Live data from Hacker News

I have tinnitus. I don't recommend it

blog.greg.technology

51–60 of 233 posts

Re: I have tinnitus. I don't recommend it

#53
post #48
post #42

Earlier quoted context omitted.

I feel you, but I also think you don't need to buy special equipment, they might ignore anyway. To get a rough reading, your smartphone can provide that data via app. Then you would have some numbers you can tell official people - and then they can measure again with calibrated eqipment if in doubt.

Is there an app you'd recommend? (PhyPhox on my phone says it wants to be "calibrated" against one of those meters, but I haven't checked how accurate it is without that.)

Unfortunately not. I tried it out one time, but don't remember the name. But there are many and the basic functionality should be the same.

Re: I have tinnitus. I don't recommend it

#55
Tinitus is misfiring nerves firing along the path somewhere from ear cochlea to cortex. From your description there is pain and discomfort for high frequencies also, it's not just a pure ringing that might even favor 1 ear? I did some research for a novel ( https://www.youtube.com/watch?v=mtxgpaXp9vA&t=4697s ) and learned that hearing is not too hard to understand, but it's mysterious in its perfection and a Job Well Done in evolution, the most complicated thing that comes already hard-wired.

Some 30,000 nerves along the path from ear to cortex in 4 neuronal stages. An awful lot. That would make pain and discomfort after hearing damage (and slowness of healing) a sort of canary that there might be some systemic problem with myelin or nutrition. (try "Key Nutrients for Myelin Support") and try to binge on those items if you are ready to try anything.)

I've had temporary damage with effects lasting a week. I was a sound guy and have at times troubleshooted crossover networks that peaked around 3kHz and it wasbad, but the very worst was dropping a 60lb steel theater weight onto a pile of other weights. Didn't even hear the sound but hearing went silent for 5 minutes and took a week to all come back! Also ultrasonics that were felt as pressure not sound. I recovered completely and have a rolloff beyond 13k that is probably age. But it's scary, I hope you heal!

This greg.technology gent is not just any ear blaster, he brought us Sonic Garbage ( https://sonicgarbage.greg.technology/ ) that has been featured here on HN. And check out his cheerleading offer at ( https://blog.greg.technology/ ). It looks like a good deal because I've exchanged emails with him and he is a plain spoken cheerful guy... the offer is not satire in any way.

Re: I have tinnitus. I don't recommend it

#56
Took 1-2 years before I went a single day without thinking about tinnitus after I gave it to myself playing drums. I was so happy to be smashing those punk drums in the first rehearsal of this band. I remember exclaiming afterwards to one of my bandmates, "Wow my ears are ringing! That was awesome!" He said, "Ya, mine have been ringing for 30 years." My heart immediately sank knowing what I had just done.

I spent a lot of days/months totally devastated about it. I remember reading this story about some woman in a scandinavian country who chose medical-assisted suicide because hers was so bad. I thought that was going to be my story. I thought it was inevitable.

But I met a lot of people who lived completely normal lives and described their tinnitus as so much worse than mine. I eventually got used to it. I wouldn't say the actual ringing is better or worse than it was. I have no idea how to measure it anyways. But life has gotten so much better. And I almost never think about it any more -- maybe once every few weeks I'll have the thought, "Oh ya, I have ringing in my ears" and a few seconds later I forget about it again. I think it gets better for most people, thankfully.

But it'd be cool to hear complete silence again.

Re: I have tinnitus. I don't recommend it

#57
post #49

I feel terrible because I never did anything wrong. I never went to a concert. I never worked around loud things for prolonged periods. I never listened to music too loud. I have tinnitus. It seems to go up in intensity when my TMD acts up, but it never goes completely away. Mine isn't nearly debilitating, but I worry that it's going to get worse with time.

I have tinnitus from an inner ear injury from snorkeling/free diving. Tinnitus can be caused by clenching your jaw or otherwise stimulating your jaw muscles. My ENT told me the nerves for the muscles are extremely close to the nerves for hearing. One thing I try when my tinnitus acts up is making sure to keep my jaw relaxed.

Re: I have tinnitus. I don't recommend it

#58
post #27

Earlier quoted context omitted.

Are we talking about that thing you hear when in absolute silence in the dead of night? Is absolute silence even a thing?

I don't know what anybody else hears in absolute silence, but I hear a high pitched ringing. I can hear it any time I think about it. Like the other poster said though, my brain filters it out typically when other noise is around and I'm not paying attention to it.

Same. I guess that’s tinnitus, but I feel lucky that most of the time I seem to filter it out.

Re: I have tinnitus. I don't recommend it

#59
post #49

I feel terrible because I never did anything wrong. I never went to a concert. I never worked around loud things for prolonged periods. I never listened to music too loud. I have tinnitus. It seems to go up in intensity when my TMD acts up, but it never goes completely away. Mine isn't nearly debilitating, but I worry that it's going to get worse with time.

I have had tinnitus for as long as I have been forming memories. As a child I called it "the sound of silence" and thought everyone heard it.

Never bothered me much. Its much worse now at times. Still doesnt bother me much

Re: I have tinnitus. I don't recommend it

#60
I've got the typical high-pitched ringing kind that I've had for as long as I can remember, along with pulsatile tinnitus that developed several years ago, meaning I can hear a whooshing sound in my ears to the rhythm of my heartbeat. When I tell people about the pulsatile tinnitus, I like to joke and compare it to the heartbeat from Edgar Allen Poe's story "The Tell-Tale Heart."

Luckily neither of these tinnituses bothers me as much as the subject of that story. In fact they don't bother me much at all anymore, although the pulsatile one did cause a great deal of anxiety when it first developed seemingly out of nowhere. My brain has learned to adapt and ignore the sounds pretty easily unless I'm in a quiet room and have nothing else to focus on.

And a tip for anyone suffering: I've found that those "8 hours of brown noise" loops on YouTube work wonders for drowning out the sound of both regular and pulsatile tinnitus.

Post reply on HN