Nowhere

#77

More or less, if you enter a hospital, you need a medical case manager. The case manager should be an equal or superior specialty to the treating physician. The case manager should have a medical power of attorney to make decisions concerning your care (not so much to make decisions, but to be allowed into the decision making process to advise you, and then to regulate the execution of the treating physician). In sho…

The last case manager I dealt with (Raymond Rupert) ended up getting banned from practicing medicine.[1] To this day, he still operates and is expanding his case management consultancy service. He even claims Google Canada as a client.[2] His MO is selling people on his "exclusive network" of service providers and getting people not to trust normal doctors. He then comes up with a bunch of fake services to bill peopl…

[deleted]

Re: Bridge to Nowhere

#78

Anecdotally, when negative scenarios are probable, a strategy of the medical system is hiding them from the patient (until more progress is done, at least). I wonder if that is still a common occurence in the first place, and if it is, I wonder if it is really backed up by scientific evidence of this improving prognosis and outcome of surgeries (though in cases like OP's this seems sort of irrelevant anyway, same wit…

I have the same questions. If it's known that disclosing certain information will stastically lead to worse outcomes due to patient reaction, what do you prioritize - better possible outcome or patient autonomy over their own life decisions?

Re: Bridge to Nowhere

#79

I work at a medical device company that specializes in radiation treatment for brain tumors. This thoughtful and profound essay brings home the lived reality of the patients who are treated by our systems. The writer speaks lived truth that has a tone of heft and substantiality. Human life is a fragile and temporary gift. Most of us are lucky enough to have a few moments of transporting and profound beauty and joy. W…

What a beautiful, beautiful comment. Thanks for working on a brain treatment system. Who knows, one day I might benefit from it.

Re: Bridge to Nowhere

#80

It may be a bridge to nowhere for the patient but it is a profit opportunity for hospital owners. You're just another input in their number go up paperclip maximizer - where your road leads beyond their number go up is not a concern for them.

The book Outlive by Peter Attia refers to this as Medicine 2.0 (vs 3.0 which is health over an entire life).

In the end though, Medicine 2.0 is very good at discrete issues like a brain tumor. It's a good thing for those afflicted that there are profits to be made there because it means that there are huge facilities and training dedicated to these types of medical issues and their resolution.

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