> - Looked for jobs with slightly under full-time work loads to allow me time to rest (found only one for 2 years, but the extra rest helped me slow down disease progression a lot)
I think it's awful that such jobs are hard to find, considering the effect on disease progression of all things.
My own only very distantly related anecdote. I'd had an interview with a hiring manager, who would be my boss, who liked me and was keen to employ. But he didn't get to make the decision; he passed me to Head of HR who made the final decision on all hires.
The conversation with Head of HR seemed to go well, and I would have taken almost any terms (including a pay cut) because I really liked that job. But he (HR) wouldn't say how much they'd pay or give any clues about what level they operated at. He insisted on negotiating by insisting that I make the first move with no information, and say what would would make me happy. So I asked if they would consider a 4 day week. No pressure, I'd happily do 5 but 4 would be something I'd like.
That, it turns out, was a "red flag" for them, the idea that I might not be loyal enough to the company that I'd want to spend a day doing something else. This despite my evident eagerness for that particular job. There was no concern about not getting enough work done; they had enough people. It was all about concern that I might do something else with my time off.
I didn't get the job. Despite getting a message from the hiring manager that he was going to send me an offer the next morning, it was blocked by HR the following day with concerns about loyalty being given internally as the reason. Of course HR told me something else entirely.