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FDA Approves Radicava, First New ALS1 Therapy in 22 Years

31–32 of 32 posts

Re: FDA Approves Radicava, First New ALS1 Therapy in 22 Years

#31

Post by caycep » Mon, May 22, 2017, 5:16 PM UTC

baq wrote: post #12

> According to the ALS Association, the treatment’s list price is $1,000 per infusion, or about $146,000 annually, and it is expected to be available for use by August. $146k/year for being able to live a better life, or maybe at all. right up there with cancer treatments according to my ethical standards.

erm. $146k for a 2 pt improvement in the rating scale compared w/ placebo. What that means for real life, who knows....

Re: FDA Approves Radicava, First New ALS1 Therapy in 22 Years

#32

Post by threecheese » Mon, May 22, 2017, 7:12 PM UTC

hornd wrote: post #3

I realize this doesn't add anything to the conversation, but as someone whose mom passed away from ALS, I welcome anything that can remotely improve this terrible disease. Watching her go from walking to barely able to lift a glass in six months was devastating and I'd have given much for 33% more able-bodied time with her.

Me too. I almost can't keep it together reading this. 33%!! I do wish it's mechanism was known, hopefully anyway it will open up the door for better treatments.

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