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Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

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Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#61

My wife (oral surgeon) says the only real solution to sleep apnea is surgery. CPAP machines to her and bunk. I believe she moves the jaw forward to help open up the airway. Whatever works I guess.

If you ask a surgeon if your problem should be solved by a surgery in their specialty, you are more likely to get a "yes" than you should. There is definitely a confirmation bias there, tending to see patients for which surgery is necessary instead of a fair sample of those afflicted.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#62

In the past, the CPAP machines my wife and I used needed to be programmed in various ways, and they had separate data cards as described. The ones we got a couple of months ago are completely dynamic, they aren't pre-configured in any meaningful way. Also, they send their collected data up to 'the cloud' over a cellular network, where we can view the data, in some detail, with our web browser, as authenticated by a c…

Agreed. I have a ResMed that uploads the data daily over the cell network and then can view the data in a smartphone app. Like the article mentions it's not terribly detailed but it does show me data like my AHI, and how it has dropped dramatically since using the device.

Good enough for me.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#63

Why is it so hard for people to write posts like this without all the bias. Saying things like, “Everybody is trying to get you in and out the door, and take some profit from your pocket.” and "He agreed that most sleep apnea patients around the world are underserved: “Doctors don’t listen and don’t have time anywhere in the world.”" just makes the whole thing feel like a snake oil salesman at work. Saying it without…

You want them to present a solution to a problem without implying that the problem exists? That seems like an unrealistic thing to ask for.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#64
post #50

Earlier quoted context omitted.

Just to be clear, sleep apnea causes organ damage. I had oxygen levels dipping to 71% in my sleep study. It was enough to dramatically affect my cognitive abilities and took months of CPAP therapy to recover from. I'm 43, relatively fit, and don't have a history of snoring. If you have excessive daytime sleepiness, confusion, and difficulty thinking, get checked ASAP. Fortunately you can reverse the damage: https://a…

> If you have excessive daytime sleepiness, confusion, and difficulty thinking Ive always wondered and never found data: do you have an idea of how many people with these symptoms get prescribed mental disorder medicines from not knowing the real root cause? I can picture this stuff being misdiagnosed pretty hard by some practitioners.

I don't know what the statistics are, but they definitely tried this with me. Aside from the usual sleepiness and confusion, sleep apnea can also cause anxiety. (No wonder, you're basically running on cortisol by the time it gets bad enough to notice.)

I don't fit the standard profile for someone with sleep apnea, so they pushed anxiety meds pretty hard on me. Had to insist on a sleep apnea test.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#65
post #23

I have to adjust my own pressure as well, since I can't afford to do another sleep study (American Healthcare rocks!). The biggest difference in my sleep came from when I purchased a machine that auto adjusts based on what you need, so no one could lock me out from getting the best healthcare possible.

I know I suffer from sleep apnea (poor sleep quality, relatives have noticed me stop breathing for brief periods while asleep, loud snoring) but I literally cannot bring myself to get a sleep study done because I know it's not going to be cheap, and to top it off I don't even know how expensive it's going to be in the first place.

It's not like I can't afford to pay either, I do have some money stashed in my HSA but when I'm trying to get to a point where I have a full years deductible in it to cover a true emergency it's a bit of a gut punch to suddenly take $X00-$1X00 out to wear a device and then have a technician analyze the data from it.

All of this is why my first step right now is to keep losing weight, because I know weighing 230lbs as a 5'10" male isn't helping me at all either.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#66

My wife (oral surgeon) says the only real solution to sleep apnea is surgery. CPAP machines to her and bunk. I believe she moves the jaw forward to help open up the airway. Whatever works I guess.

My fiancee is a sleep specialist nurse practitioner and would say the opposite, that most people don't need surgery and a majority of sleep apnea can be resolved with a CPAP.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#67

My wife (oral surgeon) says the only real solution to sleep apnea is surgery. CPAP machines to her and bunk. I believe she moves the jaw forward to help open up the airway. Whatever works I guess.

Moving the jaw forward is highly invasive surgery that is hard to recover from. Another surgery, the "UPPP" is also very invasive and has a much lower success rate than CPAP.

CPAP is by far the best solution for most obstructive sleep apnea patients.

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#68
I did read an article early this year where an individual died on a camping trip as he was not carrying his CPAP. So, yes, it does vary for each individual but sleep apnea can be deadly.

Also, I cannot recommend enough anyone showing any symptoms of sleep apnea to get it checked out. I started using CPAP just over 2 years ago now and it has been a life changing experience, even though the study suggested only a 'Mild case of Sleep Apnea'. I don't think the years of damage is completely recovered yet, but day to day difference when using the CPAP while sleeping is quite amazing.

Hadn't ever thought I would say 'So that's what it feels like to be fresh and energetic through the day!' but I did. :)

Re: Why Sleep Apnea Patients Rely on a CPAP Machine Hacker

#70

My wife (oral surgeon) says the only real solution to sleep apnea is surgery. CPAP machines to her and bunk. I believe she moves the jaw forward to help open up the airway. Whatever works I guess.

Doesn't weight loss help many patients improve?

OSA can be caused by many factors. Weight is only one. I'm skinny and I'd be dead without CPAP.
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