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Tl;Dw - Physics Girl, a popular science education YouTuber, is on an indefinite hiatus due to complications from long COVID resulting in chronic fatigue. The video has a lot more detail about the severity of her condition and her husband's efforts to care for her. Her friends are asking people to consider subscribing to her Patreon.
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Heh. Was that a clever one or am I seeing things?
The name does it little justice, and fatigue - while certainly pathological and disabling - is not the primary feature. The disease appears unique in terms of an abnormal response to exertion. This has been characterised via two-day cardiopulmonary exercise testing. Healthy controls and even those with other severely limiting diseases will show improvement on day 2, but ME/CFS uniquely shows a reduction on the second day.
Other key features are orthostatic intolerance with demonstration of reduction in cerebral blood flow in the majority on sitting/standing. Neurological symptoms including extreme sensitivity to light and sound explain her blindfold and ear protectors. Many have fluctuating cognitive slowing ("brain fog").
New insights into the metabolic derangements are being gained. Recently[1] evaluation of urine metabolomics demonstrated that healthy sedentary controls excrete many metabolites at 4 and 24 hours following an exercise challenge, while ME/CFS patients do not.
Apart from the devastating effects on patients and the economic impacts of losing so many from the workforce[2], I believe that understanding the immune and metabolic derangements underlying this condition will lead to major insights across many health domains.
[1] https://www.mdpi.com/1422-0067/24/4/3685 [2] https://www.nature.com/articles/s41579-022-00846-2
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which is here: https://www.patreon.com/physicsgirl
She has almost 9000 patrons, and is an already successful Youtuber / e-celebrity. I'm sorry for what's happened to her, but I sincerely think charity is better directed elsewhere (for example, a local org that helps disadvantaged families receive healthcare/resources).
Yes, there's value in supporting the things you said, but ~9k patrons to support a creator who isn't creating, and her husband, and her medical costs and andandand... that's not actually very much, especially if she lives in a major city in the US where rent is frequently ridiculous.
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Earlier quoted context omitted.
She has almost 9000 patrons, and is an already successful Youtuber / e-celebrity. I'm sorry for what's happened to her, but I sincerely think charity is better directed elsewhere (for example, a local org that helps disadvantaged families receive healthcare/resources).
methinks you underestimate just how bad health care costs are in the US, especially for entrepreneurs who tend to not be able to afford good insurance. On top of that, where's the money coming for rent, power, food, etc? Her husband is a full time caretaker now so... he's not bringing in anything. Yes, there's value in supporting the things you said, but ~9k patrons to support a creator who isn't creating, and her hu…
Mason Earle is a professional rock climber who also deals with this condition (since before Covid) and was featured on Death, Sex, and Money: https://www.wnycstudios.org/podcasts/deathsexmoney/episodes/...
How intensive rock climbing in terms of cardio load? It seems that cardio health was the biggest contributor to not getting serious Covid, seems surprising that an athlete would get this.
Earlier quoted context omitted.
She has almost 9000 patrons, and is an already successful Youtuber / e-celebrity. I'm sorry for what's happened to her, but I sincerely think charity is better directed elsewhere (for example, a local org that helps disadvantaged families receive healthcare/resources).
methinks you underestimate just how bad health care costs are in the US, especially for entrepreneurs who tend to not be able to afford good insurance. On top of that, where's the money coming for rent, power, food, etc? Her husband is a full time caretaker now so... he's not bringing in anything. Yes, there's value in supporting the things you said, but ~9k patrons to support a creator who isn't creating, and her hu…
Earlier quoted context omitted.
She has almost 9000 patrons, and is an already successful Youtuber / e-celebrity. I'm sorry for what's happened to her, but I sincerely think charity is better directed elsewhere (for example, a local org that helps disadvantaged families receive healthcare/resources).
methinks you underestimate just how bad health care costs are in the US, especially for entrepreneurs who tend to not be able to afford good insurance. On top of that, where's the money coming for rent, power, food, etc? Her husband is a full time caretaker now so... he's not bringing in anything. Yes, there's value in supporting the things you said, but ~9k patrons to support a creator who isn't creating, and her hu…
So yeah maybe 8,000 is enough now but maybe 1,000 was not :)
Earlier quoted context omitted.
methinks you underestimate just how bad health care costs are in the US, especially for entrepreneurs who tend to not be able to afford good insurance. On top of that, where's the money coming for rent, power, food, etc? Her husband is a full time caretaker now so... he's not bringing in anything. Yes, there's value in supporting the things you said, but ~9k patrons to support a creator who isn't creating, and her hu…
I beg your pardon but the cheapest tier on her patreon is $3 a month. Please do not try to tell us that $325k a year minimum is not enough.
Earlier quoted context omitted.
She has almost 9000 patrons, and is an already successful Youtuber / e-celebrity. I'm sorry for what's happened to her, but I sincerely think charity is better directed elsewhere (for example, a local org that helps disadvantaged families receive healthcare/resources).
methinks you underestimate just how bad health care costs are in the US, especially for entrepreneurs who tend to not be able to afford good insurance. On top of that, where's the money coming for rent, power, food, etc? Her husband is a full time caretaker now so... he's not bringing in anything. Yes, there's value in supporting the things you said, but ~9k patrons to support a creator who isn't creating, and her hu…