Earlier quoted context omitted.
> and patient data cannot and will not be combined with any Google consumer data. Does anybody enforce this or do we just take Google at their word?
Yes, if you have HIPPA you get routine audits to make sure you are obeying the law.
Google's harvest of medical data includes names and full details of millions
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Re: Google's harvest of medical data includes names and full details of millions
#72Re: Google's harvest of medical data includes names and full details of millions
#73Googler here, my opinions are my own, standard disclaimer. I'm not going to comment on this specific case but I do have almost a decade of previous non-Google experience working in clinical documentation technology. As others have said, entering into a BAA with a covered entity, as HIPAA defines it, shouldn't be seen as a controversial action. There are numerous problems in healthcare that are too complex for individ…
I'm not certain what aspect you are trying to highlight with this example, but readers should know that the MD Anderson implementation of the EPIC EMR system led to a 77% drop in income and layoffs approaching 1,000 people (2016-2017 time frame)[1][2]. I'm not up to date enough to know whether they have ever recovered.
[1] https://www.modernhealthcare.com/article/20170106/NEWS/17010...
[2] https://www.beckershospitalreview.com/finance/md-anderson-po...
Re: Google's harvest of medical data includes names and full details of millions
#74> Among the documents are the notes of a private meeting held by Ascension operatives involved in Project Nightingale.
The whole article is written like they are trying to tell a spy story which brings into question the credibility that there's any wrong doing.
Re: Google's harvest of medical data includes names and full details of millions
#75> Google could go on to use its AI analytics to predict outcomes for individual patients, they posited. This is the most scary part[0]. I'm sure plenty here would disagree, but I simply don't (yet) share your optimism for A.I. [0] Not that the rest isn't scary.
Ubers ai won't even slow down when it sees a person in the road. A computer can prescribe a drug for me, but I can't prescribe a drug for me? Can I please have my life back please?
It'd be convenient if we could assume perfect personal responsibility, but human behavior doesn't align with that assumption.
Re: Google's harvest of medical data includes names and full details of millions
#76Any google employees/friends of google employees here with insight as how staff is receiving this news? My guess is like all other egregious abuses of power, the employees will stage a "protest" to feel good about themselves then keep working there.
(i.e. the question in their minds is "Is the data safer in the source repositories?" And it's probably not).
Re: Google's harvest of medical data includes names and full details of millions
#77Earlier quoted context omitted.
Not defending the article (I’ve not read it), but I suppose I probably would be horrified with the status quo. I really wish we had a more consent based data culture. I suppose I don’t know how that would be designed. But lots of real things are horrifying and it’s not necessarily fine just that something is normal.
My view is that consent is oversold. If I "consent" to a boilerplate agreement handed me moments before an action is taken, have I really? Boundaries and distributions should be clearly, specifically specified, with any non-essential distributions requiring specific assent, defaulting to none. If there are consequences to sharing, those can be made known. We've been drawn into a circumstance which has long been unten…
Obviously you have not.
I wouldn't say this is consent being "oversold", but rather yet another way that the concept of consent is being actively undermined into a legal fiction.
This is also why the GDPR has the provision for revoking permission to your data at any time - to counter its rights being otherwise nullified through contracts of adhesion.
Re: Google's harvest of medical data includes names and full details of millions
#78So what do we do to stop this? What recourse do people directly affected by this have?
https://www.hhs.gov/hipaa/filing-a-complaint/complaint-proce... Complaint Requirements Anyone can file a health information privacy or security complaint. Your complaint must: Be filed in writing by mail, fax, e-mail, or via the OCR Complaint Portal Name the covered entity or business associate involved, and describe the acts or omissions, you believed violated the requirements of the Privacy, Security, or Breach Not…
I mean, filing a complaint is free but I imagine it should have a grievance attached to be taken seriously.
Re: Google's harvest of medical data includes names and full details of millions
#79I wonder if this is not a coincidence given acquisition of fitbit.
Re: Google's harvest of medical data includes names and full details of millions
#80Earlier quoted context omitted.
This is not "fake news" at all. This is the same factual event covered with a different spin. Use of the term "fake news" to describe reporting that is merely slanted in a direction you don't like--rather than presenting demonstrably false information as fact--is completely unwarranted, and is doing terrible damage to our social institutions.
This is a TEXTBOOK case of fake news - a newspaper owned by Google competitor spinning purchase of space on encrypted Cloud Storage and Google Apps productivity suite as a big medical data mining attempt by Google to drive a political agenda. There are obvious concerns around data security here, but the article is very heavily distorting facts to drive outrage.
They have viewpoints which include a distrust of very powerful global corporations, and one you may or may not agree with - but it’s nowhere near ‘fake news’.