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23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

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Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#71

Post by iwontreddit »

biomcgary wrote: post #43
krisdol wrote: post #34

Earlier quoted context omitted.

I just want to pay for a service or product and have that be the end of my interaction with the company as well as the end of the company's use, possession, and monetization of my data. When I buy a stick of gum I deprive the store of that stick of gum in exchange for money. On the Internet I'm purchasing something but the company gets to hold on to and share it indefinitely. It not only benefits from the money excha…

Your genetic data is nearly worthless, even to you, unless the aggregated database exists. The real cost is in the analysis and interpretation not the collection of the data. Thus, for your own benefit (i.e., clear knowledge of your genetic risks), they must monetize your data (i.e., find someone to pay them to perform the analysis, whether drug company or charity, e.g., American Heart Association). As long as they a…

What the fuck is with the shills on hacker news?

> Your genetic data is nearly worthless, even to you, unless the aggregated database exists.

Nonsense. There is value in individual data and aggregated data.

> they must monetize your data

BUT YOU PAY THEM for their service. If they want to monetize MY data, then they should pay ME. You are aware that 23andme charges you a fee right?

> As long as they are up front about what they are doing

They aren't up front.

If 23andme wants to use/sell your genetic material, then they should get your explicit consent and permission.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#72

Post by afarrell »

iwontreddit wrote: post #71
biomcgary wrote: post #43

Earlier quoted context omitted.

Your genetic data is nearly worthless, even to you, unless the aggregated database exists. The real cost is in the analysis and interpretation not the collection of the data. Thus, for your own benefit (i.e., clear knowledge of your genetic risks), they must monetize your data (i.e., find someone to pay them to perform the analysis, whether drug company or charity, e.g., American Heart Association). As long as they a…

What the fuck is with the shills on hacker news? > Your genetic data is nearly worthless, even to you, unless the aggregated database exists. Nonsense. There is value in individual data and aggregated data. > they must monetize your data BUT YOU PAY THEM for their service. If they want to monetize MY data, then they should pay ME. You are aware that 23andme charges you a fee right? > As long as they are up front abou…

> What the fuck is with the shills on hacker news?

There exist people who sincerely disagree with you.

> they should get your explicit consent and permission

I remember signing up for 23andme a number of years back and hoping my data would be used for drug discovery. This was a big part of their marketing at the time. I can't fathom how anyone didn't know that they were going to do this.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#73

Post by astrange »

iwontreddit wrote: post #69
aub3bhat wrote: post #6

So on one side journalists lament lack of new drug development & just the shoddy state of healthcare tech, while as soon as any new data that can potentially unlock new drug targets (23andMe) or provider better support (Google DeepMind Health) is introduced, Such efforts are quickly demonized with spread of Fear, Uncertainty and Doubt. Rather than asking important questions such as at which level the "aggregate" data…

Or people don't like their DNA being used for something beyond what they paid for? After all, the customers paid 23andme for a service.

Then they can not opt-in to research. But continuing personalized results are also what you pay them (or Promethease) for.

http://i.imgur.com/kh3bOi8.jpg

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#74

Post by moultano »

krisdol wrote: post #34
aub3bhat wrote: post #6

So on one side journalists lament lack of new drug development & just the shoddy state of healthcare tech, while as soon as any new data that can potentially unlock new drug targets (23andMe) or provider better support (Google DeepMind Health) is introduced, Such efforts are quickly demonized with spread of Fear, Uncertainty and Doubt. Rather than asking important questions such as at which level the "aggregate" data…

I just want to pay for a service or product and have that be the end of my interaction with the company as well as the end of the company's use, possession, and monetization of my data. When I buy a stick of gum I deprive the store of that stick of gum in exchange for money. On the Internet I'm purchasing something but the company gets to hold on to and share it indefinitely. It not only benefits from the money excha…

Have you ever had more than a minor annoyance result from some company's use of your data? I understand the instinct and ick factor, but I've rarely seen an actual practical consequence.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#75

Post by TeMPOraL »

OberstKrueger wrote: post #64
Retric wrote: post #46

Earlier quoted context omitted.

ADA already 'prevents' job based discrimination based on DNA.* https://www.ada.gov/ An employer buying DNA on potential job candidates is opening themselves up to a world of litigation for little real gain. Similarly, health insurance may no longer discriminate based on prior health conditions due to the dreaded 'Obama Care'. We can debate if that's enough, or if these things should be rolled back. However, at a prac…

Laws can change. Health insurance can't discriminate now, but what happens if Obamacare was repealed, or if the ADA was amended?

An ugly mess happens. Which is why I think people would be asking themselves those questions before repealing Obamacare / breaking ADA. I think there's a limit to which politicians can pull tricks on people beyond which society's self-preservation instinct kicks in and people vehemently repeal harmful ideas. I doubt you can create a dystopian future with a single vote; it needs to be done very sneakily so that people won't notice until it's too late.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#76

Post by bduerst »

moultano wrote: post #74
krisdol wrote: post #34

Earlier quoted context omitted.

I just want to pay for a service or product and have that be the end of my interaction with the company as well as the end of the company's use, possession, and monetization of my data. When I buy a stick of gum I deprive the store of that stick of gum in exchange for money. On the Internet I'm purchasing something but the company gets to hold on to and share it indefinitely. It not only benefits from the money excha…

Have you ever had more than a minor annoyance result from some company's use of your data? I understand the instinct and ick factor, but I've rarely seen an actual practical consequence.

I've asked this question before and it is typically answered with nothing more than hypothetical "nightmare" scenarios.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#77

Post by shawn-butler »

moultano wrote: post #74
krisdol wrote: post #34

Earlier quoted context omitted.

I just want to pay for a service or product and have that be the end of my interaction with the company as well as the end of the company's use, possession, and monetization of my data. When I buy a stick of gum I deprive the store of that stick of gum in exchange for money. On the Internet I'm purchasing something but the company gets to hold on to and share it indefinitely. It not only benefits from the money excha…

Have you ever had more than a minor annoyance result from some company's use of your data? I understand the instinct and ick factor, but I've rarely seen an actual practical consequence.

You wouldn't know what the practical consequences are because you are entirely in the dark where the data goes.

That is kind of the point.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#78

Post by legulere »

voodoomagicman wrote: post #53
legulere wrote: post #40

Earlier quoted context omitted.

It's more about 23andMe advertising that by being a paying customer you will advance science, when what they're doing is selling your data to pharma companies.

I'm a 23andme customer and the aggregate data being used like this is exactly what I expected and is a big part of the reason I signed up. There is a lot I don't love about Pharma companies, but when they use this data to develop or better target drugs, they are advancing science.

Wouldn't you prefer if 23andMe to offer the data to all scientists and not only pharma companies paying millions?

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#79

Post by dogma1138 »

biomcgary wrote: post #30
aub3bhat wrote: post #6

So on one side journalists lament lack of new drug development & just the shoddy state of healthcare tech, while as soon as any new data that can potentially unlock new drug targets (23andMe) or provider better support (Google DeepMind Health) is introduced, Such efforts are quickly demonized with spread of Fear, Uncertainty and Doubt. Rather than asking important questions such as at which level the "aggregate" data…

The 23andMe data is amazingly useful for academic research too. I am familiar with a study (but not involved), soon to be published, that used their data to identify genetic variants responsible for a particular problem with pregnancy. The price was phenomenally lower than a more typical genome wide association study (GWAS) of which there are several publicly funded efforts. The results are much cleaner than previous…

Actually from everyone I talked too, 23andMe is pretty useless since they do very shallow sequencing, the amount of actual correlation is fairly low, and false positives and false negatives is actually quite high.

Re: 23andMe Is Monetizing Your DNA the Way Facebook Monetizes 'Likes'

#80

Post by Kequc »

As a 23andme customer I guess this means that drugs that suit my DNA are therefore as a result of this study going to benefit me before anyone else. I don't mind if my DNA is used for scientific research and I don't call that a moral grey area in any way. It's data.

Good for them and for me.

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