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Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

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Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#61

My first words would be "kill me" but I wonder if that would be considered reliable legal communication

I think the patient would have expressed their wishes long before the breakdown of communication in this kind of degenerative disease.

I'm pretty sure you have to put it in writing, something I need to think about in case of an accident that leaves me locked in.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#62
post #28

Earlier quoted context omitted.

Sleep paralysis is scary. I haven't had it in 30 years, but I remember how shocking it was the first time. Curiously, in my case I also remember distinctly giving up and thinking "well alright, guess I'm going to die, wow" and being calm about it. Then the paralysis wore off.

I have sleep paralysis every night when I try going to sleep, and in the mornings when I try to wake up. Normally a few times in a row. I don’t sleep much because of it.

Wow, that sucks fiercely. I can't imagine dealing with that on a regular basis. Every night! I wouldn't sleep much either. Damn.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#63

This is Ouija board pseudoscience until proven otherwise. The scientist behind it is already disgraced. If there is any element of "assistance" in interpreting the locked-in patient's brain waves, the wishful thinking of the assistant likely fudges the results to create a fake message, exactly like an Ouija board. Scams like this pop up every few years, preying on desperate, sad people. See "facilitated communication…

It's been years since I looked into this stuff. I remember a story about someone with locked-in syndrome using eye-blinks to communicate letter-by-letter, or with yes/no answers. I remember they purportedly wrote a book. Was that also discredited? Is there any standing evidence of communication by the locked-in?

the existing state of the art is called the "p300 speller" and i believe it's been around for decades.

the user has a screen in front of them where the alphabet is cycled through at about 0.5 ch/s. scalp electrodes detect a signal associated with novelty or surprise allowing the user to spell out communications, very slowly.

edit: the cycling is in random order, thus exploiting the p300 surprise signal when the right character is highlighted. there's also some manipulation of spatial location to enhance the evocation of the signal.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#64

This is Ouija board pseudoscience until proven otherwise. The scientist behind it is already disgraced. If there is any element of "assistance" in interpreting the locked-in patient's brain waves, the wishful thinking of the assistant likely fudges the results to create a fake message, exactly like an Ouija board. Scams like this pop up every few years, preying on desperate, sad people. See "facilitated communication…

The parent comment is a fabrication. They provide no evidence of these events, while the OP provides extensive evidence to the contrary.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#65

Earlier quoted context omitted.

There are over a dozen people involved with this, disregarding them all because of one controversial incident with one of them feels a bit extreme. In terms of methodology it does not strike me as very Ouija boardy as all patient input is in the form of Yes/No responses [0]; > We also validated the Yes/No responses in a question paradigm, in which the answers were assumed to be known to the patient. > Finally, in an…

Yeah, less than half of sessions yielded "intelligible" output. From that, we learn that there's indeed an element of interpretation, as was seen with Koko the gorilla and the claims that she could talk, when in fact she was just spouting gibberish that her handlers would interpret. I anticipate more scientists are going to become disgraced as this study is scrutinized by peers. But, hey, I hope I'm wrong. It would i…

> Yeah, less than half of sessions yielded "intelligible" output. / From that, we learn that there's indeed an element of interpretation ...

The first doesn't infer the second. It infers the opposite: They are eliminating unintelligible results.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#66

Earlier quoted context omitted.

There are over a dozen people involved with this, disregarding them all because of one controversial incident with one of them feels a bit extreme. In terms of methodology it does not strike me as very Ouija boardy as all patient input is in the form of Yes/No responses [0]; > We also validated the Yes/No responses in a question paradigm, in which the answers were assumed to be known to the patient. > Finally, in an…

> There are over a dozen people involved with this, disregarding them all because of one controversial incident with one of them feels a bit extreme. One controversial incident? This is an extremely common type of scam. There's always somebody claiming they can speak to your comatose or deceased loved one, and they're always scamming you. No, the coma communicators aren't more reliable than the ghost communicators. N…

> There's always somebody claiming they can speak to your comatose or deceased loved one

That's a common scam? Where is that documented?

Even if it is, this report has evidence to the contrary.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#67

This is Ouija board pseudoscience until proven otherwise. The scientist behind it is already disgraced. If there is any element of "assistance" in interpreting the locked-in patient's brain waves, the wishful thinking of the assistant likely fudges the results to create a fake message, exactly like an Ouija board. Scams like this pop up every few years, preying on desperate, sad people. See "facilitated communication…

It's been years since I looked into this stuff. I remember a story about someone with locked-in syndrome using eye-blinks to communicate letter-by-letter, or with yes/no answers. I remember they purportedly wrote a book. Was that also discredited? Is there any standing evidence of communication by the locked-in?

The Diving Bell and the Butterfly. That wasn't discredited. They were able to blink, and using a second person reciting the alphabet he dictated his book

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#68

My first words would be "kill me" but I wonder if that would be considered reliable legal communication

It might surprise you, but most people with locked in syndrome are not depressed and have a will to live. One man with locked in syndrome even wrote a book, which later became a movie. People are stronger than they can imagine

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#69
post #67

Earlier quoted context omitted.

It's been years since I looked into this stuff. I remember a story about someone with locked-in syndrome using eye-blinks to communicate letter-by-letter, or with yes/no answers. I remember they purportedly wrote a book. Was that also discredited? Is there any standing evidence of communication by the locked-in?

The Diving Bell and the Butterfly. That wasn't discredited. They were able to blink, and using a second person reciting the alphabet he dictated his book

The science behind not, but the movie was discredited. It was a whitewash by his ex-wife over his girlfriend. The director fell for it. excellent movie though, even if you cannot trust anything the wife said.

Re: Completely Locked-In Patients Can Communicate, Thanks to a Brain Implant (BCI)

#70

How do they get a locked-in patient to consent to the surgery? It's interesting that the "audio" approached worked. There are people who believe that listening to sounds at various "brainwave frequencies" (alpha, beta, etc.) can cause your brain to enter the states associated with them. While intriguing, I thought it was probably nonsense. Well, maybe not....

they cannot. that's why it's a big ethical outcry also. it's a pretty invasive operation.

but practically let the relatives decide, and when the patient can communicate, check the consent later. or find patients which can consent before losing communication.

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