As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…
> ...some foe personified. > ...make sure he doesn't think he lost anything While I have vast respect for those that can have a different viewpoint, I'm not sure I'd be able to look on it as anything but an intensely personal attack from the universe that definitely takes things - notably, a future - away from me. With time I might find the wisdom to feel otherwise. But time is what would be taken away.
Leukemia Has Won
61–70 of 196 posts
Re: Leukemia Has Won
#62Godspeed. Thank you for sharing your stories. For anyone reading here, one way to donate in general is The Leukemia & Lymphoma Society: https://www.lls.org/ LLS funds blood cancer research, education and patient services. You may know of LLS because of its annual fundraiser event known as “Light the Night” and its fitness initiatives “Team in Training“.
I'd like to add one other important (free!) way you can help: Sign up to be a marrow donor. In the US, here: https://bethematch.org Alex mentioned graft-vs-host disease. When you get a marrow transplant, the better the match, the more likely you are to survive. The bigger the database, the better chance of a good match. Seven years ago I lost a good friend to non-hodgkin's lymphoma. Cancer sucks.
Re: Leukemia Has Won
#63Earlier quoted context omitted.
I was diagnosed with lymphoma about 8 years ago. It's been undetectable since six months later, and I haven't had any treatment since the three years of chemo ended, but that's not to say it won't return. I've always disliked the "winning/losing" paradigm, and also terms like "struggle" and "battle". To me, they all imply that there was or is something that I personally could have done to change the outcome. If I had…
My stepmother died of cancer last year and asked that her obituary refer to her "long negotiation with cancer" instead of "long battle with cancer", I think because she also disliked the "battle" and "struggle" notion for similar reasons.
Re: Leukemia Has Won
#64As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…
No. Everything about that article is infuriating. We are fighting an enemy. Again and again we lose. The patient loses, the care team loses, the doctors lose, the family loses, the whole of humanity loses. You have to believe you can win to continue to fight and you do have to fight quite literally with family, with friends, with yourself. But more generally we as a society have to be able to recognize an enemy and a…
Re: Leukemia Has Won
#65Earlier quoted context omitted.
There's a terrific book called "Tell them who I am." It was written, I think, in the last year of the life of a man dying of cancer. He wanted to spend his final days doing something meaningful. It's about the lives and identities of homeless women at shelters where he volunteered. I am sympathetic to your rage. I wish I knew how to help such people. But I don't. Death comes for us all, sooner or later, one way or an…
> Death comes for us all, sooner or later, one way or another. That's one of the few truisms in life. I'm genuinely making an effort to understand how this is relevant to someone with a cancer diagnosis. Sure, dead comes sooner or later, and that's the whole point of why one would feel it sucks and that we're losing, because often cancer means for you, dead came way too early. I have not known anyone with cancer, but…
Death is a construction to make sense of our physical reality.
Re: Leukemia Has Won
#66Earlier quoted context omitted.
No. Everything about that article is infuriating. We are fighting an enemy. Again and again we lose. The patient loses, the care team loses, the doctors lose, the family loses, the whole of humanity loses. You have to believe you can win to continue to fight and you do have to fight quite literally with family, with friends, with yourself. But more generally we as a society have to be able to recognize an enemy and a…
Fighting implies you died because you didn't fight hard enough.
Re: Leukemia Has Won
#67Re: Leukemia Has Won
#68As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…
Re: Leukemia Has Won
#69Earlier quoted context omitted.
This is a question coming from complete layman. In fact, I'm ashamed to ask such a stupid question. But I'm still curious: > Is said that you can remove 2/3 of the liver and the remain cells will regenerate a complete liver in only 2 weeks. Does this mean it's possible for one to donate liver (say, half a liver) and live like nothing happened (except a scar)? Then why don't everyone donate their liver like this? Why…
You can donate part of the liver, but it isn't "like nothing ever happened". This followup[1] of donors from 2011 found that 53% suffered long-term complications (though 93% would have gone through with it again). Notably missing from those stats is the percentage of donors who died after donation, either due to direct effects, indirect effects, or totally unrelated things. Donating one of your two kidneys is maybe a…
https://news.ycombinator.com/item?id=12629724 <-- Here's an HN post I remember about donating kidneys
Re: Leukemia Has Won
#70As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…
https://www.theguardian.com/society/2014/apr/25/having-cance...