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Think twice before analyzing/releasing your genetic data

jacquesmattheij.com

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Re: Think twice before analyzing/releasing your genetic data

#41

Post by toomuchtodo »

apaprocki wrote: post #24

There are different ways to help advance science without publishing all of your genetic material. As someone who has published my own mtDNA and my father's mtDNA to the NIH GenBank, I feel like I am meeting science in the middle. The mtDNA alone is not particularly useful for identification, but it does help population geneticists who are at a severe shortage of information for certain groups. My father's mtDNA happe…

How can I go about publishing my own genetic data to the NIH GenBank sequence database? If I've already done genotyping with 23andme, is the raw data acceptable for submission?

Re: Think twice before analyzing/releasing your genetic data

#42

Post by blake8086 »

onemoreact wrote: post #38
blake8086 wrote: post #37

I don't understand how we can really expect to conceal our genetic data. Everyone leaves it everywhere all the time (lost hairs, skin cells, saliva on discarded beverage containers).

You could say the same things about fingerprints but it's uncommon for a company to collect your fingerprints without you knowing.

I think that's a good point, but the stakes are quite a bit higher with your genome, since it can reveal a bunch of information about medical costs you're likely to incur, and how much shorter or longer than average you'll live.

Re: Think twice before analyzing/releasing your genetic data

#43

Post by apaprocki »

toomuchtodo wrote: post #41
apaprocki wrote: post #24

There are different ways to help advance science without publishing all of your genetic material. As someone who has published my own mtDNA and my father's mtDNA to the NIH GenBank, I feel like I am meeting science in the middle. The mtDNA alone is not particularly useful for identification, but it does help population geneticists who are at a severe shortage of information for certain groups. My father's mtDNA happe…

How can I go about publishing my own genetic data to the NIH GenBank sequence database? If I've already done genotyping with 23andme, is the raw data acceptable for submission?

Sadly, 23andme data will not be enough. If you want to submit mtDNA, you will need the full sequence. I used FTDNA to fully sequence the mtDNA. They give you a link to download the FASTA file after it is done and that file can be prepped to submit after you have it.

I used these instructions: http://www.ianlogan.co.uk/Submission.htm

Re: Think twice before analyzing/releasing your genetic data

#44

Post by mjwalshe »

kolev wrote: post #39
mjwalshe wrote: post #13

Earlier quoted context omitted.

Do you think that will stop the insurance industry finding ways around this. And if you have some marker that means that your children cannot get good jobs with health insurance - congratulations you have just condemned your kids to live on the bread line.

Paranoia can take you only that far. HN is supposed to be a place where smart people with big data in there minds hang out. Imagine when insurance companies has everybody's DNA - you think there's a perfect DNA? No, everybody has a different sets of risks. Again, just because you have a risk, it doesn't mean that you will developer the disease. For example, according to 23andMe, I have a lowered risk of Melanoma, yet…

No if the insurance companys get hold of your you will be "Fucked" If they can find loop holes to increase your premiums they will.

Re: Think twice before analyzing/releasing your genetic data

#45

Post by toomuchtodo »

apaprocki wrote: post #43
toomuchtodo wrote: post #41

Earlier quoted context omitted.

How can I go about publishing my own genetic data to the NIH GenBank sequence database? If I've already done genotyping with 23andme, is the raw data acceptable for submission?

Sadly, 23andme data will not be enough. If you want to submit mtDNA, you will need the full sequence. I used FTDNA to fully sequence the mtDNA. They give you a link to download the FASTA file after it is done and that file can be prepped to submit after you have it. I used these instructions: http://www.ianlogan.co.uk/Submission.htm

Thank you!!

Re: Think twice before analyzing/releasing your genetic data

#46

Post by kolev »

mjwalshe wrote: post #44
kolev wrote: post #39

Earlier quoted context omitted.

Paranoia can take you only that far. HN is supposed to be a place where smart people with big data in there minds hang out. Imagine when insurance companies has everybody's DNA - you think there's a perfect DNA? No, everybody has a different sets of risks. Again, just because you have a risk, it doesn't mean that you will developer the disease. For example, according to 23andMe, I have a lowered risk of Melanoma, yet…

No if the insurance companys get hold of your you will be "Fucked" If they can find loop holes to increase your premiums they will.

Health insurance isn't like auto insurance and the plan pricing is only driven by age. So, for a few more months, insurance companies can decline coverage to certain people, but as of next year, there's nothing those crooks can do!
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