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What does this even mean
Some kind of trolling, I assume. Diana is not trans.
Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
51–60 of 334 posts
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#52I'm 22 years old and suffer from Long COVID for 3 years now. I've written a bout my experience on my blog: https://tunn3l.pro. although not bedridden, my life got totally flipped upside down. I just want to live a normal live again. To all ME/CFS and LC sufferers: Don't give up!
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#53I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard
Weird gatekeeping but ok; COVID causes chronic fatigue syndrome in some people. Because so many were affected (millions worldwide), it got its own nickname. ME/CFS developed after a covid infection. Modern understanding of autism / ADHD sees the two as part of a spectrum of neurodiverse conditions (think of an audio mixer of many different traits, more than a side-to-side slider), but I don't see the connection with…
> Weird gatekeeping but ok; COVID causes chronic fatigue syndrome in some people. Because so many were affected (millions worldwide), it got its own nickname. ME/CFS developed after a covid infection.
ME/CFS has been around for way longer - prior to Covid, the Epstein-Barr virus was strongly suspected to be a trigger for it. Unfortunately ME/CFS was (and in many cases still isn't) widely known among doctors, so diagnoses were hard to come by and treatment even harder.
At least now that there is money flowing into ME/CFS research and knowledge about it gets more widespread, "old time" ME/CFS sufferers have a perspective now...
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#54Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero…
I was halfway through your comment and wondered which country this would be. Well, hello fellow Dutchie. Since my father's death, I say In the Netherlands, doctors only start acting when you are dying . My father's GP let him die of acute leukemia, guessing his severe tiredness had something to do with an onset of diabetes. It was not a single visit. Had no bloodwork done. GP claimed to be specialized in geriatrics.…
> In the Netherlands, doctors only start acting when you are dying.
this horrible situation is in no way restricted to the Netherlands.
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#55Anecdote: Back in October '24 I got Covid. My only symptom that stuck around was lack of taste on my tongue (NOT Anosmia, it's lack of salty/sweet/sour/bitter response on the tongue itself), but only on the right half of my tongue. It slowly got better, but last week I lost taste on that side of my tongue again. The taste is coming back again now. Anyway, I have no idea what's going on with me; it's not really severe…
In circa 2022 I got covid and lost smell. First I couldn't smell the spices in the kitchen, but I thought nothing of it. But some days later, I couldn't smell WD-40. That's when I noticed I can't smell anything at all. My sense of smell never really recovered. After about a year, I could faintly smell menthol. Now I have to really try hard if I want to get some faint sense of smell, but a lot of time I just don't sme…
I completely lost taste and smell around 2022 too. It wasn't like a clogged nose, I could absolutely not sense anything with my tongue and nose (except for touch). I read stories about it not coming back for some people and it absolutely shook me. At that moment I realized how much I love delicious food and that smell is a great indicator for things you might not expect (e.g. heat).
It luckily fully came back in my case, but it took many months. But it was properly scary! So weird that a viral infection (that didn't even make me very sick) could have such long-lasting and potentially life-altering effects.
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#56I have been burnt out for almost three years now, was mostly bedridden at first but I can do much more now.
I can do moderate training 1-2 times a week, go out to get socialization 1-2 times a week and do much more at home.
So it have gotten better, just a very slow pace and it's really hard.
You have to learn to know when you have to rest and when to push yourself and that line can be super thin.
Not good to do too much and not too little, very hard to read signals imo.
Hopefully we will see more breakthrough in understanding and reading the signals of the body in the future
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#57[dead]
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#58I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard
The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.
"Long COVID" encompasses several very distinct nosological categories, which makes it a difficult term to talk about. There are at least four distinct subtypes - people who had severe acute illness and suffered respiratory injury, people who had severe acute illness and suffered cardiovascular or renal injury, people who had a relatively mild acute illness but developed long-term neurological or musculoskeletal sequelae, and people who developed those latter symptoms during the COVID pandemic without actually being infected with COVID. All of those types of suffering are very real, but may have very different causes and require different treatments.
Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#59I would say we don't really know if it's so called Long COVID. I mean that I have taken care of an ME/CFS sufferer long before COVID was around. So it's a set of diseases grouped by their similar symptoms. Autism and ADHD seem similar in that regard
The "so called Long COVID" really just means "I got covid and I remain unwell in some way, long term". I'm not sure it needs to be questioned if those two qualifying things are given. Very well might be the same thing as ME/CFS, or might not, I don't think we have a conclusive answer yet about what causes either.
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Re: Science YouTuber physicsgirl (Dianna Cowern) stands for the first time in 2 yrs
#60Long Covid (probably a form of ME/CFS triggered by Covid) is one of the worse diseases one can get. It invalidates you as a person physically and mentally and there are no solutions around. At the same time you are gaslighted by doctors and people because there is no clear diagnosis. My wife is already on her 3rd year and I just could witness first hand how shallow is the knowledge of most doctors, how they have zero…
GPs here are just absolutely useless. Have you tried reaching out to one of the specialized clinics? I've been under treatment for ME/CFS at Vermoeidheidkliniek (yeah, not the best name) and all of the specialists there have been incredibly helpful and willing to try different things.