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Software that supports your body should always respect your freedom

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41–50 of 94 posts

Re: Software that supports your body should always respect your freedom

#41

We are heading to worst possible cyberpunk future.

"Please watch this 20 minute ad to continue using your EvilCorp Eye Replacement"

"As part of our promotion, your blood sugar will continue to rise until you complete a purchase of one of our sponsor's products."

Re: Software that supports your body should always respect your freedom

#42
I don't understand what freedom stands for anymore. I don't trust the FSF after they started grandstanding on topics that made no sense.

Apple making an update that breaks apps isn't the fault of the app developers, or the app. The measures they suggested are completely useless if nobody wants to update or make a gpl 3 or even a horrible gpl 2 app. Suppose they do, they're supposed to pay the apple fee every year and "sell" it for free?

I'm not sure what the article wants besides bad press for companies that went bankrupt?

Re: Software that supports your body should always respect your freedom

#43
post #38

100% agree for "read only" software, like scanning, diagnostics, etc. Control software is much more involved topic, let me illustrate it with a scenario: one family member is non-techy but has an insulin pump, another family member is techy and likes to hack around, they made a change to the insulin pump software to "improve it", but by accident the change triggered insulin overdose at night during sleep and family m…

I agree with it being the wrong way to go about it- I think the article fails to recognize that relying on the software being free isn't a solid enough certification of the software being appropriately safe to control a person's health. There has to be some other safeguard put in place- I'm not sure if it's legislation, but allowing a software update to break an app used by the elderly is unacceptable.

Re: Software that supports your body should always respect your freedom

#44
post #23

Earlier quoted context omitted.

I have an ICD (implanted cardioverter-defibrillator) to save my life if my heart stops. I was also given a proprietary box that sits at home, reads data from it and sends it to my cardiologist over a cellular network, on demand. As part of periodic remote checkups I'm supposed to sit next to it, press the button, which causes it to read data and send any abnormal heart rhythms it detected (via cellular network), whet…

That's appalling and should be illegal. I wish more programmers would refuse to contribute to this kind of exploitation.

If it was illegal he might be dead. If he refused, he could be dead. Is that a better world?

Re: Software that supports your body should always respect your freedom

#45
>Two months later, with Apple's update to iOS 17, users of the FreeStyle LibreLink and Libre 2 apps had reason again to fear that the software they rely on wouldn't work after updating their iPhones

Apple is well known to operate with a near total disregard for the stability of third party software. I wouldn't go so far as saying that anyone who puts Apple in their tech stack for something safety critical and then blithely upgrades gets what they deserve when it breaks, but it's a damn fool thing to do, especially if they've already personally run into problems as a result before.

Re: Software that supports your body should always respect your freedom

#46
post #23

Earlier quoted context omitted.

I have an ICD (implanted cardioverter-defibrillator) to save my life if my heart stops. I was also given a proprietary box that sits at home, reads data from it and sends it to my cardiologist over a cellular network, on demand. As part of periodic remote checkups I'm supposed to sit next to it, press the button, which causes it to read data and send any abnormal heart rhythms it detected (via cellular network), whet…

This is giving me feelings similar to that movie repo men where you had to rent life saving organs and they could come repossess them at any time.

[deleted]

Re: Software that supports your body should always respect your freedom

#47

God forbid I ever need to rely on software to live. But if I do you can guarantee I won't have anything connected to the internet that I need a smartphone to use!

I think you mean software controlling medical devices, but you do rely on software to live when you drive, ride a plane, cross the street (crosswalk lights), when the train with poisonous whatever rolls through town, etc.

Re: Software that supports your body should always respect your freedom

#48

God forbid I ever need to rely on software to live. But if I do you can guarantee I won't have anything connected to the internet that I need a smartphone to use!

At that point you may have no choice if you want to live.

Then I'll let myself die as a protest.

I realise that's not a normal or even reasonable response to the predicament, but I'll never have kids and I've never been very attached to my life anyway.

Re: Software that supports your body should always respect your freedom

#49
post #44

Earlier quoted context omitted.

That's appalling and should be illegal. I wish more programmers would refuse to contribute to this kind of exploitation.

If it was illegal he might be dead. If he refused, he could be dead. Is that a better world?

No, if it was illegal he'd have access to his data. I'm not saying medical equipment should be illegal.

And to be clear, I wasn't saying he should have refused treatment. I was saying I wish more programmers would refuse to help develop exploitative software like this.

Re: Software that supports your body should always respect your freedom

#50

A lot of this does make sense, and I think there's still ought to be more in the messaging. The medical data as well needs to be analogously free, or rather, wholly private to the individual. No organization should be the arbiters of our medical information. But the sad news is, we carry around with us portable surveillance circlets which have the ability to access our medical conditions. We give it information volun…

I'm actually working on an open-source Personal Health Record (PHR) app called Fasten Health - https://github.com/fastenhealth/fasten-onprem

It allows patients to pull their complete medical history from their various healthcare institutions, and store it locally without having to worry about some corporation monetizing and data-mining their health record

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