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$49 Personal Genome at 23andme (incognito windows until you get the best price)

23andme.com

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Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#31

Post by khomenko »

mooneater wrote: post #24

Everyone is so fixated on the price. What I want to know is, who they share the data with? Do the insurance companies get our genome? Come on people, there should be no more precious data to you, than the genome of you and your family. Yet facebook users seem more concerned about their social network privacy than HN members are about their genome privacy. For insurance companies, this could be a total actuarial GOLDM…

It's OK. Nobody gets your genome. It would be suicidal for them to share, plus there are laws on the books (GINA at the federal level, a stronger law recently passed in CA).

Also, quite a few people have been posting their data openly, for example here: http://opensnp.org/ . So far I am not aware of any adverse effects. Not saying there won't be any ever, but I would be a lot more paranoid about my browser history.

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#32

Post by Karunamon »

mooneater wrote: post #24

Everyone is so fixated on the price. What I want to know is, who they share the data with? Do the insurance companies get our genome? Come on people, there should be no more precious data to you, than the genome of you and your family. Yet facebook users seem more concerned about their social network privacy than HN members are about their genome privacy. For insurance companies, this could be a total actuarial GOLDM…

>What I want to know is, who they share the data with?

Did you read the privacy policy? Specifically:

https://customercare.23andme.com/entries/21262376-how-is-the...

23andMe research may involve collaboration with external parties; however, these external parties will only have access to pooled data stripped of identifying information. 23andMe will never release your individual-level data to any third party without asking for and receiving your explicit authorization to do so. As part of our commitment to protecting the privacy of our research participants, we have also obtained a Certificate of Confidentiality from the U.S. Department of Health and Human Services. This certificate allows 23andMe to protect research participants’ data from involuntary disclosure, including subpoenas from federal, state, and local authorities.

>Do the insurance companies get our genome?

They're not allowed to discriminate based on genetic predisposition, and based on the privacy policy, they're not going to get that info anyways.

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#33

Post by a_bonobo »

fingerprinter wrote: post #27

I wonder what their threshold is for offering this as the permanent price? I know I've never considered it before b/c of the price. Heck, I didn't consider it when I got the $99 offer. But when I got $49, I ordered two.

It used to be back when the $299 price was offered that you had to pay $99 for a year of subscription to their annotation updates, not sure what's going on now.

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#34

Post by fingerprinter »

mooneater wrote: post #24

Everyone is so fixated on the price. What I want to know is, who they share the data with? Do the insurance companies get our genome? Come on people, there should be no more precious data to you, than the genome of you and your family. Yet facebook users seem more concerned about their social network privacy than HN members are about their genome privacy. For insurance companies, this could be a total actuarial GOLDM…

Yeah, you're right. Though I'm generally curious and I'd like to know more about this part of me, scientifically. Is there some other way I can find that?

And as for insurance, I think that applies in the US where insurance companies are, well, evil. In AU, or CAN or some other country where medicine is provided to everyone, this actually seems like GOOD information to have on hand.

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#35

Post by [deleted] »

mooneater wrote: post #24

Everyone is so fixated on the price. What I want to know is, who they share the data with? Do the insurance companies get our genome? Come on people, there should be no more precious data to you, than the genome of you and your family. Yet facebook users seem more concerned about their social network privacy than HN members are about their genome privacy. For insurance companies, this could be a total actuarial GOLDM…

[deleted]

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#37

Post by mikeryan »

Karunamon wrote: post #32
mooneater wrote: post #24

Everyone is so fixated on the price. What I want to know is, who they share the data with? Do the insurance companies get our genome? Come on people, there should be no more precious data to you, than the genome of you and your family. Yet facebook users seem more concerned about their social network privacy than HN members are about their genome privacy. For insurance companies, this could be a total actuarial GOLDM…

>What I want to know is, who they share the data with? Did you read the privacy policy? Specifically: https://customercare.23andme.com/entries/21262376-how-is-the... 23andMe research may involve collaboration with external parties; however, these external parties will only have access to pooled data stripped of identifying information. 23andMe will never release your individual-level data to any third party without a…

BTW Full Privacy Policy is here

https://www.23andme.com/about/privacy/#Full

It's pretty clear on what they choose to share.

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#38

Post by fingerprinter »

a_bonobo wrote: post #33
fingerprinter wrote: post #27

I wonder what their threshold is for offering this as the permanent price? I know I've never considered it before b/c of the price. Heck, I didn't consider it when I got the $99 offer. But when I got $49, I ordered two.

It used to be back when the $299 price was offered that you had to pay $99 for a year of subscription to their annotation updates, not sure what's going on now.

Hmmm...not sure I'd care about the updates nearly as much as the initial profile. Does anyone see value from the updates? What kind of information do those provide?

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#39

Post by AngryParsley »

mooneater wrote: post #24

Everyone is so fixated on the price. What I want to know is, who they share the data with? Do the insurance companies get our genome? Come on people, there should be no more precious data to you, than the genome of you and your family. Yet facebook users seem more concerned about their social network privacy than HN members are about their genome privacy. For insurance companies, this could be a total actuarial GOLDM…

The Genetic Information Nondiscrimination Act[1] was passed 4 years ago. It makes it illegal for insurance companies and employers to discriminate based on genetic information.

In the long-term, it's unlikely that you'll be able hide your genome. Sequencing technology is only going to get cheaper and more advanced. People slough off cells like crazy. You'll have to live in a spacesuit if you want to avoid leaving your genetic information everywhere.

1. http://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimi...

Re: $49 Personal Genome at 23andme (incognito windows until you get the best price)

#40

Post by cynix »

Dramatize wrote: post #26

Wow, they are charging $115 shipping to Australia for two kits.

To be fair, the charge includes both shipping the kits to you and for you to ship the kits back to them, so the price isn't as bad as it looks. But I do agree with you that it can be lower.
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