351–360 of 362 posts
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I have a similar exercise intolerance, could you enlighten me to what the underlying problem was?
Two issues. IIH and Sjogrens. Idiopathic intracranial hypertension Also called: pseudotumor cerebri. Description A condition that occurs when pressure inside the skull increases for no obvious reason.
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Two issues. IIH and Sjogrens. Idiopathic intracranial hypertension Also called: pseudotumor cerebri. Description A condition that occurs when pressure inside the skull increases for no obvious reason.
Thank you for sharing. I'm currently pursuing a POTS evaluation.
Had POTs quite bad.
Spinal tap gave a year of relief.
Now I use Diamox. Huge improvement
I had chronic, severe, debilitating pain for years until I read the book: The Mindbody Prescription by Dr. Sarno [1] Someone on HN suggested it in a "carpal tunnel" thread. I didn't have carpal tunnel. I had a completely destroyed knee. No more cartilage. Bone on bone with every step I took (confirmed by MRI). Cortisone didn't make a bit of difference. I couldn't walk 20 feet without mind boggling pain. That book cha…
I came here to say this, thanks. Sometimes I hesitate from posting about this because It's a very sensitive topic. The reason for your pain might be totally different from mine and I hate to assume what worked for me would work for you, etc. In any case, I was also changed by reading Sarno's books and that's the interesting part. My pain started in my chest, left and right. Then it transitioned to the center, I went…
But I went over some Sarno-related forum, and the mainstream view seems to be that pretty much all chronic neuropathic pain (including all NCV and EMG-confirmed pain) and all chronic musculoskeletal pain (including structural issues on x-ray) are mind-body. And there's a significant nutty minority who seems to think even some cancer and such is mind-body.
Also, how does it explain people who have chronic pain, then surgery, then they never experience pain again?
I'd like to buy into this, but that just seems vaccine conspiracy level crazy - overly simplistic for most cases to say the least. Maybe I'm wrong.
That said, I do strongly believe that your state of mind has a huge impact with how you deal with chronic pain. I know that's true.
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I think it would probably help, it'd probably require that person to be pretty in touch with their needs (which seems like it could be pretty hard when you're already super frustrated and in pain). It sounds like your friend was in touch enough to let you know how to help them and it sounds like you really connected that night. I wish people were more candid in general, but maybe people are a bit scared to ask for wh…
Yes absolutely, and that is very difficult, but since the people in this thread were already articulating their needs, it looks like they have already acquired that skill? (Of course, actually articulating those needs on the spot is yet another skill, so it's still easier said than done, but it might be worth focusing one's learning efforts on.)
But yeah, some have some, haven't I'd say. And I agree with you 100%, it's extremely difficult, and much more difficult to do it on the spot. It feels like it's one of those skills that could take a lifetime to perfect.
But definitely agree that it's worth focusing one's efforts on as it seems like you'd get a lot more of what you want out of the world and other people.
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I'm going through other pancreatic issues ([idiopathic/undefined] acute pancreatitis resulting in several necrotic masses and another(s?) unidentified nodes)— would you be so kind as to share some of your info? Are the two items you mentioned the projects? I'm hoping diabetes (or worse) isn't in my future, but you never know. Doctors don't have as much time lately due to Covid either to spend time with me on it until…
My partner hasn't actually implemented any external pancreas programs for a few personal reasons, I mostly bring it up because it's something that's solidly in the "goals" column and we're both excited about the possibilities in the future. (And it is very much the future as far as I can tell) Yes, Tidepool and OpenAPS are both generally focused on insulin management, so if you're looking for something that involves…
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Would you mind sharing the excersises that helped?
The most helpful one is making the top of your tongue meet the roof of your mouth and pulling it backward as far as you are able. Simultaneously move your jaw down forcing it as much down as possible slowly, while not losing roof-tongue contact. Hold the stretch, repeat the same for a couple of minutes and your muscles will ache. This also unclogs your sinus, so don't be surprised if you need to swallow or clear your…
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The most helpful one is making the top of your tongue meet the roof of your mouth and pulling it backward as far as you are able. Simultaneously move your jaw down forcing it as much down as possible slowly, while not losing roof-tongue contact. Hold the stretch, repeat the same for a couple of minutes and your muscles will ache. This also unclogs your sinus, so don't be surprised if you need to swallow or clear your…
I am interested in researching it online, but what search terms should I use? I've never heard of this before. Thank you.
https://www.sleepfoundation.org/articles/mouth-exercises-to-... https://www.cpap.com/blog/exercises-alleviate-sleep-apnea/ https://www.southfloridasinusandallergy.com/14-convenient-ex...
This is why I think that fighting torture is the second most important global task (after fighting climate change). All of you - all of us - who experienced unbearable pain, now imagine your pain but ten times worse, inflicted deliberately, on hours and days, over months and years, in combination with multiple other tortures, under sleep deprivation, in a state of learned helplessness. As you read these lines, people…
I don't have physical pain thankfully, but I have severe tinnitus. I'm unable to work for more than a few hours. I'm having a hard time to fall asleep. The fear of it getting worse is generating a large amount of stress.
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Just so you know, you're effectively complaining that people care about you too much. People can't put themselves in your shoes, but they try, and when they see you having a beer, knowing it could be bad for you, they try to support you in keeping away from it. I can see how it would get annoying. If you view it as love, instead of nagging, it might get a little less annoying.
> Just so you know, you're effectively complaining that people care about you too much I'm sure someone cares, but the majority of such folks? Nope. I was once watching a crappy move, but it had one gem in it. The protagonist had lost the use of his leg in the Civil war, and he sought compensation for it, and received a lot easier than expected. Throughout the movie, he keeps wondering why it was so easy to get the m…
I really like this story. It's definitely a tell when somebody only wants to help when it's easy and gives up right away. Although, that can also be a factor of them realizing that helping is beyond their ability, which can be different from not caring.
I think maybe a better tell is, how much time do they spend asking questions, versus giving "advice". Listening is nice but not always impactful. Talking is cheap and often irrelevant. But a good question can change your entire worldview. Or better yet, make you change your own worldview.
Did your coworker help everyone in this way, or was it just you?