Earlier quoted context omitted.
What's better for them should be the overriding concern and that's to have a normal development.
As soon as someone starts ascribing towards a "normal" and using the pronoun "them", warning bells should go berserk.
Scientists may have found a way to eliminate chromosome linked to Down syndrome
61–70 of 520 posts
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#62This is interesting news, for the lack of a better word. I've met more than one person with downs syndrome. They have definitely enriched my life and shown me a different way of looking at the world.
The mildest forms of Down Syndrome allow people to function in society but the worst forms are really bad. I knew a guy whose brother had a really bad from and was completely nonverbal.
It is a hard life for everyone involved.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#63This is interesting news, for the lack of a better word. I've met more than one person with downs syndrome. They have definitely enriched my life and shown me a different way of looking at the world.
I think there’s a difference between appreciating those among us who have it for their perspective and differences and wishing it upon your child. I admit I was absolutely relieved when pre-natal screening was negative for it, both times. But if that was the hand we were dealt, then I’d take it. But that doesn’t mean I want it.
I think at a certain point you can’t consider this stuff rationally.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#64This is interesting news, for the lack of a better word. I've met more than one person with downs syndrome. They have definitely enriched my life and shown me a different way of looking at the world.
The mildest forms of Down Syndrome allow people to function in society but the worst forms are really bad. I knew a guy whose brother had a really bad from and was completely nonverbal.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#65Earlier quoted context omitted.
The word "them" has been used for centuries in cases where the writer may want to refer to a subject, or subjects, of no specific gender. I wonder why it's suddenly bothering you.
I think the parent’s point was that “them” is referring to a group that is “other than normal”, and that that should raise caution. (Not agreeing or disagreeing, simply trying to infer the meaning.)
Misquote. The statement was "What's better for them should be the overriding concern and that's to have a normal development".
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#66Earlier quoted context omitted.
It's hard to imagine a treatment cost so high that it wouldn't be worth the USG paying for it. Down syndrome kids and adults have some quantifiable economic cost; normal adults are worth some other quantifiable economic benefit; the difference is going to be significantly more than the cost of treatment.
The US government is not one person or a small set of people with a coherent strategy making decisions based on cost-benefit analysis. It’s an extremely complex emergent system whose properties can only be understood by studying them empirically, not by appealing to arguments about what a human would think is worth it or would make sense.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#67Earlier quoted context omitted.
I don't know if it's the case for folks with Down Syndrome (I suppose it's likely not), but hearing-impaired folks have their own culture to the point that in the past it was seen as some as a betrayal to the community to seek out cochlear implants. I think having their own language does a lot to create unity among them. All that above is to say that I wonder if some folks in Down Syndrome might actually prefer their…
People are giving you shit because Down Syndrome sucks, but being deaf sucks too, and withholding hearing from kids of deaf adults is and was child abuse.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#68Earlier quoted context omitted.
I think there’s a difference between appreciating those among us who have it for their perspective and differences and wishing it upon your child. I admit I was absolutely relieved when pre-natal screening was negative for it, both times. But if that was the hand we were dealt, then I’d take it. But that doesn’t mean I want it.
Honestly it’s confounding to even think about it. Aborting a fetus with Down’s syndrome? Feels cruel to deprive someone of life for that. But if it meant you went on to have another child you otherwise wouldn’t have then you’re giving life. I think at a certain point you can’t consider this stuff rationally.
All lines are arbitrary.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#69Earlier quoted context omitted.
I think there’s a difference between appreciating those among us who have it for their perspective and differences and wishing it upon your child. I admit I was absolutely relieved when pre-natal screening was negative for it, both times. But if that was the hand we were dealt, then I’d take it. But that doesn’t mean I want it.
Honestly it’s confounding to even think about it. Aborting a fetus with Down’s syndrome? Feels cruel to deprive someone of life for that. But if it meant you went on to have another child you otherwise wouldn’t have then you’re giving life. I think at a certain point you can’t consider this stuff rationally.
Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome
#70Earlier quoted context omitted.
It's hard to imagine a treatment cost so high that it wouldn't be worth the USG paying for it. Down syndrome kids and adults have some quantifiable economic cost; normal adults are worth some other quantifiable economic benefit; the difference is going to be significantly more than the cost of treatment.
the us government is often driven not by cost/benefit analysis, but by the horror of someone poor getting something without "deserving" it
FTFY