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type 1 diabetes is not influenced by diet, lifestyle or exercise which you could have known if you had read the first few paragraphs of the blog you're commenting about
Having your insulin pump die while you're on vacation
61–70 of 203 posts
Re: Having your insulin pump die while you're on vacation
#62Earlier quoted context omitted.
That’s kinda why I don’t want a pump. I’d rather deal with it myself than have some garbage corporation cut every corner and save every cent they can on a device that is keeping me alive. I’d rather have a glucose pump to be honest. I don’t need long lasting insulin so I don’t really need to care about dying in my sleep but lows scare me more than highs.
I mean I'd far rather have the pump than not, also a t1d. I dont bother wearing it at night though. All my blood sugar does is decline overnight, and the pump isn't the signal that things are going awry, that's the GCM. The GCM will still signal the pump, my phone and my watch to wake me if I need to eat carbs (vanishingly rare) and the pump never changes my blood sugar overnight anyway as far as I can tell. So I dis…
For my wife, when on lantus and novolog ( no pump ) the overnights were always high blood sugars . The pumps definitely help , but in retrospect she also stopped eating gluten around the same time. The no gluten diet helped a lot .
Side bar having been around the dexcom for 10 years now . The old/original audible alarms were easy to understand. Low crescendo for going low , low repeats for low alarm and the reverse for high events. With the x2 and g6 i literally have no idea what the beeps mean anymore. This alarm fatigue is bad and i wonder if this contributes to the authors issue too. Was there some warning she missed?
Re: Having your insulin pump die while you're on vacation
#63Re: Having your insulin pump die while you're on vacation
#64> I know that going to an emergency room would have cost me an insane amount of money I just don’t understand how Americans put up with this shit. I live in a country that only has private healthcare, and the idea that you can be insured and also that an emergency room visit can be expensive rather than specifically what the insurance is meant to cover is nuts.
If vulnerable individuals don't "...put up with this shit," they get sick and die. To understand this, you have to understand that there isn't usually an alternative.
I think OP means more why politics hasn't changed this. Even at state level there's plenty of stuff that can be done about this but seemingly no one cares enough.
Re: Having your insulin pump die while you're on vacation
#65Earlier quoted context omitted.
> Each issue is reasonable by itself... The problem of many hands - when responsibilities in a group that collectively does harm are divided between many people, who can be held accountable when each person individually acted reasonably? I think organizations are, more and more, siloing roles in this way intentionally (or at least emergently), such that blame can only ever be collective if they do harm. Since it's so…
the correct answer here is that they are all accountable. there is not some fixed quantity of blame to divvy up: each malfunctioning leg is responsible for the outcome.
They all contribute but they can’t all have the same degree of accountability.
Re: Having your insulin pump die while you're on vacation
#66Reading this, my takeaway was less about the pump and more about how every part of the medical system is disconnected from every other part. There were some mistakes made but they were all pretty reasonable decisions. But the situation that caused this in order: 1. The support line for the pump won't suggest sending it to where you are because you say you have a backup plan. 2. The support line also isn't a doctor; t…
The pump manufacturer is at fault a few different ways. They have a responsibility to make pumps that don’t break, and they should probably issue a recall. They shouldn’t rely on the availability of a product they don’t supply as a backup unless they can guarantee somehow that the patient always has access. Their staff should ask where you want the thing shipped to and include options like receiving the replacement a…
Why is any of that their responsibility? Their staff did ask if they would be fine without the new pump and op said yes. They were fine. They could have gone to a hospital. They could have gone to Walmart and bought some insulin syringes for their supply
Re: Having your insulin pump die while you're on vacation
#67>I don't think it's possible to live without resentment for the technology keeping you alive.
> Somewhere in the back of my head, something is always screaming: it's fucking stupid that I have to do this at all!!
I think it all comes down to this attitude. Interesting with the self awareness in other parts of the article.
I too get frustrated when I feel vulnerable and helpless. What helps me is reflecting on all the capabilities i actually have. They might feel less bitter and dependent if they try injecting manually. Then a pump isn't a life necessity, but a convenience.
Re: Having your insulin pump die while you're on vacation
#68Earlier quoted context omitted.
type 1 diabetes is not influenced by diet, lifestyle or exercise which you could have known if you had read the first few paragraphs of the blog you're commenting about
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i'm sympathetic to her health concerns (obviously) but the blog post is about type 1 and your girlfriend seems to have type 2. although they have similar names, their causes are unrelated.
from my perspective you are responding to a blog about the complications of a terrible, incurable illness with "you need more exercise" which has no impact on type 1.
for completeness: yes, diet and exercise does change the amount of insulin a type 1 diabetic needs, but it does not "get better" or "go away".
the type 1 diabetics i know actually live very healthy lives by necessity because they need to constantly keep track of their carb consumption so they can adjust the insulin amount.
Re: Having your insulin pump die while you're on vacation
#69I’m diabetic and found this strange for a few reasons. There’s a postscript in the blog post wishing death from diabetes on any diabetic who tries to point any of it out—so I’ll leave it at that.
Just picture the smiling model in the advertisement; blithely and confidently referring to the device’s crisp screen while standing on the first-class deck of the 14 day cruise through Margaritaville.
Re: Having your insulin pump die while you're on vacation
#70My aunt had her American Express die on vacation and they had a new one in her hands, in her hotel room, at 8 am the next morning. Priorities. Sigh.
I wonder if it would be possible for a business to exist that was like super double ultra premium T1 diabetes support. Maybe it's really expensive and not many people can afford it, at least at first, but it'd be like you can call up an on-call desk any time, day or night, 24x7x365, and immediately talk to somebody who can pull up your full situation and history and do anything necessary to fix any possible problem. Get anything you need shipped to you anywhere next-day, get you premium service at any local pharmacies or hospitals, already set up to do exactly what you need before you even get there, sweet-talk the tiny local mom-and-pop pharmacy, produce all of the right papers and work the right angles at the huge national chain pharmacy, track down the one that actually has or can do what you need, etc. What would it be like if you were able to actually throw enough money at the problem to create a perfect worry-free experience for at least some people.