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Tinnitus linked to undetected auditory nerve damage

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Re: Tinnitus linked to undetected auditory nerve damage

#291

Post by berniedurfee »

jader201 wrote: post #96

I don’t know if this is a clue, but I can do muscle movements in my head/face/jaw to make the tinnitus worse (only as I make the movements, immediately reverting back to “normal” tinnitus as soon as I relax). Some examples: - jutting my jaw forwards - moving my ears back with my face muscles - pushing downward on the top of my head with my hands Another possible clue: this has been true since I can remember — even as…

Mine is due to hearing damage from being stupid.

I can modulate it as well using my jaw muscles.

What I’ve always found interesting is that I can’t describe the sound. It’s high pitched, but I’ve never found a frequency of tone that matches or even comes close to the tinnitus.

I would imagine the signals my brain receives from the damaged nerves is very complex. Not white noise, but probably the equivalent of a tone with lots of specific harmonics.

As for my experience, it’s been an issue for so long it doesn’t generally affect me. It’s always there and I can’t ignore it, but it doesn’t disrupt my life, other than having generally not great hearing.

Re: Tinnitus linked to undetected auditory nerve damage

#293

Post by longstation »

jader201 wrote: post #96

I don’t know if this is a clue, but I can do muscle movements in my head/face/jaw to make the tinnitus worse (only as I make the movements, immediately reverting back to “normal” tinnitus as soon as I relax). Some examples: - jutting my jaw forwards - moving my ears back with my face muscles - pushing downward on the top of my head with my hands Another possible clue: this has been true since I can remember — even as…

This is exactly the same as mine. I never found any with this situation. Even if someone claims to have tinnitus, it's a different variation.

My feeling is, for a lack of better word, grateful, (definitely not a good thing for your or me) that I finally found someone the same as mine.

Next time I ever want to see a doctor again for this (not helpful btw, they don't really have cure or seem to understand my situation), I will just show your comment!

Re: Tinnitus linked to undetected auditory nerve damage

#294

Post by rajin112 »

Mine started after taking antibiotics for Lymes. Not sure what caused it the antibiotics or lymes... this was in 2021 so other things were at play too.

Anyone have any tips for healing?

Really has hindered from doing deep thinking and just even day dreaming. I have been an avid meditator and I feel that has been taken away from me.

What is good though is that I dont hear it when i am active in the day such as working or out with friends.

Re: Tinnitus linked to undetected auditory nerve damage

#295

Post by hackernewds »

rajin112 wrote: post #294

Mine started after taking antibiotics for Lymes. Not sure what caused it the antibiotics or lymes... this was in 2021 so other things were at play too. Anyone have any tips for healing? Really has hindered from doing deep thinking and just even day dreaming. I have been an avid meditator and I feel that has been taken away from me. What is good though is that I dont hear it when i am active in the day such as working…

you learn to zone out your tinnitus. ironically, meditation helps me be more present and be WITH the tinnitus.

it sucks. especially if you have an injury it might be permanent, however ENT doctors have told me it's all imagines which I refuse to believe

Re: Tinnitus linked to undetected auditory nerve damage

#296

Post by hackernewds »

rajin112 wrote: post #294

Mine started after taking antibiotics for Lymes. Not sure what caused it the antibiotics or lymes... this was in 2021 so other things were at play too. Anyone have any tips for healing? Really has hindered from doing deep thinking and just even day dreaming. I have been an avid meditator and I feel that has been taken away from me. What is good though is that I dont hear it when i am active in the day such as working…

to add to my other comment: https://youtu.be/2yDCox-qKbk?si=eEjtlP97v8UiubX4

this trick helped me be in silence for the first time in decades. it was wonderful, to say the least

Re: Tinnitus linked to undetected auditory nerve damage

#297

Post by pasc1878 »

rajin112 wrote: post #294

Mine started after taking antibiotics for Lymes. Not sure what caused it the antibiotics or lymes... this was in 2021 so other things were at play too. Anyone have any tips for healing? Really has hindered from doing deep thinking and just even day dreaming. I have been an avid meditator and I feel that has been taken away from me. What is good though is that I dont hear it when i am active in the day such as working…

I don't think there is any way to heal tinnitus.

The best you can do is get habituated to it, that is get used to it.

The only way is as you have found is to concentrate or do something else.

Re: Tinnitus linked to undetected auditory nerve damage

#298

Post by iJohnDoe »

jader201 wrote: post #96

I don’t know if this is a clue, but I can do muscle movements in my head/face/jaw to make the tinnitus worse (only as I make the movements, immediately reverting back to “normal” tinnitus as soon as I relax). Some examples: - jutting my jaw forwards - moving my ears back with my face muscles - pushing downward on the top of my head with my hands Another possible clue: this has been true since I can remember — even as…

Same here. Head and neck movement can make my tinnitus worse. If I sleep poorly on my neck then I can wake up with my tinnitus being much louder.

Re: Tinnitus linked to undetected auditory nerve damage

#299

Post by hackernewds »

longstation wrote: post #293
jader201 wrote: post #96

I don’t know if this is a clue, but I can do muscle movements in my head/face/jaw to make the tinnitus worse (only as I make the movements, immediately reverting back to “normal” tinnitus as soon as I relax). Some examples: - jutting my jaw forwards - moving my ears back with my face muscles - pushing downward on the top of my head with my hands Another possible clue: this has been true since I can remember — even as…

This is exactly the same as mine. I never found any with this situation. Even if someone claims to have tinnitus, it's a different variation. My feeling is, for a lack of better word, grateful, (definitely not a good thing for your or me) that I finally found someone the same as mine. Next time I ever want to see a doctor again for this (not helpful btw, they don't really have cure or seem to understand my situation)…

if it helps you or your doctor, my experience is exactly the same. I can amplify the tinnitus with jaw movements

Re: Tinnitus linked to undetected auditory nerve damage

#300

Post by hackernewds »

carrozo wrote: post #182
nsxwolf wrote: post #97

Earlier quoted context omitted.

Interesting. I can “play my eardrums”, which I describe as the ability to consciously control something in my ears that causes a loud fluttering, ringing sound that is something like wind entering my ear canals combined with a bell. After some research I’ve found some people can control something called the “tensor tympani” and generate sounds described as a “roar” but being a subjective experience I am not certain t…

There’s a whole subreddit dedicated to this, which they call “ear rumbling”: https://www.reddit.com/r/earrumblersassemble/

wow there's a word for my useless ability!
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