41–50 of 82 posts
What a excellent, albeit strange, model. People pay you to analyze their valuable info, which you then aggregate and use to develop a drug and sell to others. It's almost exactly like trash -- people give you their valuable commodity (pay you to take it, in some cases!), you put it in a pile and then sell the mining rights down the line. If my data is going to be used to develop drug royalties, I want a % cut. Not a…
What a excellent, albeit strange, model. People pay you to analyze their valuable info, which you then aggregate and use to develop a drug and sell to others. It's almost exactly like trash -- people give you their valuable commodity (pay you to take it, in some cases!), you put it in a pile and then sell the mining rights down the line. If my data is going to be used to develop drug royalties, I want a % cut. Not a…
Earlier quoted context omitted.
I'm relatively paranoid when it comes to privacy and also did 23andMe for similar reasons. I stopped thinking of my DNA as a secret when I realized how impossible it is to keep other people from having access to it. Once someone knows it, you cannot change it like a password. DNA is an anti-secret. You share it everywhere you go and cannot stop. It's no more secret or personal than your shoe size or height.
My concern in these services is, at what point in the future does your DNA get weaponized against you? When do you get declined for health insurance, or have jacked up premiums, because the insurance company bought a report from 23andMe that says you have a predisposition to expensive disease ? My DNA isn't a secret, but I don't yet feel comfortable voluntarily handing it over to be indexed by a for profit company th…
I have not done these services because while I would be comfortable accepting the consequences in my remaining years, I have no idea what that would mean downstream for my living relatives, especially my son.
Somewhat off topic: Has anyone yet made a device that is entirely self contained and can do a basic analysis of DNA without sending or fetching data from anywhere? In other words, 100% air-gapped and my DNA and data stay on the portable device. If not, approx. how many years until such a device might exist?
Not possible. The library of SNPs is too large and growing by the day. Source, I made a gene analyzer: https://github.com/esteininger/Genetic-Report-Tool
Also, it doesn't matter due to network effects. In the GEDmatch case, the serial killer had never had his DNA sequenced - just his relatives. DNA privacy is already gone even if you opt-out of everything. You might as well get some personal benefit out of it. Or maybe this is a perverse opposite of vaccination. If enough people get vaccinated, you get herd immunity. If enough people stop sending data to DNA companies, you get herd privacy. Once enough people in one generation send in for DNA tests, even if everyone stopped, wouldn't future generations still be relatively targetable? I mean I'd imagine you could find me by comparing to my grandparents DNA.
Somewhat off topic: Has anyone yet made a device that is entirely self contained and can do a basic analysis of DNA without sending or fetching data from anywhere? In other words, 100% air-gapped and my DNA and data stay on the portable device. If not, approx. how many years until such a device might exist?
geneinfosec.com
Earlier quoted context omitted.
I'm relatively paranoid when it comes to privacy and also did 23andMe for similar reasons. I stopped thinking of my DNA as a secret when I realized how impossible it is to keep other people from having access to it. Once someone knows it, you cannot change it like a password. DNA is an anti-secret. You share it everywhere you go and cannot stop. It's no more secret or personal than your shoe size or height.
My concern in these services is, at what point in the future does your DNA get weaponized against you? When do you get declined for health insurance, or have jacked up premiums, because the insurance company bought a report from 23andMe that says you have a predisposition to expensive disease ? My DNA isn't a secret, but I don't yet feel comfortable voluntarily handing it over to be indexed by a for profit company th…
US federal law prohibits this [1].
This is great. I had a 23andMe test done years ago and one of the reasons why I chose to do it was because my genetic data might be helpful for others. I personally don't feel like I 'own' my genetic code and I'm quite happy to let scientists analyze it. However I understand while many people do not feel the same way.
They have the same privacy issues as Google and I would certainly never trust them with my DNA. I know it's easy enough to get access to it but I'm certainly not going to pay or volunteer to give it. That information is eventually going to get weaponized.
What will happen once they manage to statistically correlate your DNA with your political beliefs for example? Or correlate your DNA with a profile that is more likely to buy specific products?
Right now I see them doing the same thing that Google did 15 years ago. They are hyping consumers by pushing stories of curing rare diseases with the help of statistics. Similar to Google 15 years ago that pretended to make the world a better place by creating top technology. It is clear to me what the end goal is going to be though.
23AndMe CEO is the sister of Youtube CEO and ex-wife of Sergei Brin. Enough said, no thanks.
What a excellent, albeit strange, model. People pay you to analyze their valuable info, which you then aggregate and use to develop a drug and sell to others. It's almost exactly like trash -- people give you their valuable commodity (pay you to take it, in some cases!), you put it in a pile and then sell the mining rights down the line. If my data is going to be used to develop drug royalties, I want a % cut. Not a…
For those saying this idea is unrealistic, I was at an accelerator in Cambridge a while back and met some folks working on a version of 23andMe that, in my opinion, mirrors what the Brave browser has done to ads.
You can opt into your data being aggregated, anonymized and used by pharmaceutical companies, and you'll be given a percentage of what they sell that data for (IIRC, it was north of 20% and below 50%).
As industries become more crowded and there's an increasing number of services for a consumer to choose from, these sort of arrangements will likely become more common.
This is great. I had a 23andMe test done years ago and one of the reasons why I chose to do it was because my genetic data might be helpful for others. I personally don't feel like I 'own' my genetic code and I'm quite happy to let scientists analyze it. However I understand while many people do not feel the same way.
This is great. I had a 23andMe test done years ago and one of the reasons why I chose to do it was because my genetic data might be helpful for others. I personally don't feel like I 'own' my genetic code and I'm quite happy to let scientists analyze it. However I understand while many people do not feel the same way.
You might start feeling differently when a new test is developed for existing genetic conditions that it turns out you have, and since your DNA is already public suddenly your health insurance premiums quintuple.