I'm glad this is getting more attention!
I posted the original reporting from The Australian yesterday - it's a good primer.
https://news.ycombinator.com/item?id=47379740 https://archive.is/pvRaG
The bureaucracy blocking the chance at a cure
31–40 of 192 posts
Re: The bureaucracy blocking the chance at a cure
#32The healthcare industry, especially in the US, isn't interested in finding cures for disease. It's interested in maximizing profits, which is a goal that the bureaucracy serves.
Healthy people are more productive, which mean they are better paid, which mean they have more money for healthcare, which means profits for the healthcare industry.
Finding cures is a good way of maximizing profits, the best way actually, and if the healthcare industry is not doing that, it means that something else is stopping them. It can be bureaucracy, it can be just because it is really hard, it can be some systemic problem linked to health insurance and government funding, but I don't see how the healthcare industry wouldn't want to cure people.
It is an industry where demand is guaranteed, diseases in general are not disappearing anytime soon, let alone aging.
Re: The bureaucracy blocking the chance at a cure
#33That article is exactly on point. There is a process in place for the express reason of slowing and blocking anything that will bring about positive, meaningful solutions and potential cures to the human condition.
Because the old state of affairs had desperate people being experimented on by opportunists, charlatans and fraudsters for money. There's work to be done balancing the equities of people with terminal diagnoses but lets not pretend there's no point to the roadblocks to human experimentation on the dying.
Re: The bureaucracy blocking the chance at a cure
#34As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…
Have you tried the "forgiveness is easier than permission" approach? What would happen if you just installed the solar panels? I know that in some countries they'd come by with a bulldozer and tear them down again - is your country one of those?
I am not sure about a bulldozer, but in the UK you will be forced to demolish it yourself. I am not sure what the penalty is for failing to do so when ordered to, but it seems to be usually effective.
Re: The bureaucracy blocking the chance at a cure
#35The healthcare industry, especially in the US, isn't interested in finding cures for disease. It's interested in maximizing profits, which is a goal that the bureaucracy serves.
Healthy people are more productive, which mean they are better paid, which mean they have more money for healthcare, which means profits for the healthcare industry. Finding cures is a good way of maximizing profits, the best way actually, and if the healthcare industry is not doing that, it means that something else is stopping them. It can be bureaucracy, it can be just because it is really hard, it can be some sys…
yes and no. Finding treatments that require long term commitments is more profitable than finding cures. Look at the history of ulcer drugs. Pharmaceutical companies spent huge amounts to develop drugs that ameliorated symptoms, a two person team found a cure for most ulcers.
Re: The bureaucracy blocking the chance at a cure
#36Earlier quoted context omitted.
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Load of bollocks, this meme is tiresome. It's the USA that fires people and jails people for a month for social media posts https://apnews.com/article/charlie-kirk-meme-tennessee-arres... Or if you want some actual context rather than twitter outrage bait https://www.youtube.com/watch?v=tB3WVygAM8I
There are literally people in the UK in jail for tweets deemed to be incitement to violence. Maybe you think it's a good thing! I don't care! But it's ridiculous to argue over the facts on the ground.
Re: The bureaucracy blocking the chance at a cure
#37Earlier quoted context omitted.
Load of bollocks, this meme is tiresome. It's the USA that fires people and jails people for a month for social media posts https://apnews.com/article/charlie-kirk-meme-tennessee-arres... Or if you want some actual context rather than twitter outrage bait https://www.youtube.com/watch?v=tB3WVygAM8I
There are literally people in the UK in jail for tweets deemed to be incitement to violence. Maybe you think it's a good thing! I don't care! But it's ridiculous to argue over the facts on the ground.
What were the tweets?
Re: The bureaucracy blocking the chance at a cure
#38As someone who has looked at things like Renewable energy deployments within the UK, this is a pattern that seems to be quite pervasive across all industries. The byzantine web of planning approvals, goose counting, public outcry that you have to deal with to deploy essentially a relatively small solar farm is monstrous. What that results with is that the only people capable of creating & managing these processes hav…
That's what a lot of people seemingly struggle to understand. Inaction is not a safe action. Inaction has a price. And sometimes a death toll too.
It depends on your point of view. For the person deciding on giving permission they will not be thanked for allowing it, but might well be blamed if something goes horribly wrong.
Re: The bureaucracy blocking the chance at a cure
#39Earlier quoted context omitted.
Have you tried the "forgiveness is easier than permission" approach? What would happen if you just installed the solar panels? I know that in some countries they'd come by with a bulldozer and tear them down again - is your country one of those?
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Troll post. Adds nothing to the conversation, just wants to inject a tired meme.
What is the relevance of law and law enforcement around online messaging to renewable energy legislation?
Re: The bureaucracy blocking the chance at a cure
#40> More and more promising treatments are accumulating in the pipeline, fueled by an explosion of new therapeutic modalities, ranging from mRNA to better peptides and more recently, by AI. If the pipeline is backed up you put a bigger pipe in place, not get rid of it and hope some of the resulting flood goes where you want.
It’s less of a pipeline and more like a rocket engine. The exhaust gas (clinical data) spins the pump. We’ve put restrictors on that flow, and it’s taking a lot of fuel to get off the ground.