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Rose Marie Bentley lived for 99 years with organs in all the wrong places

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Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#31
The article states that situs inversus sufferers "invariably" have severe heart defects, and generally gives a pretty bleak outlook for the condition. And yet this woman made it to 99, without diagnosis, despite several surgeries.

I wonder if anyone has done a statistical analysis to find the true number of undiagnosed cases, because it would seem to be very high.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#32
post #31

The article states that situs inversus sufferers "invariably" have severe heart defects, and generally gives a pretty bleak outlook for the condition. And yet this woman made it to 99, without diagnosis, despite several surgeries. I wonder if anyone has done a statistical analysis to find the true number of undiagnosed cases, because it would seem to be very high.

They explain the likely reason:

> But Bentley was an anomaly, one of the few born with the condition that didn't have heart defects, Walker said. "That is almost certainly the factor that contributed most to her long life," he said.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#33
post #23

Earlier quoted context omitted.

My favorite was a statistician in the late 40's early 50's who was tasked by the air force to find the 'average pilot'. The reason was new fangled jet fighters were crashing due to pilot error. At higher rates than could be anything but problems with the man machine interface. He and his helpers took 10's of thousands of measurements of thousands of air force pilots and determined that, there is no such thing as the…

What's really whack when you consider it is the same neuromuscular system that allows us to walk can also be repurposed to drive a car, fly a plane and operate other machinery. Isn’t this because we purposely design all those things around our anatomy though? I’d imagine alien octopuses’ vehicles would be designed around their anatomy and they would have no trouble using them.

Not OP, but I always thought it’s amazing how it becomes second nature.

You think you want to turn left and slow down, not I have to use my left foot to slowly press the brake and slowly move my hands in a circle while grasping.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#34

How does the body figure out which side is left and which side is right? I can think of an easy way to break symmetry but it seems harder to consistently know which side is which.

Apparently it's not easy: https://en.wikipedia.org/wiki/Left-right_asymmetry_(biology)

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#38
post #19
post #7

This is fascinating! I was diagnosed with dextrocardia w/ situs inversus at 19. I didn't make it to 99 years old to find out I had it, but several physicians and doctors in my childhood missed the diagnosis too. Story time! This is written on mobile so I apologise for grammar and spelling errors. I had awful asthma as a child and would frequently visit hospital till my teenage years because of asthma attacks and simi…

I also have Situs Inversus Totalis. Thankfully I haven't had any major health incidents to date, and my experiences with doctors and nurses has been similar. EKGs in particular can be quite interesting. :) I'm also diagnosed with Primary Ciliary Dyskinesia, and your mention of asthma issues as a child had me wondering if it's something you're aware of? About 50% of people with PCD also have Situs Inversus Totalis. Th…

Holy shit! Yeah perhaps, I'm due for a medical examination, I'll bring this up.

Do you often get chest infections too? Apparently that's very common as it is with me and those who have DC or Situs Inversus.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#39

Earlier quoted context omitted.

What's really whack when you consider it is the same neuromuscular system that allows us to walk can also be repurposed to drive a car, fly a plane and operate other machinery. Isn’t this because we purposely design all those things around our anatomy though? I’d imagine alien octopuses’ vehicles would be designed around their anatomy and they would have no trouble using them.

Not OP, but I always thought it’s amazing how it becomes second nature. You think you want to turn left and slow down, not I have to use my left foot to slowly press the brake and slowly move my hands in a circle while grasping.

Breaking with the left foot sounds really dangerous. What is the right foot doing?

...though I guess you were just reinforcing your point: driving becomes so second nature that you forget the implementation details.

Re: Rose Marie Bentley lived for 99 years with organs in all the wrong places

#40

Earlier quoted context omitted.

You know, this sounds like the kind of thing you get a tattoo for!

It's on my list! I should probably prioritise it a little higher...

Get it in mirror imaged text :)
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