Hacker News Board Hacker News, browsed like a classic message board
Live data from Hacker News

Amit Gupta hasn't found a marrow transplant match; today's your last chance.

amitguptaneedsyou.com

Post reply on HN
Print view View original

61–70 of 247 posts

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#61

Post by burgerbrain »

cpher wrote: post #45
zasz wrote: post #35

Earlier quoted context omitted.

It costs money to sequence DNA and calculate someone's ancestry. 23andMe loses money whenever it sells a kit. Are you seriously too lazy to save a nonprofit a few hundred bucks by spending 1 second to indicate your race? Also, every time I buy something at a store, I have to give them my addresses. Including my phone number and a few extra ways to contact me in case I move, and you know, someone is dying and needs my…

Also, every time I buy something at a store, I have to give them my addresses. I hope you're kidding...

Many stores ask for it. Radioshack I believe is a prime example of this. I've never heard of them hassling you if you refuse however.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#62

Post by ken »

juiceandjuice wrote: post #23
SandB0x wrote: post #15

Can someone explain what the November 30 date means? Is there another treatment route they will try if they can't find a donor? How is the cut-off date chosen?

I think it has something to do with the data not showing up in the registry for 30 days and maybe the new year coming.

Shortly after I submitted my sample, I got an email that said:

"When the processing of your kit is complete, you will officially be listed on the Be The Match Registry. This process usually takes about two months, but the time can vary depending on the number of new members joining the registry each month."

so there is definitely some lag time involved.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#63

Post by freemarketteddy »

[deleted] wrote: post #57
freemarketteddy wrote: post #9

I am a south asian male living in the US.I tried to sign up as a donor.Here is my experience. >Your password needs to be between 8 and 15 characters long, must contain at least 1 number and 1 letter and cannot contain spaces. Seriously WTF....I am sure half of the people who wanted to sign up did not just for this bs! Okay chill...password abcd...... > In the past 5 years have you taken money or drugs in exchange for…

[deleted]

:)....By improving the signup workflow Amit and others who share the same plight will have a better chance at finding a donor....By taking 23andMe data from consenting 23andMe users this process will become so much better that potentially everyone will find a donor(not just famous people like Amit!)

Yes I am that asshole and the world is forced to become better to accomodate assholes like me...:)...peace!

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#64

Post by burgerbrain »

jarek wrote: post #51
freemarketteddy wrote: post #9

I am a south asian male living in the US.I tried to sign up as a donor.Here is my experience. >Your password needs to be between 8 and 15 characters long, must contain at least 1 number and 1 letter and cannot contain spaces. Seriously WTF....I am sure half of the people who wanted to sign up did not just for this bs! Okay chill...password abcd...... > In the past 5 years have you taken money or drugs in exchange for…

> (Men only) In the past 5 years have you had sex, even once with another male? If I was going through this process, I'd answer yes even if not true purely out of spite.

If you were going to do that, then why would you even bother with the form? You would just be wasting your time and theirs.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#65

Post by madao »

sax wrote: post #56

Here is a thought: Is there a correlation between bone marrow match and genetic closeness? If there is, it would be a good idea to specifically target people who are from the same community as Amit back in India as well as in the US. In Indian society, marriage is often within tightly knit communities. What if we track-down people who share second names with Amit's Father and Mother (maiden second name). Would then,…

Gupta is the English equivalent of Smith in India..

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#67

Post by blahedo »

cpher wrote: post #52
freemarketteddy wrote: post #9

I am a south asian male living in the US.I tried to sign up as a donor.Here is my experience. >Your password needs to be between 8 and 15 characters long, must contain at least 1 number and 1 letter and cannot contain spaces. Seriously WTF....I am sure half of the people who wanted to sign up did not just for this bs! Okay chill...password abcd...... > In the past 5 years have you taken money or drugs in exchange for…

In the past 5 years have you taken money or drugs in exchange for sex?.. (Men only) In the past 5 years have you had sex, even once with another male? In the U.S., if you donate blood you are always asked this question, so this is completely acceptable. Do you really want the donation pool potentially contaminated by the HIV virus?

> Do you really want the donation pool potentially contaminated by the HIV virus?

This is FUD. Gender of partner as an HIV risk factor is now much less predictive than a number of other risk factors that they do not check for; it is especially insulting to monogamous couples whose HIV risk is negligible. (The Red Cross is especially odious in this regard, as they are still asking this question not as "in the past 5 years", but iirc "since 1978", which is absurd.)

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#68

Post by namidark »

cpher wrote: post #45
zasz wrote: post #35

Earlier quoted context omitted.

It costs money to sequence DNA and calculate someone's ancestry. 23andMe loses money whenever it sells a kit. Are you seriously too lazy to save a nonprofit a few hundred bucks by spending 1 second to indicate your race? Also, every time I buy something at a store, I have to give them my addresses. Including my phone number and a few extra ways to contact me in case I move, and you know, someone is dying and needs my…

Also, every time I buy something at a store, I have to give them my addresses. I hope you're kidding...

Thats when you give them the address: "123 Biteme Street" (pronounced Biteeem)... Or just tell them no

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#69

Post by sax »

madao wrote: post #65
sax wrote: post #56

Here is a thought: Is there a correlation between bone marrow match and genetic closeness? If there is, it would be a good idea to specifically target people who are from the same community as Amit back in India as well as in the US. In Indian society, marriage is often within tightly knit communities. What if we track-down people who share second names with Amit's Father and Mother (maiden second name). Would then,…

Gupta is the English equivalent of Smith in India..

I am from the sub-continent. What you said is actually a good thing. There are lots of Guptas (and Vermas and Sharmas and other north-indian surnames).

In India Guptas marry other Guptas (or Sharmas or Vermas or other surnames, BUT there is marriage within the community).

This is not true for Smiths in any part of the world.

Re: Amit Gupta hasn't found a marrow transplant match; today's your last chance.

#70

Post by homosaur »

[deleted] wrote: post #57
freemarketteddy wrote: post #9

I am a south asian male living in the US.I tried to sign up as a donor.Here is my experience. >Your password needs to be between 8 and 15 characters long, must contain at least 1 number and 1 letter and cannot contain spaces. Seriously WTF....I am sure half of the people who wanted to sign up did not just for this bs! Okay chill...password abcd...... > In the past 5 years have you taken money or drugs in exchange for…

[deleted]

The guy did complete the registration. If he wants to complain about the design of the site and the fact that it's unclear why they want certain information, that's legitimate because it actually could be an impediment to people signing up, despite your disapproval. Is it appropriate on HN comments instead of actually sending an email to the guys who run the website? Probably not.
Post reply on HN