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23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
41–50 of 91 posts
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#42Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#43That feels really risky. If your DNA is preserved, could a replica of you appear decades later?
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#44i'm curious, what's the worst-case scenario if one were to put their whole DNA data exposed publicly? would a future civilization re-make your image? or are there societal benefits?
23andMe’s new business model (Anne Wojcicki and Regeneron both had the same plan for it) is to use the data for drug development. That’s theoretically where the $$$$ is. Turns out you can use statistical association between genes and other biomarkers to discover drugs that will succeed in clinical trials.
So, I suppose, if everyone could use the data, everyone could use it to develop drugs, not just 23andMe. That’s good if you want more drugs to be developed and released… bad if you don’t.
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#45I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.
Things like financial and medical data should be required to have an audit log that you can see, in real-time and subscribe to updates for, including extraction into "anonymised" formats, along with a description of that process, format and a justification for why it is robust against deanonymisation. If data is handled well, there is nothing to fear here. Fiddly, perhaps. Expensive, probably. But personal data processing should be risky and expensive.
Deliberately extracting personal data into un-audited environments without good reason (eg printing a label for shipping), should be punished with GDPR-style global turnover-based penalties and jail for those responsible.
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#46I do worry about my data with them, but when I think about the worst-case scenario - you will not get insured (or have high rates) because you have {some genetic condition}.. it seems just as likely that they will simply require my DNA to apply for insurance. (or get my DNA from a blood test within their system, etc.). The obvious solution is with legislation for transparency and better health care system.
One aspect to this tangle is knowledge asymmetry: One of the traditional justifications for insurers poking around is to guard against an applicant that conceals important factors as a kind of fraud. But what about the reverse? There's something intuitively unjust about the customer not knowing why they're being charged a higher rate, especially if it means the company believes there's a potential danger (enough that…
The paradox is that the better insurance companies are at pricing risk, the more irrelevant their business becomes. If they can predict your disease with 100% reliability, and charge you based on that, then what is the point of buying insurance if you are going to be charged either nothing or the full cost of the treatment, just like if you were not insured.
Except of course in the US, with scammy hospitals charging over-inflated prices to uninsured patients, while only insurers can access realistic prices.
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#47Earlier quoted context omitted.
One aspect to this tangle is knowledge asymmetry: One of the traditional justifications for insurers poking around is to guard against an applicant that conceals important factors as a kind of fraud. But what about the reverse? There's something intuitively unjust about the customer not knowing why they're being charged a higher rate, especially if it means the company believes there's a potential danger (enough that…
The paradox is that the better insurance companies are at pricing risk, the more irrelevant their business becomes. If they can predict your disease with 100% reliability, and charge you based on that, then what is the point of buying insurance if you are going to be charged either nothing or the full cost of the treatment, just like if you were not insured. Except of course in the US, with scammy hospitals charging…
I think that conflates accurate probabilities with predicting discrete future events.
For example, suppose you can accurately determine that someone has exactly a 5% chance of developing a problem that will cost exactly $X to treat. Find 10,000 of those people, and insurance is still useful for spreading the risk and financing the treatments.
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#48Earlier quoted context omitted.
DNA isn’t guilt by association. Cops still need real evidence—this isn’t CSI fan fiction.
>Identification of DeAngelo began in December 2017 when officials, led by detective Paul Holes and FBI lawyer Steve Kramer, uploaded the killer's DNA profile from a Ventura County rape kit to the personal genomics website GEDmatch.[182] The website identified 10 to 20 people who had the same great-great-great-grandparents as the Golden State Killer; a team of five investigators working with genealogist Barbara Rae-Ve…
You're describing the process working—DNA gave investigators a lead, which they followed up with legally obtained, direct evidence tying DeAngelo to the crime. That’s not guilt by association; that’s good policing. Framing that as something sinister ignores the outcome: a serial rapist and murderer finally faced justice. That’s not dystopia—it’s what society should be doing—or would you rather a rapist, kidnapper and murderer walked freely?
Re: 23andMe is out of bankruptcy and it still hasn’t substantially changed its ways
#49[deleted]