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We’re all just temporarily abled

blog.jim-nielsen.com

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Re: We’re all just temporarily abled

#391

Post by cratermoon »

I had major surgery a bit over six months ago. Here's a fun trick: try using a mobile phone. The high-grade opioids keeping the pain in check blunt your thinking. Post-op anesthesia cognitive disfunction on top of that makes things even more confusing. Oh yeah, there's also loss of fine motor control. Don't even try going without your reading glasses if you use them.

It takes days to weeks to return to function well enough to begin rehab. After that it can be weeks to months for full function to return.

Yeah, accessibility matters all the time, it's not just a special thing to slap on after your MVP. It is your MVP for many people.

Re: We’re all just temporarily abled

#392

Post by citruscomputing »

zer8k wrote: post #345
mjmahone17 wrote: post #330

Earlier quoted context omitted.

I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. Means testing usually does not feel like an effective way to distribute services. I want millionaires to be using government aid to help their children: just like with free education, when everyone who needs help uses it, the richer parents will demand, and ensure we pay for, higher quality for all. Everyone who is…

> I feel like the biggest thing the US could do is remove means-testing from our disability aid programs. The problem isn't the means testing the problem is it's applied with broad strokes like all well meaning but inevitably awful government work. First, everyone pays into disability. So everyone should be able to get their share when necessary. Second, means testing includes things like housing, retirement accounts…

Something my therapist pointed out to me is that obesity is directly linked to childhood and intergenerational trauma; calling it self-inflicted is not accurate. Even if we're focused on healthy eating, food deserts exist. No man is an island, &c.

Also, to cite an HN darling[0], obesity is, at the very least, a lot stranger and more complicated than CICO.

> we also need to prevent the exploitation of disability programs

What if we _encouraged_ the "exploitation" of disability programs? What if everyone who wanted or needed it got help, regardless of whether someone thinks they "deserve" it? What if people didn't have to worry about failing to re-prove they still need help? I would rather that myself & my disabled friends live in that world.

[0]: https://slimemoldtimemold.com/tag/a-chemical-hunger/

Re: We’re all just temporarily abled

#393

Post by the_gipsy »

monero-xmr wrote: post #339
the_gipsy wrote: post #335

Earlier quoted context omitted.

USA is world-best of many things. But I don't think the healthcare is so good because it is funded by exploiting the poor. And if so, that would be quite a macabre defense.

“Exploiting the poor” is one of those philosophical arguments I disagree with. The US is supposedly so bad for the poor yet they are breaking down the door to come here, month after month.

The fact that it's worse in the third world doesn't make it morally right.

Re: We’re all just temporarily abled

#394

Post by ImPostingOnHN »

memefrog wrote: post #202
trabant00 wrote: post #152

Earlier quoted context omitted.

Injuries are not talked about enough on the internet. And they should be the number one topic for amateur fitness enthusiasts of any kind. Everybody is focusing on impressive performance results but: - you will never achieve anything resembling impressive as an amateur natty no matter what you do. PED use is so common now they're the standard for comparisons - your pay check does not depend on achieving certain resul…

I think the number one topic should be actually doing it at all. Too many people just talk about getting exercise, or endlessly watch videos about it, or endlessly read blogs and articles and guides, but never actually do it, or do very little.

I think it should be injuries, because of the reasons mentioned above.

It's better to not work out and not be injured than it is to work out and be injured, so the focus should first be on avoiding injury and second on actually going out and doing stuff. Same reason we watch safety videos before we do the thing they concern.

Re: We’re all just temporarily abled

#395

Post by mgfist »

jseliger wrote: post #385
Justsignedup wrote: post #233

How many people I know got hit by a car and had their life ruined horribly. Or a bad surgery. Things totally out of their control. We need to see disability as a cost to society we must pay, not a failure of individuals which is more or less what were treating it. The American disability system is basically proving (very painfully) that life is barely livable to get scraps of help. Like below poverty levels. I really…

How many people I know got hit by a car Building our entire society and physical space around cars is a poor choice, or set of choices: https://jakeseliger.com/2019/12/16/maybe-cars-are-just-reall...

True as it may be, it's completely besides the point.

Re: We’re all just temporarily abled

#396

Post by ska »

jseliger wrote: post #385
Justsignedup wrote: post #233

How many people I know got hit by a car and had their life ruined horribly. Or a bad surgery. Things totally out of their control. We need to see disability as a cost to society we must pay, not a failure of individuals which is more or less what were treating it. The American disability system is basically proving (very painfully) that life is barely livable to get scraps of help. Like below poverty levels. I really…

How many people I know got hit by a car Building our entire society and physical space around cars is a poor choice, or set of choices: https://jakeseliger.com/2019/12/16/maybe-cars-are-just-reall...

Not really relevant to the topic. Replace "hit by a car" with any other unexpected and life-changing illness or accident, and the point remains.

Re: We’re all just temporarily abled

#397

Post by notabee »

jnovek wrote: post #295
irrational wrote: post #287

Earlier quoted context omitted.

Or diagnosed as something they clearly are not, like depression. There are doctors who are willing and interested in doing the necessary investigative work to figure out what is going on, but they are an extremely small minority.

A bit of a tangent. My experience suggests that the transactional nature of modern medicine is part of what makes these types of investigations so hard. A doctor will be booked solid all day without time to reflect or investigate and that really only works with one-off problems. A chronic condition is not transactional, it's narrative. Someone needs to manage that narrative and mine it for insights. The only way the…

This is a very concise way to put it. And what's worse is that if you do try to take the narrative into your own hands and bring the whole story into appointments, there's a fair chunk of those doctors that will take offense at you trying to lead the conversation or decide that all that effort is evidence of some sort of malingering disorder. Even with lots of effort and information organization, it's still often a damned if you do, damned if you don't sort of thing.

Re: We’re all just temporarily abled

#398

Post by squarepizza »

agentultra wrote: post #382
Justsignedup wrote: post #233

How many people I know got hit by a car and had their life ruined horribly. Or a bad surgery. Things totally out of their control. We need to see disability as a cost to society we must pay, not a failure of individuals which is more or less what were treating it. The American disability system is basically proving (very painfully) that life is barely livable to get scraps of help. Like below poverty levels. I really…

The Canadian system for disability isn't much better... about the same. I grew up as a child of a single parent who was physically disabled and unable to work. I had to hold a job down on top of school from the beginning of high school onward. My grades suffered terribly and I couldn't get into university. My parent has been dependent on us our whole lives since then: poverty is forced on people in these situations a…

Sorry to hear about your hardships and thank you for sharing them.

Re: We’re all just temporarily abled

#399

Post by ska »

irrational wrote: post #287
jnovek wrote: post #280

Earlier quoted context omitted.

It's not even pain-oriented. It's visibility-oriented. I deal with chronic migraine and it's extremely difficult to get on SSDI for that disorder (unless it is secondary to something more visible, like a TBI). Other invisible chronic pain conditions (e.g. fibromyalgia) are similarly dismissed.

Or diagnosed as something they clearly are not, like depression. There are doctors who are willing and interested in doing the necessary investigative work to figure out what is going on, but they are an extremely small minority.

> who are willing and interested in doing

I suspect the problem is more systematic than a general lack of interest or willingness.

Re: We’re all just temporarily abled

#400

Post by bowsamic »

JimtheCoder wrote: post #315
bowsamic wrote: post #304

Earlier quoted context omitted.

In what world is that "barely lifting"? I don't think I've ever even seen anyone in my gym bench that much

If you have never seen anyone in your gym bench 2 plates...well...I am not sure what to say to you. Maybe find a different gym? The person I was responding to is talking about SS, why 5/3/1 is more appropriate, and things of that nature. If he MAXED out at a 225 bench, a 325 deadlift and a 275 squat, he has no business really talking about this sort of stuff. You don't even need a structured program to hit those numb…

Why would I find a different gym just because people around me aren't lifting as much as you want them to be? I'm a 28 year old man and I can only bench 35kg (~77lbs) so why would I want to be around a bunch of people lifting 100kg+?

> If he MAXED out at a 225 bench, a 325 deadlift and a 275 squat, he has no business really talking about this sort of stuff. You don't even need a structured program to hit those numbers...you just need to do it.

I think you have a severely skewed idea of what it is common to lift.

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