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For me, it's like the volume of my inner voice is decreased, and no sign of recovery after 2 years, though no significant cognitive function decline can be observed.
One of the issues now
I’ll share an abridged long COVID story about myself since it dearly affected me. Just so other people can kind of know what the experience was like. I got sick in October 2020 before vaccines were available. After the initial 10 days which I would describe as moderate, borderline severe (6/10, where 7/10 is hospital and 9/10 is ICU) I had all manner of absolutely weird things happen to my body. I won’t go into the d…
Sicknesses caused by viruses are known to cause lingering "fatigue syndrome" in rare cases, so I'd be surprised if doctors would just flatly dismiss it. There probably is no such specific thing as "long covid", its just this syndrome that was always a thing.
Recently read an article suggesting that we should drop the term Long Covid, as it implies that there is something unique about it, when the research seems to show that the impairment post-Covid is very similar to that from Influenza: https://www.theguardian.com/society/2024/mar/15/long-covid-s...
And of course, if you had not relied on a politically motivated, faulty, non-peer reviewed study you would find the following problems caused by Long Covid:
viral persistence https://www.nature.com/articles/s41590-023-01601-2
Microclots in the blood and endothelial dysfunction (leading to vascular problems, organ failure, cardiac events) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8883497/
Immune system dysregulation https://www.science.org/doi/10.1126/science.adg7942
Mitochondrial damage https://www.news-medical.net/news/20240104/Study-identifies-...
And finally yes, blood-brain barrier disruption https://www.nature.com/articles/s41593-024-01576-9
I’ll share an abridged long COVID story about myself since it dearly affected me. Just so other people can kind of know what the experience was like. I got sick in October 2020 before vaccines were available. After the initial 10 days which I would describe as moderate, borderline severe (6/10, where 7/10 is hospital and 9/10 is ICU) I had all manner of absolutely weird things happen to my body. I won’t go into the d…
Some things to do: get biome tests regularly, go on an elimination diet, find the right supplements, join various LC/mecfs communities doing this work.
The short answer is the medical system really doesn't know what to do here and if you're dealing w this stuff you have to take it into your own hands and familiarize yourself with the areas the medical system doesn't focus on.
For me, it's like the volume of my inner voice is decreased, and no sign of recovery after 2 years, though no significant cognitive function decline can be observed.
I’ll share an abridged long COVID story about myself since it dearly affected me. Just so other people can kind of know what the experience was like. I got sick in October 2020 before vaccines were available. After the initial 10 days which I would describe as moderate, borderline severe (6/10, where 7/10 is hospital and 9/10 is ICU) I had all manner of absolutely weird things happen to my body. I won’t go into the d…
I've had similar symptoms for 7+ years now so it's most likely for life. Have seen many infectious disease specialists and CFS/ME is the diagnosis (same as long-covid). Mine seems to have been triggered by Glandular Fever (Epstein Barr Virus). Exertion is the biggest trigger for me, but also the prescribed cure (Gradual Exercise Therapy). Alcohol is a weird one, I often feel better with a hangover than I do on a bad…
really sorry you're dealing w mecfs insaider, i feel your pain
Earlier quoted context omitted.
So sorry to hear the way this affected you. My wife had/has long covid - as I listened to people she met online with LC and a couple of people we knew already, what fascinated me was the 'menu' of symptoms that people got and just how different they could be, though overlapping. She too had the POTS and range of aches and issues. While she's largely recovered now, she still has to pace herself. Really hoping this is…
I’m basically 100% fine now, but thanks. I just wish I could have told the me that existed right when I started having this happen that it would eventually get better. At the time it was very scary thinking that I might have to deal with POTS or shortness of breath for the rest of my life or that my organs were permanently damaged in some way. I find myself more fortunate than most in that I never really had the fati…
She's so much better now, and getting rid of POTS symptoms was a massive turning point for her, esp as we kept being told that no one recovers from POTS.
And yes, a friend of mine (male model in his 30s) who also had LC, could cycle for hours (no physical fatigue), but mental tasks totally wiped him out.
I’ll share an abridged long COVID story about myself since it dearly affected me. Just so other people can kind of know what the experience was like. I got sick in October 2020 before vaccines were available. After the initial 10 days which I would describe as moderate, borderline severe (6/10, where 7/10 is hospital and 9/10 is ICU) I had all manner of absolutely weird things happen to my body. I won’t go into the d…
Precisely what happened to me. Doctor botched the disgnosis, my department in local government did everything in their power to push me out immediately upon sharing an honest assesment of how I was feeling, asserting that I was voluntarily resigning rather than genuinely ill - which came across as retaliation for some of them having to return to the office in my stead, as prior to catching covid-19 and suffering the…
Another option would be to pick up freelance work. This can often lead to fulltime employment, particularly when a company hires you for a short gig and you impress them.
For me, it's like the volume of my inner voice is decreased, and no sign of recovery after 2 years, though no significant cognitive function decline can be observed.
Just curious: Do you spend much time reading news, watching podcasts, or YouTube videos? I've noticed a similar thing in myself and I'm not sure if it's due to COVID or if it's because of this news addition.