This sounds familiar. I have watched now quite a few people go through serious diseases. One pattern I saw was tests, tests and more tests. A lot of them very expensive, time consuming and painful. But when you ask what they will do with the test results there often is silence. To me it looks like they are doing something because “we need to do something”. Reminds me a little of data collection practices at companies…
As a patient (or a patient advocate for a loved-one), anytime a test is proposed it is important to ask what actionable information can come out of it. Basically look 2 steps ahead. Some tests will help confirm a course of treatment, or propose a new one. But what if that treatment is something you've already decided you won't do? For example in an older patient too old for a surgery or a baby that you've already dec…
"
I had the impression that a lot of doctors go through the same test protocols independent of patient situation. They are more deliberate with the actual treatment but there seems less thought about the necessity of testing.