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ChatGPT Health

openai.com

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Re: ChatGPT Health

#41

Post by paulgrimes1 »

Here’s something: my chatGPT quietly assumed I had ADHD for around 9 months, up until October 2025. I don’t suffer from ADHD. I only found out through an answer that began “As you have ADHD..”

I had it stop right there, and asked it to tell me exactly where it got this information; the date, the title of the chat, the exact moment it took this data on as an attribute of mine. It was unable to specify any of it, aside from nine months previous. It continued to insist I had ADHD, and that I told it I did, but was unable to reference exactly when/where.

I asked “do you think it’s dangerous that you have assumed I have a medical / neurological condition for this long? What if you gave me incorrect advice based on this assumption?” to which it answered a paraphrased mea culpa, offered to forget the attribute, and moved the conversation on.

This is a class action waiting to happen.

Re: ChatGPT Health

#42

Post by dingnuts »

dmmartins wrote: post #36
MattDaEskimo wrote: post #29

Earlier quoted context omitted.

I'm sorry, but seriously? How could you not care who has your health data? I think the more plausible comment is "I've been protected my whole life by health data privacy laws that I have no idea what the other side looks like". Quite frankly, this is even worse as it can and will override doctors orders and feed into people's delusions as an "expert".

I don't care either. Why should I? I go to the doctor once a year and it's always the same. Not much to do with that data

[dead]

Re: ChatGPT Health

#44

Post by SiempreViernes »

roger_ wrote: post #33
MattDaEskimo wrote: post #29

Earlier quoted context omitted.

I'm sorry, but seriously? How could you not care who has your health data? I think the more plausible comment is "I've been protected my whole life by health data privacy laws that I have no idea what the other side looks like". Quite frankly, this is even worse as it can and will override doctors orders and feed into people's delusions as an "expert".

I’d rather have all my health data be used in a way that can actually help me, even with a risk of a breach or misuse, than having it in a folder somewhere doing nothing.

You're supposed to share it with a doctor you trust, if nobody qualified asked for it it's probably because it's no longer relevant.

Re: ChatGPT Health

#45

Post by lionkor »

dmmartins wrote: post #36
MattDaEskimo wrote: post #29

Earlier quoted context omitted.

I'm sorry, but seriously? How could you not care who has your health data? I think the more plausible comment is "I've been protected my whole life by health data privacy laws that I have no idea what the other side looks like". Quite frankly, this is even worse as it can and will override doctors orders and feed into people's delusions as an "expert".

I don't care either. Why should I? I go to the doctor once a year and it's always the same. Not much to do with that data

Your health data could be used in the future, when technology is more advanced, to infer things about you that we don't even know about, and target you or your family for it.

Re: ChatGPT Health

#46

Post by zsolt224 »

LLMs were actually not that great so far in the preventative side / risk prediction. They are very good if you already have the disease but if you are trending there they were chill about it. The better way would be to first calculate the risks via deterministic algos and then do differential diagnosis. So something that specialized doc would do. This is an example of an online tool, that does it like that: https://www.longevity-tools.com/liver-function-interpreter

Re: ChatGPT Health

#47

Post by lionkor »

barbazoo wrote: post #37
vimda wrote: post #30

This reads like desperation to get a headline more than an actual product, especially when half the links don't even work

I heard the links are lazily auto vibe coded when enough people click on them /s

I made something like that https://github.com/lionkor/ai-httpd

Re: ChatGPT Health

#48

Post by roger_ »

websiteapi wrote: post #38
roger_ wrote: post #22

I personally don’t care who has access to my health data, but I understand those who might. Either way, I’m excited for some actual innovation in the personal health field. Apple Health is more about aggregating data than actually producing actionable insights. 23andme was mostly useless. Today I have a ChatGPT project with my health history as a system prompt and it’s been very helpful. Recently I snapped a photo of…

If an insight led you or a family member to being misdiagnosed and crippled would you just say it’s their or your own fault? If it were a doctor would you have the same opinion?

I understand enough about these systems to know they’re not perfect but I agree some people might be misled.

But I don’t know if I should be denied access because of those people.

Re: ChatGPT Health

#49

Post by seltzered_ »

Something to note here is that just yesterday (January 6 2026) the FDA announced changes around regulation of wearable & AI enabled devices: https://www.statnews.com/2026/01/06/fda-pulls-back-oversight... (" FDA announces sweeping changes to oversight of wearables, AI-enabled devices The changes could allow unregulated generative artificial intelligence tools into clinical workflows")

Re: ChatGPT Health

#50

Post by roger_ »

SiempreViernes wrote: post #44
roger_ wrote: post #33

Earlier quoted context omitted.

I’d rather have all my health data be used in a way that can actually help me, even with a risk of a breach or misuse, than having it in a folder somewhere doing nothing.

You're supposed to share it with a doctor you trust, if nobody qualified asked for it it's probably because it's no longer relevant.

I’ve had mixed experiences with doctors. Often times they’re glancing at my chart for two minutes before an appointment and that’s the extent of their concern for me.

I’ve also lived in places where I don’t have a choice in doctor.

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