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Long Covid brain fog may be due to damaged blood vessels in the brain
41–50 of 163 posts
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#42Recently read an article suggesting that we should drop the term Long Covid, as it implies that there is something unique about it, when the research seems to show that the impairment post-Covid is very similar to that from Influenza: https://www.theguardian.com/society/2024/mar/15/long-covid-s...
Experts react: https://www.scimex.org/newsfeed/expert-reaction-long-covid-m... > It is because of these specific factors as well as inherent limitations of the study methodology itself, that their conclusion that it is “time to stop using terms like ‘long COVID’” is overstated and potentially unhelpful. Long COVID has been a global phenomenon, recognised by WHO. > Unfortunately, this question cannot be simply answere…
> "Long covid is not a thing" plays into the "Covid is not a thing" conspiracy theory; it's probably a harmful trope, rather than meaningfully helpful for the people suffering symptoms.
That something plays into a harmful trope doesn’t speak to its veracity though, and diminishing smaller inconvenient truths so as to not lead people astray in my opinion exacerbates rather than diminishes conspiracy theories.
Could probably have prevented a lot of wasted time, money, and endless internet arguments by saying something early on like “ivermectin, which humans are regularly prescribed, does look promising for treating Covid, but only at dosages that are very toxic to humans, or in populations that might have parasites, as a result of curing those parasites”, instead of the “lol it’s only for horses!” stuff, or by clearly stating “lab leak is possible, and not the same thing as an intentionally man-made bioweapon unleashed by Chinese people”.
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#43Recently read an article suggesting that we should drop the term Long Covid, as it implies that there is something unique about it, when the research seems to show that the impairment post-Covid is very similar to that from Influenza: https://www.theguardian.com/society/2024/mar/15/long-covid-s...
That might make a case for replacing the name but not eliminating it. Eliminating it would be akin to removing the name "stomach cancer" because other cells can also become cancerous.
You need a name for things. And long flu might have different etiology than long covid despite similar symptoms, so it doesn't make sense to lump them together as "long virus".
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#44I’ll share an abridged long COVID story about myself since it dearly affected me. Just so other people can kind of know what the experience was like. I got sick in October 2020 before vaccines were available. After the initial 10 days which I would describe as moderate, borderline severe (6/10, where 7/10 is hospital and 9/10 is ICU) I had all manner of absolutely weird things happen to my body. I won’t go into the d…
So sorry to hear the way this affected you. My wife had/has long covid - as I listened to people she met online with LC and a couple of people we knew already, what fascinated me was the 'menu' of symptoms that people got and just how different they could be, though overlapping.
She too had the POTS and range of aches and issues. While she's largely recovered now, she still has to pace herself.
Really hoping this is better understood in the future, and that we are better able to treat people with it.
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#45[flagged]
HSV, VZV, HIV, CMV, Zika, and Ebola are all viruses that are known to potentially damage blood vessels in the brain. I don't think it's correct to assume a virus cannot just by nature of being a virus.
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#46Leaky blood brain barrier does not bode well for the future, especially with mass and repeated infections. This is associated with Alzheimer’s, dementia, and other neurodegenerstive disorders: https://www.nature.com/articles/nrneurol.2017.188
Wow that's terrible. Well.. science has major incentive to find cures now. How many have long covid? Or maybe even subclinical long covid that may silently boost Alzheimer's risk? On a more positive note, they recently found that there is some sort of frequency that may enhance / trigger the natural junk clearance mechanisms that go on during sleep.
"..recently found that there is some sort of frequency that may enhance / trigger the natural junk clearance mechanisms that go on during sleep.'
I believe you are referencing [0], where scientists discovered that in mouse models the naturally occurring brainwaves generated during sleep help clean up extra cellular 'junk' in the brain via the glymphatic system.
It has been known since 2012 that the glymphatic system (which was discovered around that time) was a mechanism for cleaning the brain. And even back then there was speculation around if Alzheimer patients had some kind of damage to this system which caused the build up of amyloid proteins.
I have yet to see any research conducted on figuring that out (but it may exist).
[0] https://jamanetwork.com/journals/jama/fullarticle/2816616
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#47The last para suggests that this is not reversible. But does anyone have any treatment options or supplements/nootropics to recommend?
Long Walks, Sleep, Ritalin :-)
While my wife would love nothing more than long walks, her long covid still stops her from exercising - before covid she was down the gym 5 days a week and loves being outdoors.
There can be mitochondrial damage in some LC patients which will stop them being able to release energy the way they used to. https://www.news-medical.net/news/20240104/Study-identifies-...
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#48For me, it's like the volume of my inner voice is decreased, and no sign of recovery after 2 years, though no significant cognitive function decline can be observed.
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#49Earlier quoted context omitted.
This comment just reinforces my belief that it’s autoimmune related. I have never had Reynauds (or ANY of these symptoms) before or after this. It was the first and only time I have ever seen any of the things I mentioned happen to my body. They just… went away and I was normal again eventually, luckily for me. Many aren’t so lucky
My wife got POTS for the first time in 2022, but we tested and tested and tested, we both never got Covid - but I have been suspecting that the tests were just junk. No other time in our life did her autoimmune issues that basically went away 8 years ago, came back 10x harder. Same thing with almost all of your symptoms. She's finally slowly getting better, but she still can't eat gluten right now.
Last year I caught COVID twice. Both times I felt sick, I tested myself daily, and I was negative every time I swabbed my nostrils and nasopharynx. Both times, I started swabbing any yellow mucus that I expelled, and received the positive result that I expected.
Re: Long Covid brain fog may be due to damaged blood vessels in the brain
#50I’ll share an abridged long COVID story about myself since it dearly affected me. Just so other people can kind of know what the experience was like. I got sick in October 2020 before vaccines were available. After the initial 10 days which I would describe as moderate, borderline severe (6/10, where 7/10 is hospital and 9/10 is ICU) I had all manner of absolutely weird things happen to my body. I won’t go into the d…
So sorry to hear the way this affected you. My wife had/has long covid - as I listened to people she met online with LC and a couple of people we knew already, what fascinated me was the 'menu' of symptoms that people got and just how different they could be, though overlapping. She too had the POTS and range of aches and issues. While she's largely recovered now, she still has to pace herself. Really hoping this is…
I’m basically 100% fine now, but thanks. I just wish I could have told the me that existed right when I started having this happen that it would eventually get better. At the time it was very scary thinking that I might have to deal with POTS or shortness of breath for the rest of my life or that my organs were permanently damaged in some way.
I find myself more fortunate than most in that I never really had the fatigue and brain fog issues that plagued and possibly still plague many others. I could definitely see those things being quite detrimental to my mental health in the long term if I had them.