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Scientists may have found a way to eliminate chromosome linked to Down syndrome

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Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#61
post #21

Earlier quoted context omitted.

What's better for them should be the overriding concern and that's to have a normal development.

As soon as someone starts ascribing towards a "normal" and using the pronoun "them", warning bells should go berserk.

[deleted]

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#62
post #5

This is interesting news, for the lack of a better word. I've met more than one person with downs syndrome. They have definitely enriched my life and shown me a different way of looking at the world.

The mildest forms of Down Syndrome allow people to function in society but the worst forms are really bad. I knew a guy whose brother had a really bad from and was completely nonverbal.

Even if it allows them to function in society, they have significantly higher poverty rates.

It is a hard life for everyone involved.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#63
post #25
post #5

This is interesting news, for the lack of a better word. I've met more than one person with downs syndrome. They have definitely enriched my life and shown me a different way of looking at the world.

I think there’s a difference between appreciating those among us who have it for their perspective and differences and wishing it upon your child. I admit I was absolutely relieved when pre-natal screening was negative for it, both times. But if that was the hand we were dealt, then I’d take it. But that doesn’t mean I want it.

Honestly it’s confounding to even think about it. Aborting a fetus with Down’s syndrome? Feels cruel to deprive someone of life for that. But if it meant you went on to have another child you otherwise wouldn’t have then you’re giving life.

I think at a certain point you can’t consider this stuff rationally.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#64
post #5

This is interesting news, for the lack of a better word. I've met more than one person with downs syndrome. They have definitely enriched my life and shown me a different way of looking at the world.

The mildest forms of Down Syndrome allow people to function in society but the worst forms are really bad. I knew a guy whose brother had a really bad from and was completely nonverbal.

You can have down syndrome and autism at the same time. Down syndrome also puts a person at a higher risk of early onset dementia.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#65
post #33

Earlier quoted context omitted.

The word "them" has been used for centuries in cases where the writer may want to refer to a subject, or subjects, of no specific gender. I wonder why it's suddenly bothering you.

I think the parent’s point was that “them” is referring to a group that is “other than normal”, and that that should raise caution. (Not agreeing or disagreeing, simply trying to infer the meaning.)

“other than normal”

Misquote. The statement was "What's better for them should be the overriding concern and that's to have a normal development".

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#66
post #35

Earlier quoted context omitted.

It's hard to imagine a treatment cost so high that it wouldn't be worth the USG paying for it. Down syndrome kids and adults have some quantifiable economic cost; normal adults are worth some other quantifiable economic benefit; the difference is going to be significantly more than the cost of treatment.

The US government is not one person or a small set of people with a coherent strategy making decisions based on cost-benefit analysis. It’s an extremely complex emergent system whose properties can only be understood by studying them empirically, not by appealing to arguments about what a human would think is worth it or would make sense.

Another statement that I would have simply accepted as fact a year ago, but now I believe is false. The US government is now primarily one person, and occasionally a small set of people, making cost-benefit decisions on what will benefit themselves more. The complex system is mostly gone, soon to be washed away, in favor of layers of patronage and favoritism. Much simpler.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#67
post #38

Earlier quoted context omitted.

I don't know if it's the case for folks with Down Syndrome (I suppose it's likely not), but hearing-impaired folks have their own culture to the point that in the past it was seen as some as a betrayal to the community to seek out cochlear implants. I think having their own language does a lot to create unity among them. All that above is to say that I wonder if some folks in Down Syndrome might actually prefer their…

People are giving you shit because Down Syndrome sucks, but being deaf sucks too, and withholding hearing from kids of deaf adults is and was child abuse.

No, that's not why ... it's because the comparison is bogus.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#68
post #63
post #25

Earlier quoted context omitted.

I think there’s a difference between appreciating those among us who have it for their perspective and differences and wishing it upon your child. I admit I was absolutely relieved when pre-natal screening was negative for it, both times. But if that was the hand we were dealt, then I’d take it. But that doesn’t mean I want it.

Honestly it’s confounding to even think about it. Aborting a fetus with Down’s syndrome? Feels cruel to deprive someone of life for that. But if it meant you went on to have another child you otherwise wouldn’t have then you’re giving life. I think at a certain point you can’t consider this stuff rationally.

At some point you have to choose an arbitrary line in the sand, or otherwise the universe is a single being.

All lines are arbitrary.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#69
post #63
post #25

Earlier quoted context omitted.

I think there’s a difference between appreciating those among us who have it for their perspective and differences and wishing it upon your child. I admit I was absolutely relieved when pre-natal screening was negative for it, both times. But if that was the hand we were dealt, then I’d take it. But that doesn’t mean I want it.

Honestly it’s confounding to even think about it. Aborting a fetus with Down’s syndrome? Feels cruel to deprive someone of life for that. But if it meant you went on to have another child you otherwise wouldn’t have then you’re giving life. I think at a certain point you can’t consider this stuff rationally.

My partner and I tested for it. We had a discussion and agreed a positive down’s result would not affect our decision to have the baby, but we were testing for other things anyway and it seemed like having the information earlier rather then later would help up prepare.

Re: Scientists may have found a way to eliminate chromosome linked to Down syndrome

#70
post #43
post #35

Earlier quoted context omitted.

It's hard to imagine a treatment cost so high that it wouldn't be worth the USG paying for it. Down syndrome kids and adults have some quantifiable economic cost; normal adults are worth some other quantifiable economic benefit; the difference is going to be significantly more than the cost of treatment.

the us government is often driven not by cost/benefit analysis, but by the horror of someone poor getting something without "deserving" it

>Republicans are often driven not by cost/benefit analysis, but by the horror of someone poor getting something without "deserving" it

FTFY

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