Illinois governor signs law capping insulin costs at $100 per month

421–422 of 422 posts

Re: Illinois governor signs law capping insulin costs at $100 per month

#421

Post by amyjess » Fri, Jan 31, 2020, 8:33 PM UTC

specialist wrote: post #419

amyjess wrote: post #249

Earlier quoted context omitted.

I'm a trans woman. It's widely acknowledged in the trans community that most of us have to teach our doctors what meds to prescribe, what starting doses are common, and how to interpret lab results to determine how to titrate the dosage. Most of us have read the Encdocrine Society's clinical guidelines for HRT cover to cover, because we have to be the experts. And half the time, it turns into a fight. At one point, I…

If you can, I'd encourage you to find the care providers you need. One friend moved to become a patient of the #2 Lyme disease specialist. Another moved to become enrolled in a clinical trial. He was proclaimed terminal and went doctor shopping. (Still alive today.) I've stayed anchored in my house for decades because I won't risk leaving my care providers (SCCA, FHCRC). I've had terrible experiences with noob doctor…

> If you can, I'd encourage you to find the care providers you need.

FWIW, it took a few years but I finally found a doctor I'm happy with. But I'm also lucky enough to live in a major US city.

Re: Illinois governor signs law capping insulin costs at $100 per month

#422

Post by amyjess » Fri, Jan 31, 2020, 8:42 PM UTC

umvi wrote: post #155

intopieces wrote: post #144

Earlier quoted context omitted.

> Patients can quickly become more expert than GPs with regards to their own diseases, especially if they have months to research it. Waking into a 15 minute appointment with months worth of research seems like a bad way to approach collaboration with healthcare professionals. Or do people still have personal relationships with doctors outside the appointment window? It seems like GPs have become dispensers of medici…

The only people that do months of research are those with a chronic disease (diabetes, cancer, Lyme, etc.) However, many people will at least do several hours of research before going into the doctor

Regarding chronic disease...

So I have a friend with Hashimoto's. Before finally being diagnosed, she had a long history of being misdiagnosed, blown off, and having her symptoms dismissed as nothing. After being diagnosed, she connected with a number of other Hashimoto's patients and sufferers of chronic illness in general and found out that pretty much everyone she's talked to has the same stories. Constant invalidation, ignoring of symptoms, doctors just plain not listening, until they finally find someone who actually knows their stuff.

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