481–486 of 486 posts
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If possible put your email, even a throwaway, in your profile, and I will send a message.
Sure thing, I updated my profile with my real email. I certainly don't expect you to remember me, but you might remember my buddy Atish, and I hope you know that you left a massive impression on both him and me. As kids fresh out of high school, you were (and frankly, you still are) the guy we looked up to. Thanks for being you.
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Sure thing, I updated my profile with my real email. I certainly don't expect you to remember me, but you might remember my buddy Atish, and I hope you know that you left a massive impression on both him and me. As kids fresh out of high school, you were (and frankly, you still are) the guy we looked up to. Thanks for being you.
Email not appearing.
brandonmittman@gmail.com in case I messed it up in some other way.
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Hey thanks for this post. You sound very knowledgeable. Couple things: Jake’s SCC is non-HPV. He did Keytruda, and it had no effect. He’s being treated at the Mayo clinic where most of the oncologists were ambivalent about chemotherapy. He’s beginning platinum based chemo on Monday as a hail mary to try to kill this stuff. And yeah — all the doctors have been flummoxed by the aggression of this cancer. It was the sam…
When I first posted, I didn't know Jake was on HN or that you were here either. If my critique hurt either of you, I'm sorry. I hope the chemo he starts on Monday works and Jake recovers. I hope that you and Jake find some comforts and joy during the upcoming battle. The best of luck.
His wife is also a medical doctor. He’s had the best care possible. It sadly was not enough.
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> It's easy to say "people who have no other options should get access to experimental treatments" but the problem is that people who have other options want those too, because nobody wants to go through chemotherapy or whatever. I reserve for myself the right to try to save my own life, even if that means some people who can't handle that responsibility make things worse for themselves. I can't get from, "but other…
Why do you think you could always evaluate the options properly? What if that is not the case?
I would hate to ask the author this, as it seems cruel, but is the FDA denying him access? As he points out, Moderna has two drug trials going. The FDA "right to try" page[0] clearly spells out that Moderna could give him unproven medicine currently in a clinical trial under the right to try laws. So Moderna could let him into one of the two studies, or give him the medicine under the right to try laws if it rejects…
I believe the oncologist has to present the case to Moderna for use. If insurance is involved, insurance will deny it.
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I am not yet done thinking on this area, so my thoughts here are incomplete, but thay said: Would this not also open the door for any snakeoil salesman to prey on what might be medically "hopeless" cases? If I am ever diagnosed with something currently uncurable, but there are experimental stuff in the works, of course I'd like a shot at those experimental drugs, but I hope that me/my family would also not squander w…
> Would this not also open the door for any snakeoil salesman to prey on what might be medically "hopeless" cases? If you're diagnosed with something uncurable, then by definition you have a doctor or a medical team that has performed the diagnosis and is overseeing your treatment. There is, invariably, some form of treatment; in extremis, even "here, I've booked you into a hospice where they're going to load you up…