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Night of the living brain fog dead or how I hacked myself better via open source

decodebytes.substack.com

61–70 of 334 posts

Re: Night of the living brain fog dead or how I hacked myself better via open source

#61

> Night of the living brain fog dead or how I hacked myself better via open source The use of "hacking" in the title is unfortunate, since it strongly brings to mind software engineers confidently loading up on weird supplements to do stuff like "boost intelligence" without much understanding of what they're doing. This article is very much not that, and is very sensible.

The article is more about hacking his medical system so he could move through the established process faster.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#62

Earlier quoted context omitted.

I read a book called Breath by James Nestor, it’s all about the benefits of nose breathing. Anecdotally this has completely fixed my sleep apnea/ snoring/ energy levels/ etc. Highly recommended!

Wait, people aren't breathing through noses?

I had to have my deviated septum surgically corrected back in my late teens before I was capable of breathing consistently through my nose. Even simple things like chewing with my mouth closed were difficult because I couldn't breath well enough with my nose only.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#63
post #26

In the US, the author would have had a sleep study done and it would have been diagnosed in a day. Do they not have those in the UK?

Isn't a full sleep study test pretty expensive in the US? I went to a sleep specialist once and the cost of a full overnight polysomnogram was nearly $3000. I opted for a much cheaper at home test from my GP. Showed no signs of sleep apnea but I worry about the accuracy compared to a full study.

I'm in US and took both a home test and overnight polysomnogram. Both were fully covered my by insurance. My current insurance is definitely not top of the line either

Re: Night of the living brain fog dead or how I hacked myself better via open source

#64
post #43

I find it somewhat odd that modern medicine don't screen for stuff like sleep apnea or ADHD (and similar). They're quite frequent (sleep apnea - 17% from the article, ADHD - 5-20% depending on the study) and impact peoples' lives quite severely both on quality and productivity fronts.

Both are expensive to diagnose. ADHD also has a problem in that a wrong diagnostic can harm people.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#65

"the National Health System have yet to even send me a letter" That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.

Considering how terrible sleep apnea is for the health, you would think that all healthcare systems and insurance companies would take it seriously. The costs of treating heart problems and stroke are much worse. But in practice it seems like no healthcare system puts in more effort than begrudgingly ordering a sleep test and then maybe a basic cpap after much hesitation. There are stories of people literally begging their doctors to give them a cpap.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#67
post #20

"the National Health System have yet to even send me a letter" That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.

You’re not wrong on the facts, but if you’re implying that we should not feel good about this story, I disagree. One crab has managed to climb out of the bucket. The rest of us should celebrate for a minute and then redouble our efforts to get everyone to the same place, leveraging the lessons he’s passed on. Upwards!

There's more to that. Building open medical devices and knowledge in general helps humanity as a whole.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#68

Earlier quoted context omitted.

Wait, people aren't breathing through noses?

I found that I have to consciously close my mouth and "tell myself" to breath only through my nose. When I do this i sleep better.

You sleep better by consciously breathing through your nose at night? Or during the day?

Re: Night of the living brain fog dead or how I hacked myself better via open source

#69

Earlier quoted context omitted.

He recognized the signs of sleep apnea and pursued treatment with sleep apnea devices, getting confirmation of the problem with the help of his doctor. The DIY part was largely related to pushing the process forward, not doing novel experimentation. Nobody would call that “anti-science”. Anti-science would be something like ignoring the common treatments and trying to solve the problem with natural supplements or som…

On the flipside, there are also a small selection of unproven treatments that work better than standard care.

Doctors do often recommend those - they just won’t touch anything that might requires FDA approval and doesn’t have it. I have indigestion issues and it’s my doctor who recommended a supplement with peppermint oil and castor oil. Worked like a charm for me. I had tried a whole suite of meds prescribed by my GP but the GI specialist went straight to the supplement.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#70

"the National Health System have yet to even send me a letter" That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.

Considering how terrible sleep apnea is for the health, you would think that all healthcare systems and insurance companies would take it seriously. The costs of treating heart problems and stroke are much worse. But in practice it seems like no healthcare system puts in more effort than begrudgingly ordering a sleep test and then maybe a basic cpap after much hesitation. There are stories of people literally begging…

I have cpap on the NHS. I got a quality machine, quality advice and quality follow up. It took a very long time to get it but the care itself was very good.
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