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Tinnitus Treatment from Neuromod

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Re: Tinnitus Treatment from Neuromod

#71

Post by mrtksn »

axetheone wrote: post #64
mrtksn wrote: post #24

I debugged my own Tinnitus, most doctors don't know anything and don't care about it. It turned out to be related to my neck, so I wonder on what subset of Tinnitus sufferers this treatment is even relevant. A short story about my debugging after frustration with the conventional medicine. One day after I came back from work it started in one ear, lasted for half an hour and went away for few minutes and came back to…

Tinnitus appeared to me at the beginning of this godforsaken year of 2020 and I think I have two separate types of tinnitus, with one most likely being due to neck tension (which is more intense on my left ear). I know this because when I stretch my chin to my chest (like exampled in https://www.healthline.com/health/neck-tension#treatments ) I start to hear a more pronounced wooshing sound on my ears and gives a bur…

I also have multiple, the scary one is the constant frequency one and it’s the one that comes back if I lay sideways with strain on the neck(Thankfully doesn’t stay anymore). The more tolerable one is the one that sounds like old tv with no signal, this one responds well to massage. There’s also one that sounds like water running in the pipes, I actually like that one - in even helps me sleep :)

Anyway, The orthopedist gave me this leaflet with the exercises illustrated. Pretty basic stuff and in Turkish but the illustrations are good enough:

https://ibb.co/XWnTZVB https://ibb.co/r6PBbTK

You apply pressure for 10 seconds each, repeat 3 times before moving to the next one.

These are intended to strengthen up the neck muscles.

Re: Tinnitus Treatment from Neuromod

#72

Post by Red_Leaves_Flyy »

dt3ft wrote: post #63
kinleyd wrote: post #7

Earlier quoted context omitted.

Wow. May I ask which battle zone this was?

Bosnia and Herzegovina. I was 10 when the war begun. I spent 4 years in city of Gorazde, under siege, without electricity, communications and running water. I started to write a book (in english) about these 4 years but it got too difficult to re-live so I put it on hold for a while. Not sure anyone would ever want to read this.

>Not sure anyone would ever want to read this.

I would read such a book. Sharing your experiences can help others begin to understand what survivors like you have gone through.

My emails in my profile if you'd like to chat with me.

Re: Tinnitus Treatment from Neuromod

#73

Post by mrtksn »

newman314 wrote: post #45
mrtksn wrote: post #24

I debugged my own Tinnitus, most doctors don't know anything and don't care about it. It turned out to be related to my neck, so I wonder on what subset of Tinnitus sufferers this treatment is even relevant. A short story about my debugging after frustration with the conventional medicine. One day after I came back from work it started in one ear, lasted for half an hour and went away for few minutes and came back to…

That's interesting. I remember reading that one way of treating it would be lace your fingers behind your neck and do a flicking motion onto your neck with your fingers. Could be imaginary but it seemed to help. YMMV

That was the relief technique I tried but did not work for me but discovered the one that works: Rubbing in single motion by starting from back my shoulder up to the back of my ear.

Re: Tinnitus Treatment from Neuromod

#74

Post by patorjk »

dasb wrote: post #19

I've been following tinnitus research and the most promising treatment is FX-322 [1]. It's a drug that will treat hearing loss, but it could also help diminish tinnitus. It's currently in phase 2a [2] and results come out next year [3]. [1] https://hear2tell.com/2020/09/29/frequency-therapeutics-fx-3... [2] https://clinicaltrials.gov/ct2/show/NCT04120116 [3] https://www.hearinglosstreatmentreport.com/estimated-fx-322…

Carl LeBel (Chief Development Officer of Frequency) revealed on the Tinnitus Talk Podcast that several patients in the Phase I/II study reported "improved" tinnitus to their ENTs. How much improvement wasn't measured, but it's one of the reasons they're testing for tinnitus in the phase 2a study.

Otonomy's OTO-413 drug (to fix the ribbon synapses in the cochlea) also seems really promising (results are due out next month). However, for their phase I/II study they're not testing for tinnitus and are actually excluding patients with "bothersome tinnitus". I'm hoping they see the same thing as Frequency and that some patients report improved tinnitus. These two drugs together (regrowing hair cells and ribbon synapses) seem like they could be a good one-two punch against hearing loss and tinnitus.

Re: Tinnitus Treatment from Neuromod

#75

Post by mrtksn »

dstick wrote: post #28
mrtksn wrote: post #24

I debugged my own Tinnitus, most doctors don't know anything and don't care about it. It turned out to be related to my neck, so I wonder on what subset of Tinnitus sufferers this treatment is even relevant. A short story about my debugging after frustration with the conventional medicine. One day after I came back from work it started in one ear, lasted for half an hour and went away for few minutes and came back to…

If it’s related to your neck then it’s tension related, that’s one form of tinnitus, one that can be remedied. When you have actual ear damage, it’s quite another story :)

I was also hoping for a tumor because at least can be removed surgically.

Re: Tinnitus Treatment from Neuromod

#76

Post by dstick »

ecommerceguy wrote: post #50

I have very noticeable ringing in my ears ever since I can remember. 2 things 1 Hearing tests have always indicated I have excellent hearing. 2. The ringing doesn't bother me, even in extremely quiet environments. Speaking of, the most peaceful quiet I've encountered was in a bamboo forest somewhere in middle China. I'll never forget the utter silence.

Same for me, the tinnitus is actually comforting. Like the noise when showering vs taking a bath. As long as my hearing is fine, I’m fine. The only solution for tinnitus is habituation. Fighting it puts it into focus and makes it worse without fail.

Re: Tinnitus Treatment from Neuromod

#77

Post by jhallenworld »

I worked at a place that had a cube farm with white noise generators to suppress background noise. These things triggered the small amount of tinnitus I have, also some co-workers complained. The frequencies they put out definitely matters- ones with no high pitch output are definitely better.

(pretty sure my Tinnitus was from a certain Metallica concert..)

Re: Tinnitus Treatment from Neuromod

#78

Post by modeless »

furyofantares wrote: post #58
vagrantJin wrote: post #57

Earlier quoted context omitted.

I get it when my right ear has way too much earwax. J lose some hearing and the ringing wont stop. Just a bit annoying so Im usually wearing headphones with nice soothing music until I can get that wax out.

Are you using cotton swaps in your ears? What might be happening is that you shove wax in, clogging your ears and giving you tinnitus. That used to happen to me - the ear wax wasn't the problem, trying to clean it was.

To clean your ears yourself you need something like this: https://www.japantrendshop.com/coden-ear-scope-13000-standar...

I thought it was ridiculous when I first saw it but I took a chance on it and it is actually a great product. You can clearly see everything and clean without damaging your ear. If you've ever had to go to the doctor to clear a blocked ear, you need one of these. With occasional use (~once/month) your ears will never be blocked again.

Re: Tinnitus Treatment from Neuromod

#79

Post by michaelmior »

dreamcompiler wrote: post #40
ghastmaster wrote: post #33

I've been following frequency therapeutics as well. I don't think the Neuromod treatment would provide much help to me. My tinnitus does not bother me in any meaningful way. The bothersome thing for me is hearing loss. Noisy environments interfere with my ability to hear conversation. Some frequencies I simply cannot hear. Some noises, cheap/bad audio in the higher frequencies for instance, actually hurt my ears. Whe…

Took me a while to understand based on my own hearing loss that it's not about decreased sensitivity to sound. Hearing is about sound volumes that occur between two limits: The threshold of sensitivity (above which you discern that the sound exists), and the threshold of pain (above which the sound is painful). Between those limits lies hearing. In age-related "hearing loss," the threshold of sensitivity rises while…

Of course prolonged exposure to loud sounds which are not explicitly painful can still cause hearing damage.

Re: Tinnitus Treatment from Neuromod

#80

Post by mordymoop »

dylan604 wrote: post #41
ghastmaster wrote: post #33

I've been following frequency therapeutics as well. I don't think the Neuromod treatment would provide much help to me. My tinnitus does not bother me in any meaningful way. The bothersome thing for me is hearing loss. Noisy environments interfere with my ability to hear conversation. Some frequencies I simply cannot hear. Some noises, cheap/bad audio in the higher frequencies for instance, actually hurt my ears. Whe…

I was in a T-bone accident where another car hit me centered right in between the driver and passenger doors. My left ear now has tinnitus, and I too have a hard time hearing conversation in large groups of people. However, after the wreck, I visited hearing specialist several times. I always passed their tests of the faint frequencies. They cannot explain where the ringing originates.?!?! It's one of those things it…

On the off chance that this helps: I get tinnitus when my neck and/or jaw are clenched. This is a known phenomenon, you can google it. In fact, the onset of tinnitus is sometimes the only thing that makes me aware of how tense my neck is. If you were in a collision, it's possible your nervous system as adopted a pattern of muscle tension to compensate, or in anticipation of trauma, or something. Anyway, perhaps try relaxing your neck/head/jaw when this happens?
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