Live data from Hacker News

Why I left my tech job to work on chronic pain

sailhealth.substack.com

51–60 of 249 posts

Re: Why I left my tech job to work on chronic pain

#51

As someone who had years of undiagnosable pain and after many years (and more than one doctor trying to suggest it was all in my head) I just want to say to anyone reading who has it - Don’t let yourself be gaslit that it’s all mental. It seems some do have that, but there are also many hard to diagnose and completely valid physical health conditions that cause terrible chronic pain. And don’t give up on trying to fi…

> Don’t let yourself be gaslit that it’s all mental.

I agree, though this is a very difficult subject. Often, the people who would benefit the most from psychosomatic interventions are often the most resistant to accepting those explanations. Meanwhile, many of the physical chronic pain sufferers I know have desperately tried various mind-body programs (without success) because they will try anything that might help.

If people match the description of the author of this post and blog, where the pains are widespread, vague, and popping up around different parts of the body without explanation then you really should explore psychosomatic explanations like this author did.

However, I’m growing weary of the trend of people who fit this description starting newsletters they want you to subscribe to (like this one), writing apps they want you to download/buy, and making comments implying that they know better than doctors about chronic pain (while putting an obligatory “not a doctor” disclaimer juxtaposed to their comments complaining that doctors don’t know what they know). I think it’s great when people share their experience, but it’s getting tiresome to see it productized and generalized as a more universal explanation.

EDIT: Another trend in this space is to productize by building an audience (please subscribe to my Substack) and then introduce the monetization plan later: A subscription app, an e-book, a partnership with some product. It’s possible this person organically decided to quit their job, sell their house, and focus on writing a no strings attached Substack blog series to share information. However, I’ve seen this play out across enough health influencers that I recommend everyone stay cautious about people who claim to hold some information that will change your life but they need you to subscribe first. Be careful.

Re: Why I left my tech job to work on chronic pain

#52

I’ve been dealing with chronic reflux for about 8 mos now. On PPIs and they don’t seem to do much. But once I get away from my typical routine of work/dadding then all the symptoms vanish, even to the point of being able to eat foods that are not good for reflux: spicy things, tomatoes, a bit of coffee. In my case, this is absolutely a downstream symptom of something mind-body. Already been scoped and got a diagnosis…

I had this for about a year, and it really only went away when I quit my job. It wasn't even a particularly demanding job, but I guess the lifestyle + the fact that I felt I was wasting my life away might have played a role. Nothing else is really different.

Re: Why I left my tech job to work on chronic pain

#53
post #49

Earlier quoted context omitted.

> In this case, docs just don’t know why. (I think it kinda pisses them off not know, tbh). And finding out is not really in their wheelhouse. Chronic reflux as a symptom is almost always initially treated by PPIs because the cause among white collar workers is assumed to be chronic stress[1]. Since doctors can't "treat stress" only its symptoms, they will just tell you to try and manage stressors in your life yourse…

Western medicine “can’t treat stress” but Eastern medicine definitely claims to be able to. But then so do various nebulous “alternative medicines”. Another comment mentioned deep meditation as being effective, and I believe there are a number of studies that have shown it to have actual effect. I’ll add another tried and true stress cure but with a twist. Exercise has consistently been shown to help reduce stress, b…

> Western medicine “can’t treat stress”

This is false. Therapy is designed to do just this and it’s readily available in different modalities that have been trialed and studied. You can book an appointment with a therapist today and start working on techniques to build stress resilience and stress handling techniques

> but Eastern medicine definitely claims to be able to. But then so do various nebulous “alternative medicines”.

Much of the allure of so-called Eastern medicines is the feeling that it’s ancient, semi-secret knowledge that is mysteriously superior to modern medicine. There are a lot of herbal medicines that kind of do something, but the effects are small and often prone to rapid tolerance build up and side effects. A large part of the efficacy is getting the patient to believe that the medicine and/or practices are a cure for their ills. Feeling like you’re tapping in to a mysterious ancient solution to stress will encourage a very strong placebo effect, which can actually reduce the stress.

Similarly, when we do randomized trials of medicines for depressive disorder it’s incredible how much the placebo group improves. When people have been told they’re receiving a treatment, it usually helps to some extent even if the treatment does nothing at all!

Re: Why I left my tech job to work on chronic pain

#54

I’ve been dealing with chronic reflux for about 8 mos now. On PPIs and they don’t seem to do much. But once I get away from my typical routine of work/dadding then all the symptoms vanish, even to the point of being able to eat foods that are not good for reflux: spicy things, tomatoes, a bit of coffee. In my case, this is absolutely a downstream symptom of something mind-body. Already been scoped and got a diagnosis…

https://pmc.ncbi.nlm.nih.gov/articles/PMC9550520/

This exercise fixed it for me. I was diagnosed with GERD last year, I already had it for 2-3 years before that, but it got worse last year. I got ppis for a couple of months and when I finished all of them it came back worse. Fortunately I found this article, and I started doing the exercise daily morning after I woke up(and still do it). I can now eat tomatoes, food with mint, spicy food etc etc :) I have shared my experience with others and it helped them too

Edit - Changed the link, had posted something else by mistake

Re: Why I left my tech job to work on chronic pain

#55

I recently decided to go all in on addressing chronic pain - a condition which affects an estimated 1/5 adults in the US[1] and nearly the same proportion in my country of Australia. This is the first of several blog posts exploring this invisible condition. If you're passionate about this space feel free to reach out, thanks! [1] https://www.cdc.gov/mmwr/volumes/72/wr/mm7215a1.htm [data from 2021] - [Edit] Thanks so…

Hi Dan, I wanted to share a few links to articles on pain and circadian rhythms that I wrote during my PhD. Would love to connect if you have any questions.

[0] Circadian rhythms and pain: https://www.sciencedirect.com/science/article/abs/pii/S01497...

[1] The disruptive relationship among circadian rhythms, pain, and opioids: https://www.frontiersin.org/journals/neuroscience/articles/1...

[2] Circadian rhythm disruption exacerbates pain behavior in male mice: https://www.sciencedirect.com/science/article/abs/pii/S03064...

Re: Why I left my tech job to work on chronic pain

#56

As someone who had years of undiagnosable pain and after many years (and more than one doctor trying to suggest it was all in my head) I just want to say to anyone reading who has it - Don’t let yourself be gaslit that it’s all mental. It seems some do have that, but there are also many hard to diagnose and completely valid physical health conditions that cause terrible chronic pain. And don’t give up on trying to fi…

> Don’t let yourself be gaslit that it’s all mental. I agree, though this is a very difficult subject. Often, the people who would benefit the most from psychosomatic interventions are often the most resistant to accepting those explanations. Meanwhile, many of the physical chronic pain sufferers I know have desperately tried various mind-body programs (without success) because they will try anything that might help.…

> and making comments implying that they know better than doctors about chronic pain (while putting an obligatory “not a doctor” disclaimer juxtaposed to their comments complaining that doctors don’t know what they know).

I am not claiming to know better than doctors whom are proficient in pain science/medicine.

Rather, that most doctors are not adequately educated on this topic. If you ask the average doctor they will tell you how little it is taught in most medical education programs. Case in point, most pain sufferers will tell you how many doctors they had to bounce between before they finally got some answers/direction (if they were lucky).

FWIW I was preparing for two months this year after I left my job to sit the Australian med school entry exam. Ultimately, I decided I would be able to help more people today, with tools readily available (including a computer and substack) than spending the next decade of my life preparing for a medical career.

I would consider amending that part of my post to say something more narrow like "Not a pain doctor", but it seems more straightforward as it is now.

Re: Why I left my tech job to work on chronic pain

#57
I’ve been struggling with chronic pain for almost eight months. It started when my orthodontic treatment caused the root of one of my teeth to break—it had already been weakened from a previous injury. The extraction was straightforward and only took 10 minutes, and I had an implant placed (with a temporary crown attached to my braces). Healing went smoothly, and the CT scans looked fine.

But soon after, I developed constant headaches that never went away. At first, I assumed they were related to the procedure, but everything had healed well, and multiple check-ups didn’t reveal anything. Since then, my braces have been removed, but the daily headaches persist. Occasionally, I also feel a strange “foreign object” sensation around the implant site.

A follow-up CT scan of the implant showed perfect integration with the bone. I’ve also had other tests done, including a head MRI. Medically, everything appears normal.

It’s getting really hard to manage—painkillers don’t help at all. Has anyone experienced something similar or have any idea what to try next? I’m even considering having the implant removed, despite there being no medical reason for it.

Re: Why I left my tech job to work on chronic pain

#58
“As pain becomes chronic, it is increasingly associated with activity in the affective and motivational systems tied to avoidance and less closely tied to systems encoding nociceptive input” [1]

I’ve been on the slippery slope of chronic pain. Minor post surgery issues caused me to change my routine and avoid certain activities which only exacerbated the issues, which led to more avoidance. Eventually I couldn’t walk.

The American medical system is very focused on avoiding health issues that show up on mri, rather than quality of life health. But quality of life issues quickly become serious.

I think the middle ground of activity: not all out intense as if you are healthy, but also not avoiding movement is so challenging to find for many people but also so crucial. A lot of chronic pain for myself and I suspect for many others could be avoided with short and quick combination of therapy and daily movement. So simple but so challenging to effectively identify and allocate resources.

Not suggesting this is the total solution but it’s the pathway that I took to return to activity and I’ve seen it help a number of my friends as well.

[1] https://pmc.ncbi.nlm.nih.gov/articles/PMC8482298/

Re: Why I left my tech job to work on chronic pain

#59

I’ve been dealing with chronic reflux for about 8 mos now. On PPIs and they don’t seem to do much. But once I get away from my typical routine of work/dadding then all the symptoms vanish, even to the point of being able to eat foods that are not good for reflux: spicy things, tomatoes, a bit of coffee. In my case, this is absolutely a downstream symptom of something mind-body. Already been scoped and got a diagnosis…

I had this for about a year, and it really only went away when I quit my job. It wasn't even a particularly demanding job, but I guess the lifestyle + the fact that I felt I was wasting my life away might have played a role. Nothing else is really different.

Most people are familiar with the Peter Principle where it talks about people rising to their level of incompetence.

But I think there's still plenty more that makes it worth a read. For example, something along the lines of, sometimes a man will pop an antacid and lament that their illness is negatively affecting their work, when in fact the causality is exactly reversed

Re: Why I left my tech job to work on chronic pain

#60
post #31

Earlier quoted context omitted.

Amazing, I'll take a look at it. Thanks!

Another option for this is Bearable. I used it for headaches a while ago and it worked well: https://bearable.app/ Here’s an actual peer reviewed study evaluating a pile (over 1000!) symptom tracking apps, including Bearable. https://www.sciencedirect.com/science/article/pii/S245210942...

I've been using Bearable too. It's great and price is awesome, but data entry is so slow
Post reply on HN