Starting Hospice

As the partner left behind, I nothing but empathy to Bess. As an avid, ultra pragmatic, HN reader though, I've gathered resources so I'll list them here:

Forums / chats:

https://www.reddit.com/r/widowers/ - This one I used immediately after. Yelling into the void. Crying. Having other people cry with me. Make sure I'm heard.

https://discord.gg/CFQfCdby - /r/widowers discord. This one is "good" for the first few days / weeks / months, when the pain is great and the sense of lost is overcoming and you just need someone to talk with, someone who's been through this, right now. Everyone is friendly, rules to keep things sane and not triggering are in effect.

Facebook groups - I know, ugh. But it helps to see other people in the same boat. Somehow. A little. For me it was "Young and Widowed With Children" (well, me) and some of the black humor groups e.g. "Widow(er) Humor". Find your tribe. It really does help.

Books:

It's ok you're not ok - https://www.amazon.com/Its-That-Youre-Not-Understand/dp/1622... - This is "the book". Everyone recommends it and it's justified. If you can't bring yourself to read, get the audible version. I did, it was easier to lie in bed with eyes closed.

Irreverent Grief Guide - https://www.amazon.com/gp/product/B08L5RRJ9D - this one is a "how to" guide. I mean a real "how to", emotionally. I, and possibly many on /r/widowers/ found it priceless.

Videos:

https://www.youtube.com/watch?v=dzOvi0Aa2EA - Huberman labs - a really short video on how your brain needs to reorient itself after loss.

Kids:

"The widow's survival guide" - https://www.amazon.com/Widows-Survival-Guide-Living-Children... - "you're not alone in the mess" kind of book. Again, audible version available.

Kids' books (mine was 3.5 so YMMV):

Reread over and over:

  - The invisible string - https://www.amazon.com/gp/product/031648623X
  - Fix-it man - https://www.amazon.com/gp/product/1925335348
  - Missing mummy - https://www.amazon.com/gp/product/0230749518
  - The sad dragon - https://www.amazon.com/gp/product/1948040999
  - Something very sad happened - https://www.amazon.com/gp/product/1433822660

  - Love is forever - https://www.amazon.com/gp/product/0615884059
  - I'll See You In The Moon - https://www.amazon.com/gp/product/1989123309
  - My heart will stay - https://www.amazon.com/gp/product/0578794578
  - The heart and the bottle - https://www.amazon.com/gp/product/0399254528
  - Always remember - https://www.amazon.com/gp/product/0399168095
  - The garden of lost balls - https://www.amazon.com/gp/product/B0BLQW27XX
  - Gone but never forgotten - https://www.amazon.com/gp/product/B09SNY9VF3

Actually, therapy and meds before, if not already. Anticipatory grief is a thing and processing it can make later days a bit easier. Anti anxiety meds (NDRI) can create "inoculation" effect to some extent. SSRIs probably as well. Understand depression, the symptoms, the issues. Educate family and friends. Establish rapport with a therapist.

Friends and community:

Expect loss of friends. It's terrible but it happens a lot. Extremely common that friends will silently disappear after a few days or weeks. Not even just joint friends. People are awkward around grief. Community, however, does seem to work well. Rely on them. Don't say no to food offers, it helps. Doordash! Don't be shy about it, it's fine to eat junk food. Don't drink though and don't get high, it deepens and prolongs the grief symptoms.

Calls:

Don't forget your family or close friends. I've had daily calls with my sister. It helped a ton. Scheduled daily calls.

Also, props for a cool personal blog and project list, I'm listening to Phasmaphobe now... congrats on creating and publishing a full-length album! No easy feat.

My mom just passed from ALS and now this. It's so unfair that we have essentially no working treatments for these, even though they always tout how advanced medicine is but I feel like it really is not advanced at all