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Suicide hotline shares data with for-profit spinoff, raising ethical questions

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61–70 of 71 posts

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#61
post #4

This is quite disgusting. If there is one place where your privacy should be guarded it is there, plenty of places will forcibly admit you (at huge costs) if they see you as a suicide risk.

> plenty of places will forcibly admit you (at huge costs) if they see you as a suicide risk How's that legally done? Is suicide even a crime in most countries? I don't think it is.

Illegal stuff happens.

Shocking, I know.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#62

Earlier quoted context omitted.

Incarceration over cannabis is already seen as embarrassing. Mental health care overall, but especially drug addiction will be looked at as positively medieval. The barriers to treatment for ADHD. The disastrous state of treatment for people, but especially women with autism. Hell, the way women are treated by some mental health professionals, it might as well still be the dark ages where hysteria was considered a va…

> The barriers to treatment for ADHD. The disastrous state of treatment for people, but especially women with autism. I'm going to put "treatment" in huge quotes. Do these people need treatment or do they need society to stop bothering them and accept them the way they are?

I've walked away from tasks for a second and completely forgotten about them. I don't absorb training and can't hold a job. I've made it through about two books in my adult life. All of my programming projects end somewhere between the initial idea and the first problem I have real trouble with.

What does any of that have to do with society bothering or accepting me?

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#64

Earlier quoted context omitted.

When reddit added a "get help" message for suicide hotlines it was a way for 'nice' people to tell you to kill yourself without a death threat. Kind of how old church ladies used to tell you they will pray for your immortal soul to not end in hell. I have a feeling that those two groups are related in the biological sense.

How is telling someone to KTS a death threat?

The same way "Will no one rid me of this troublesome priest?" was.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#65
post #5

Two sentences in that piece are particularly amazing taken together: >"Data science and AI are at the heart of the organization — ensuring, it says, that those in the highest-stakes situations wait no more than 30 seconds before they start messaging with one of its thousands of volunteer counselors [...]" >"Others questioned whether the people who text their pleas for help are actually consenting to having their data…

AI power text line for suicide seems horrible to me. Every time I am hit customer support and need to face AI first my stress level increases. AI powered virtual assistant seems like the worst thing that happened to customer support in the recent decade. Every time I listen to a presentation by some exec how introduction of AI assistant improved some performance metric of a customer support dept, I actually feel bad for customer and for tech industry, that helped bring this change closer.

> can we go any lower?

They can always offer estate planning services right there in the chat. I bet some lawyers would jump on this ad placement opportunity.

> There is only one legitimate way to handle data here, for law enforcement or medical professionals, otherwise delete it.

What about research? It would be hard to navigate and share it responsibly even with research facilities, but it is a very legitimate use case and potentially useful.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#66
post #34
post #29

Earlier quoted context omitted.

Just wanna say thank you for your work.

Thank you, ketzo. Unfortunately I'm no longer with the org and can't say for sure that they wouldn't ever try to do something like this. I'm working with a new group now on open source peer support software that also values privacy.

That is an excellent qualification to make. You only know as much as you've seen and what happens after you turn your back is hopefully more of the same or better but that is no guarantee. Kudos for seeing this sharp.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#67
post #4

This is quite disgusting. If there is one place where your privacy should be guarded it is there, plenty of places will forcibly admit you (at huge costs) if they see you as a suicide risk.

Whenever someone says that you should trust psychiatrists and the huge number of other similar professions I just point out that forcible admission is not rare and that they will share anything that they deem a 'risk', such as "I will shoot John if he chews with his mouth open one more time." If you want to get someone to listen to your problems without telling them to anyone you can't do better than the catholic chu…

Thats thinking outside the box though probably not good advice. I've been to more confessions that I can remember. I can tell you the vast majority of priests are going to mostly keep the topic to religion and joining the church and working on your relationship with god/praying. If you are suicidal this probably is not going to help in any meaningful way.

I suppose you can probably find a priest that is willing to talk but that may take some time and eventually they are going to start cold shouldering you if you don't join the church.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#68
post #56

Since when did making profits become unethical? What is unethical is giving away traceable customer information like phone numbers or locations of the texts. I certainly hope all that data is stripped. Otherwise then yeah it's unethical

> when did making profits become unethical? It's literally a nonprofit. If they earn a profit or facilitate some other profit earning enterprise it is unethical, by definition. In a just world it would also be illegal and prosecuted.

I hate to burst your bubble but even nonprofits have to make profits (aka money) to stay afloat and pay bills and "get the word out". If you want to argue over accounting terms rather than the popular sense of the word then you probably have the wrong debater as I don't argue over edge case semantics on HN, I leave that for other nerds.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#69
post #49
post #31

Earlier quoted context omitted.

Not most countries, but it is illegal in some... see: https://en.wikipedia.org/wiki/Suicide_legislation In NZ I do know the cops like to kick you when you're down. Let's say you've climbed a scaffold that's around a building and you want to jump but you are saved (as you had been on the phone with a suicide help line, and they passed the details to the Police), you get done with a trespass charge and can be convicted…

Many cultures have a long, ingrained history of making suicidal people's lives intentionally worse as a misguided attempt to discourage suicides. A book that discusses this phenomenon that I found helpful was Al Alvarez' book "The Savage God"; Alvarez was a friend of Sylvia Path, who felt compelled to explore the issue in terms of the narratives we tell ourselves and each other about it. In Western Christian countrie…

I didn't know that about Māori actually, and I am one... heh.

Those universities you mention really need to take a hard long look at themselves because that's just fucking disgraceful. Jeez.

Re: Suicide hotline shares data with for-profit spinoff, raising ethical questions

#70
post #56

Earlier quoted context omitted.

> when did making profits become unethical? It's literally a nonprofit. If they earn a profit or facilitate some other profit earning enterprise it is unethical, by definition. In a just world it would also be illegal and prosecuted.

I hate to burst your bubble but even nonprofits have to make profits (aka money) to stay afloat and pay bills and "get the word out". If you want to argue over accounting terms rather than the popular sense of the word then you probably have the wrong debater as I don't argue over edge case semantics on HN, I leave that for other nerds.

Does anyone apart from Crisis Text Line benefit financially from Loris? If so it's clearly unethical. Even ignoring the kind of service that CTL is and the extra ethical considerations that entails, the founders of and investors in Loris are using the work of volunteers at a non-profit to bootstrap a company that they will profit from without clearly explaining this to the volunteers and users of the service in advance. Evidently not illegal, but pretty clearly unethical.

Not to mention that they've said that Loris hasn't reached the contractual threshold to actually pay any money to CTL yet...

Edit: Even if it is CTL taking all of the profits from Loris I would consider that unethical without clearly informing everyone involved of how the data from the interaction would be used, and a 50 paragraph privacy statement doesn't count as "clear"

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